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  1. H

    for parents

    When does his blood sugar go as high as 220? For what it's worth, A1C is not a great predictor of cf-related diabetes and I'd consider asking for a fasting oral glucose tolerance test. His shakiness might not have anything to do with it (as mentioned, bronchodilators can do it, and some kids...
  2. H

    for parents

    When does his blood sugar go as high as 220? For what it's worth, A1C is not a great predictor of cf-related diabetes and I'd consider asking for a fasting oral glucose tolerance test. His shakiness might not have anything to do with it (as mentioned, bronchodilators can do it, and some kids...
  3. H

    for parents

    When does his blood sugar go as high as 220? For what it's worth, A1C is not a great predictor of cf-related diabetes and I'd consider asking for a fasting oral glucose tolerance test. His shakiness might not have anything to do with it (as mentioned, bronchodilators can do it, and some kids...
  4. H

    Vest comparison

    Yes, the Hillrom 105 is completely programmable and has a pause feature allowing you to pause to cough whenever you need to without messing up your settings. It comes with a cord with a squeeze bulb on the end you can hang on to so you don't have to get up from where you are sitting to pause...
  5. H

    Vest comparison

    Yes, the Hillrom 105 is completely programmable and has a pause feature allowing you to pause to cough whenever you need to without messing up your settings. It comes with a cord with a squeeze bulb on the end you can hang on to so you don't have to get up from where you are sitting to pause...
  6. H

    Vest comparison

    Yes, the Hillrom 105 is completely programmable and has a pause feature allowing you to pause to cough whenever you need to without messing up your settings. It comes with a cord with a squeeze bulb on the end you can hang on to so you don't have to get up from where you are sitting to pause...
  7. H

    When (and how) you tell to your kids they have CF?

    Elizabeth, yes, he should know- because eventually he WILL be told by someone else and it will cause confusion and hurt on his part and wonder why he wasn't told by the people he loves and trusts the most. You may want to simply start by asking him 'have you ever heard us say 'CF' at the dr's...
  8. H

    When (and how) you tell to your kids they have CF?

    Elizabeth, yes, he should know- because eventually he WILL be told by someone else and it will cause confusion and hurt on his part and wonder why he wasn't told by the people he loves and trusts the most. You may want to simply start by asking him 'have you ever heard us say 'CF' at the dr's...
  9. H

    When (and how) you tell to your kids they have CF?

    Elizabeth, yes, he should know- because eventually he WILL be told by someone else and it will cause confusion and hurt on his part and wonder why he wasn't told by the people he loves and trusts the most. <br /> <br />You may want to simply start by asking him 'have you ever heard us say 'CF'...
  10. H

    How do you clean a Flutter Valve

    I put Emily's spacers into our steam sterilizer (which reaches 212*) and they do fine. <img src="i/expressions/face-icon-small-smile.gif" border="0"> (They've been run through it more times than I can count. We have a couple Aerochambers with the valved end, and another brand that is escaping...
  11. H

    How do you clean a Flutter Valve

    I put Emily's spacers into our steam sterilizer (which reaches 212*) and they do fine. <img src="i/expressions/face-icon-small-smile.gif" border="0"> (They've been run through it more times than I can count. We have a couple Aerochambers with the valved end, and another brand that is escaping...
  12. H

    How do you clean a Flutter Valve

    I put Emily's spacers into our steam sterilizer (which reaches 212*) and they do fine. <img src="i/expressions/face-icon-small-smile.gif" border="0"> (They've been run through it more times than I can count. We have a couple Aerochambers with the valved end, and another brand that is escaping...
  13. H

    How do you clean a Flutter Valve

    I'd wash it with soap and water and THEN boil it, since the boiling is what sterilizes it- just like cleaning the nebs, where we wash first, then sterilize. eta> I'm glad it did ok being boiled, though... I guess you'll find out over time how it tolerates it.
  14. H

    How do you clean a Flutter Valve

    I'd wash it with soap and water and THEN boil it, since the boiling is what sterilizes it- just like cleaning the nebs, where we wash first, then sterilize. eta> I'm glad it did ok being boiled, though... I guess you'll find out over time how it tolerates it.
  15. H

    How do you clean a Flutter Valve

    I'd wash it with soap and water and THEN boil it, since the boiling is what sterilizes it- just like cleaning the nebs, where we wash first, then sterilize. <br /> <br />eta> I'm glad it did ok being boiled, though... I guess you'll find out over time how it tolerates it.
  16. H

    How do you clean a Flutter Valve

    The Acapella Choice (not the plain Acapella) can be taken apart and boiled or run through the steam sterilizers. If you aren't comfortable not being able to sterilize the flutter, that is worth considering.
  17. H

    How do you clean a Flutter Valve

    The Acapella Choice (not the plain Acapella) can be taken apart and boiled or run through the steam sterilizers. If you aren't comfortable not being able to sterilize the flutter, that is worth considering.
  18. H

    How do you clean a Flutter Valve

    The Acapella Choice (not the plain Acapella) can be taken apart and boiled or run through the steam sterilizers. If you aren't comfortable not being able to sterilize the flutter, that is worth considering.
  19. H

    Please Help

    The basics, since in much of the cf community there doesn't seem to be a 'standardized' definition of the term. 1/What is atypical cf? 2/What are the differences between 'atypical' CF and a more 'classic' presentation of the disease? 3/ How do we get doctors to take our children's care...
  20. H

    Please Help

    The basics, since in much of the cf community there doesn't seem to be a 'standardized' definition of the term. 1/What is atypical cf? 2/What are the differences between 'atypical' CF and a more 'classic' presentation of the disease? 3/ How do we get doctors to take our children's care...
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