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  1. R

    Parents Perspective

    I'll take a stab at this. First of all; every CF patient and family is different. Alot depends on the individual CF patient in terms of the severity of their disease. Income and resources for the family also come in play. <br /> <br />The greatest challenge for our family; likely this will...
  2. R

    When (and how) you tell to your kids they have CF?

    About the vacation thing; our family goes on vacations as well. It's always alot of work with all the supplies, but my husband loves to travel and feels we are creating family memories and experiences by going to different places. If my daughter did not have CF, I am sure we'ld go on...
  3. R

    When (and how) you tell to your kids they have CF?

    About the vacation thing; our family goes on vacations as well. It's always alot of work with all the supplies, but my husband loves to travel and feels we are creating family memories and experiences by going to different places. If my daughter did not have CF, I am sure we'ld go on...
  4. R

    When (and how) you tell to your kids they have CF?

    About the vacation thing; our family goes on vacations as well. It's always alot of work with all the supplies, but my husband loves to travel and feels we are creating family memories and experiences by going to different places. If my daughter did not have CF, I am sure we'ld go on...
  5. R

    Caught influenza despite flu shot!

    So sorry you have the flu! Pretty sure I had it this year and my daughter with CF too even though we all get the flu shot. We did not get swabbed but We had all the symptoms, fever, sore throat, cough, I (don't even have CF) and I coughed up a couple mucus plugs. Drink as much fluids as you...
  6. R

    Caught influenza despite flu shot!

    So sorry you have the flu! Pretty sure I had it this year and my daughter with CF too even though we all get the flu shot. We did not get swabbed but We had all the symptoms, fever, sore throat, cough, I (don't even have CF) and I coughed up a couple mucus plugs. Drink as much fluids as you...
  7. R

    Caught influenza despite flu shot!

    So sorry you have the flu! Pretty sure I had it this year and my daughter with CF too even though we all get the flu shot. We did not get swabbed but We had all the symptoms, fever, sore throat, cough, I (don't even have CF) and I coughed up a couple mucus plugs. <br /> <br />Drink as much...
  8. R

    How do you clean a Flutter Valve

    Well, I took it apart and "lightly" boiled it for 5-10 minutes and it was fine... After use I washed with antibacterial soap. Maybe frequent boiling ruins it?
  9. R

    How do you clean a Flutter Valve

    Well, I took it apart and "lightly" boiled it for 5-10 minutes and it was fine... After use I washed with antibacterial soap. Maybe frequent boiling ruins it?
  10. R

    How do you clean a Flutter Valve

    Well, I took it apart and "lightly" boiled it for 5-10 minutes and it was fine... After use I washed with antibacterial soap. Maybe frequent boiling ruins it?
  11. R

    How do you clean a Flutter Valve

    Just wondering how you all clean a flutter valve? The booklet says soap and water. Do you think boiling will melt it? Thanks!
  12. R

    How do you clean a Flutter Valve

    Just wondering how you all clean a flutter valve? The booklet says soap and water. Do you think boiling will melt it? Thanks!
  13. R

    How do you clean a Flutter Valve

    Just wondering how you all clean a flutter valve? The booklet says soap and water. Do you think boiling will melt it? <br /> <br />Thanks!
  14. R

    Going on a ski trip

    My daughter loves to ski. It's great to be outside, fresh air in the winter. She gets a lesson with a group of other children when we have gone(which I was so nervous about). I would just mention to the "ski school" she has CF and if their is a snack she needs enzymes. I also watched the...
  15. R

    Going on a ski trip

    My daughter loves to ski. It's great to be outside, fresh air in the winter. She gets a lesson with a group of other children when we have gone(which I was so nervous about). I would just mention to the "ski school" she has CF and if their is a snack she needs enzymes. I also watched the...
  16. R

    Going on a ski trip

    My daughter loves to ski. It's great to be outside, fresh air in the winter. She gets a lesson with a group of other children when we have gone(which I was so nervous about). I would just mention to the "ski school" she has CF and if their is a snack she needs enzymes. I also watched the...
  17. R

    Party City has picked Cystic Fibrosis for this month

    I love it! DId the CF Foundation provide the pins?
  18. R

    Party City has picked Cystic Fibrosis for this month

    I love it! DId the CF Foundation provide the pins?
  19. R

    Party City has picked Cystic Fibrosis for this month

    I love it! DId the CF Foundation provide the pins?
  20. R

    When (and how) you tell to your kids they have CF?

    Heather, For me the answers I have to provide to the kids about CF have been easier for me than providing answers for sex question<img src="i/expressions/face-icon-small-wink.gif" border="0">
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