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To the wondering mother:Did you ever hear about the flutter valve? It's what I use on sleepovers, at camp, and even at home a bit. Its a small (a bit bigger than an inhaler) device that you blow into and the reverberations (sp?) from a ball insde reflect into your chest and shake it, much like...

Hi- I've always had issues swallowing my enzymes whole. I used to use applesauce, but when you get older, there's not always applesauce to use. Now I just open up the capsules and pour the 'pulvules' into my mouth, then wash them down with a drink. I'm not sure if this works with all enzymes- it...

I think Debbie's talking about Nystatin. I've used it for oral thrush, and it works great.

Jeff,Hi. Even though I'm not an adult yet, I can answer some of your questions. The first one, I am double Delta508 and so can't answer. As for staying in Italy or moving back to the U.S., you should not only factor the decision (in relation to CF at least- there are many other personal things...

I've only been told pseudomonas CAN be a problem in indoor pools, as well as fungi and other bacteria if the pool is not maintained and kept very clean. So my whole life, I've avoided indoor pools as much as possibly, but I swim in an outdoor pool almost everyday during the summer.

I recently got a feeding tube "button" and just had a few questions about what you guys do.1) For those of you on night feeds, have you found any other position to sleep in other than your back? I find this very uncomfortable, but it seems to be the only way to sleep without kinking the tube or...

Hi Allison,To answer your questions1) Will the baby be a carrier? There's a 1 in four chance she will be if only your sister in law is a carrier, a 50% chance if both parents turn out to be carriers. About 1 in 20 caucasians carry the CF gene, I'm not sure about the other races. Carriers don't...

When I've been on Cipro, I've gotten very bad joint pain in my hips and knees especially, so I researched a bit and found that joint pain actually is a side effect. Just thought I'd share

Its completely normal for CFers to start their periods late. Also, even if you didn't have CF, 14/15 is still not that late for a healthy person to get their period-- some of my non CF friends are 15 and still haven't gotten theirs so dont worry

I'm not sure if bitter is the best word to describe teens with CF. Bitter is not how I feel. I resent the fact I have cf, that I can't live a normal life like my friends; but those feelings are about stupid things, like having to sleep on my back because of my bard button, or not being able to...

Just wondering if anyone had had experiences with going back to school after extended absences due to IVS, surgery, whatever... not necessarily the academic aspects of going back, but readjusting to the social hierachy of school and such. <img src="i/expressions/face-icon-small-smile.gif"...

Hey everyone Im 15 wcf but was interested in the piccline information. One thing ive found with picclines (ive had about 6 or 7) is that different hospitals/doctors seem to have different definitions of what a piccline is. i've had them put in at 3 different hospitals/ day surgery centers and...

Heyi'm coll and am 15wcf.... i was a pretty typical cf case (ivs 1/a year, skinny but not dangerously so) until last summer or so... i've missed out on almost my entire freshman year of high school, since ive been on ivs half the time and then too sick to go the other half. but recently i got a...