Search results

  1. R

    Input

    This winter has been tough for my daughter. She cultured pseudomonas first time in January did TOBI and Cipro to treat it then on her last day of Cipro she go the flu; ended back up on Cipro plus the TOBI and Zyvox. Repeat culture showed no pseudo; only staph areus and moderate yeast(after all...
  2. R

    Rose pins

    Hmm, great idea. I think my Dad has something to make business cards. Maybe I'll delegate a project to him of the 65 roses for CF and sell them for $5...
  3. R

    Rose pins

    Hmm, great idea. I think my Dad has something to make business cards. Maybe I'll delegate a project to him of the 65 roses for CF and sell them for $5...
  4. R

    Rose pins

    Hmm, great idea. I think my Dad has something to make business cards. Maybe I'll delegate a project to him of the 65 roses for CF and sell them for $5...
  5. R

    Scared my son may have CF

    I am so sorry you have to go through this. Why can't you get into see a CF specialist sooner? 2 months is a long time to wait for your sanity and your child health. If they suspect CF, usually they do something called a sweat test; which is actually a fairly quick test and the results come...
  6. R

    Scared my son may have CF

    I am so sorry you have to go through this. Why can't you get into see a CF specialist sooner? 2 months is a long time to wait for your sanity and your child health. If they suspect CF, usually they do something called a sweat test; which is actually a fairly quick test and the results come...
  7. R

    Scared my son may have CF

    I am so sorry you have to go through this. Why can't you get into see a CF specialist sooner? 2 months is a long time to wait for your sanity and your child health. <br /> <br />If they suspect CF, usually they do something called a sweat test; which is actually a fairly quick test and the...
  8. R

    Rose pins

    So, I went to the $ store today and saw these rose pins, the kind you might wear on a jacket(like a pushpin). I bought all of them, thinking I could use them for our walk somehow. They were only 50 cents a piece! How much would you sell them at the walk? $2.00 a piece. Just give them away...
  9. R

    Rose pins

    So, I went to the $ store today and saw these rose pins, the kind you might wear on a jacket(like a pushpin). I bought all of them, thinking I could use them for our walk somehow. They were only 50 cents a piece! How much would you sell them at the walk? $2.00 a piece. Just give them away...
  10. R

    Rose pins

    So, I went to the $ store today and saw these rose pins, the kind you might wear on a jacket(like a pushpin). I bought all of them, thinking I could use them for our walk somehow. They were only 50 cents a piece! <br /> <br />How much would you sell them at the walk? $2.00 a piece. Just...
  11. R

    QR codes

    Is that an app you can download to an Ipod touch?
  12. R

    What do you think?

    So I was thinking about the compressors we use for the nebs day in and day out. Something like the Pari is just not great for CF kids/adults who do back to back multiple nebs a day. We recently purchased a Mobilaire compressor which is SOOOOOO much better. It works faster and has not broken...
  13. R

    What do you think?

    So I was thinking about the compressors we use for the nebs day in and day out. Something like the Pari is just not great for CF kids/adults who do back to back multiple nebs a day. We recently purchased a Mobilaire compressor which is SOOOOOO much better. It works faster and has not broken...
  14. R

    What do you think?

    So I was thinking about the compressors we use for the nebs day in and day out. Something like the Pari is just not great for CF kids/adults who do back to back multiple nebs a day. We recently purchased a Mobilaire compressor which is SOOOOOO much better. It works faster and has not broken...
  15. R

    QR codes

    I don't get it. Explain it to me like I am a 5 year old(though they would likely get it!) ;)
  16. R

    low fever

    I request a copy of the sputum culture report, good idea to have just in case. They should be able to mail you a copy, it will tell you the bacteria that was cultured, which in your son's case was staph and the sensitivitys. That will tell you which antibiotics will work against that bacteria...
  17. R

    low fever

    I request a copy of the sputum culture report, good idea to have just in case. They should be able to mail you a copy, it will tell you the bacteria that was cultured, which in your son's case was staph and the sensitivitys. That will tell you which antibiotics will work against that bacteria...
  18. R

    low fever

    I request a copy of the sputum culture report, good idea to have just in case. They should be able to mail you a copy, it will tell you the bacteria that was cultured, which in your son's case was staph and the sensitivitys. That will tell you which antibiotics will work against that bacteria...
  19. R

    Parents Perspective

    I'll take a stab at this. First of all; every CF patient and family is different. Alot depends on the individual CF patient in terms of the severity of their disease. Income and resources for the family also come in play. The greatest challenge for our family; likely this will change over...
  20. R

    Parents Perspective

    I'll take a stab at this. First of all; every CF patient and family is different. Alot depends on the individual CF patient in terms of the severity of their disease. Income and resources for the family also come in play. The greatest challenge for our family; likely this will change over...
Top