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  1. R

    Why doesn't it seem like doctors are super aggressive with sinuses?

    It also may depend on your clinic/CF doc. Some may be more aggressive than others. I agree that the sinuses feed the lungs. My daughter was having a lot of issues when she was 2 or so, her regular pediatrician ordered a sinus CT, which I can't remember what it showed but it was not normal...
  2. R

    Muscle and Joint Pain/severe exhaustion

    Zyvox can cause muscle aches, neuropathy. My daughter has complained about "leg aches" when she is on Zyvox. Have you had labwork done while on all these antibiotics? BUN Creatinine, lytes, Liver function test, and a CBC. There may be other lab tests that your doc would recommend as well...
  3. R

    Muscle and Joint Pain/severe exhaustion

    Zyvox can cause muscle aches, neuropathy. My daughter has complained about "leg aches" when she is on Zyvox. Have you had labwork done while on all these antibiotics? BUN Creatinine, lytes, Liver function test, and a CBC. There may be other lab tests that your doc would recommend as well...
  4. R

    Muscle and Joint Pain/severe exhaustion

    Zyvox can cause muscle aches, neuropathy. My daughter has complained about "leg aches" when she is on Zyvox. Have you had labwork done while on all these antibiotics? BUN Creatinine, lytes, Liver function test, and a CBC. There may be other lab tests that your doc would recommend as well...
  5. R

    Alternative treatments for MRSA

    Linezolid is the drug the works best for my daughter's MRSA. We try to avoid using it, unless absolutely necessary but usually once a year, typically after the winter, she needs a 2 week course. She did have one 3 year run without needing it once which was great. The 3 year run of not...
  6. R

    to humidify or not to humidify? err..purify?

    We do not humidify. i do have a Holmes Air Purifier in my daughter's bedroom. It has charcoal filters and a HEPA filter. Mostly, it helps with dust in the air. I got it at Target. We do have a dog and a cat. I do not let either animal in my daughter's bedroom..
  7. R

    to humidify or not to humidify? err..purify?

    We do not humidify. i do have a Holmes Air Purifier in my daughter's bedroom. It has charcoal filters and a HEPA filter. Mostly, it helps with dust in the air. I got it at Target. We do have a dog and a cat. I do not let either animal in my daughter's bedroom..
  8. R

    to humidify or not to humidify? err..purify?

    We do not humidify. i do have a Holmes Air Purifier in my daughter's bedroom. It has charcoal filters and a HEPA filter. Mostly, it helps with dust in the air. I got it at Target. <br /> <br />We do have a dog and a cat. I do not let either animal in my daughter's bedroom.. <br /> <br />
  9. R

    Post Traumatic Stress in parents of kids with CF

    Heather, That was an awesome article. I need to reread it to digest some of the information. My opinion is this is a fabulous hand out that ALL genetic counselors should read. I love the comment you said about Purell being a verb. Kudos to you!!!
  10. R

    Post Traumatic Stress in parents of kids with CF

    Heather, That was an awesome article. I need to reread it to digest some of the information. My opinion is this is a fabulous hand out that ALL genetic counselors should read. I love the comment you said about Purell being a verb. Kudos to you!!!
  11. R

    Post Traumatic Stress in parents of kids with CF

    Heather, <br /> <br />That was an awesome article. I need to reread it to digest some of the information. My opinion is this is a fabulous hand out that ALL genetic counselors should read. <br /> <br />I love the comment you said about Purell being a verb. Kudos to you!!!
  12. R

    What do you think about this?

    Is it similar to an insulin pump? Funny, I was thinking about CFRD last night. My husband was at the CF conference and we were discussing the new drugs, the Vertex drug. I was curious if researchers had evaluated the effect of the drug on blood sugars and in theory could it slow the process...
  13. R

    What do you think about this?

    Is it similar to an insulin pump? Funny, I was thinking about CFRD last night. My husband was at the CF conference and we were discussing the new drugs, the Vertex drug. I was curious if researchers had evaluated the effect of the drug on blood sugars and in theory could it slow the process...
  14. R

    What do you think about this?

    Is it similar to an insulin pump? <br /> <br />Funny, I was thinking about CFRD last night. My husband was at the CF conference and we were discussing the new drugs, the Vertex drug. I was curious if researchers had evaluated the effect of the drug on blood sugars and in theory could it slow...
  15. R

    Day in our life video shown at NACFC conference - see link

    Lauren, What a great video! You have a sweet family. Thank you for giving us a voice and for participating in the clinical trial.
  16. R

    Day in our life video shown at NACFC conference - see link

    Lauren, What a great video! You have a sweet family. Thank you for giving us a voice and for participating in the clinical trial.
  17. R

    Day in our life video shown at NACFC conference - see link

    Lauren, <br /> <br />What a great video! You have a sweet family. Thank you for giving us a voice and for participating in the clinical trial.
  18. R

    Pimples/boils

    Thank you for your input. She cultures 2 types of staph; the last time she was throat swabbed it was staph not MRSA. It's funny cause she has had a few colds since school started but got through them ok. Sh is on Bactrim daily. Maybe it is from sitting so much at school. I really like...
  19. R

    Pimples/boils

    Thank you for your input. She cultures 2 types of staph; the last time she was throat swabbed it was staph not MRSA. It's funny cause she has had a few colds since school started but got through them ok. Sh is on Bactrim daily. Maybe it is from sitting so much at school. I really like...
  20. R

    Pimples/boils

    Thank you for your input. She cultures 2 types of staph; the last time she was throat swabbed it was staph not MRSA. It's funny cause she has had a few colds since school started but got through them ok. Sh is on Bactrim daily. Maybe it is from sitting so much at school. <br /> <br />I...
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