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  1. H

    Got new 105 Vest Model

    I was going to tell you that we had a 105 and I didn't think it took that long to resume full-force pressure after a pause, but Emily happened to still be doing her vest when I started typing and I timed it when she was on high frequency and it really did take more than 5 seconds to get up to...
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    Immunoglobin Deficiency? Anyone else have this or been tested for this?

    Emily's total IgG was something like 270, so not as low as your dd but still quite low. I'm glad my post and link were helpful! Like your child, her IgA, IgE, etc were normal too- it was just the IgG that came back a problem.
  3. H

    Immunoglobin Deficiency? Anyone else have this or been tested for this?

    Emily's total IgG was something like 270, so not as low as your dd but still quite low. I'm glad my post and link were helpful! Like your child, her IgA, IgE, etc were normal too- it was just the IgG that came back a problem.
  4. H

    Immunoglobin Deficiency? Anyone else have this or been tested for this?

    Emily's total IgG was something like 270, so not as low as your dd but still quite low. I'm glad my post and link were helpful! Like your child, her IgA, IgE, etc were normal too- it was just the IgG that came back a problem.
  5. H

    Books about CF for preschoolers/children?

    Emily really likes Mallory's 65 Roses too- I highly recommend it! <img src="i/expressions/face-icon-small-smile.gif" border="0">
  6. H

    Books about CF for preschoolers/children?

    Emily really likes Mallory's 65 Roses too- I highly recommend it! <img src="i/expressions/face-icon-small-smile.gif" border="0">
  7. H

    Books about CF for preschoolers/children?

    Emily really likes Mallory's 65 Roses too- I highly recommend it! <img src="i/expressions/face-icon-small-smile.gif" border="0">
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    Immunoglobin Deficiency? Anyone else have this or been tested for this?

    I'm sorry your daughter has had such a rough time of it and you now have that feeling of 'another thing' to deal with. I do understand that (Emily has other issues in addition to cf.) It is good though to be able to address this and hopefully be able to keep her healthier! Emily had an...
  9. H

    Immunoglobin Deficiency? Anyone else have this or been tested for this?

    I'm sorry your daughter has had such a rough time of it and you now have that feeling of 'another thing' to deal with. I do understand that (Emily has other issues in addition to cf.) It is good though to be able to address this and hopefully be able to keep her healthier! Emily had an...
  10. H

    Immunoglobin Deficiency? Anyone else have this or been tested for this?

    I'm sorry your daughter has had such a rough time of it and you now have that feeling of 'another thing' to deal with. I do understand that (Emily has other issues in addition to cf.) It is good though to be able to address this and hopefully be able to keep her healthier! <br /> <br />Emily...
  11. H

    Newborn Screening Results, going for Sweat Test

    The vast majority of those with elevated IRT levels only (not all states include any genetic testing as part of newborn screening) are false positives. It would be a lower percentage of those that have both elevated IRT as well as one mutation found that do not have CF, but odds are still in...
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    Newborn Screening Results, going for Sweat Test

    The vast majority of those with elevated IRT levels only (not all states include any genetic testing as part of newborn screening) are false positives. It would be a lower percentage of those that have both elevated IRT as well as one mutation found that do not have CF, but odds are still in...
  13. H

    Newborn Screening Results, going for Sweat Test

    The vast majority of those with elevated IRT levels only (not all states include any genetic testing as part of newborn screening) are false positives. <br /> <br />It would be a lower percentage of those that have both elevated IRT as well as one mutation found that do not have CF, but odds...
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    CF vest - where did you buy yours?

    The Vest- made by HillRom is absolutely reputable. <img src="i/expressions/face-icon-small-smile.gif" border="0"> They have fantastic customer service and we've been very pleased with Emily's the last two years. The InCourage system by Respiritech is the other one to look into, in addition...
  15. H

    CF vest - where did you buy yours?

    The Vest- made by HillRom is absolutely reputable. <img src="i/expressions/face-icon-small-smile.gif" border="0"> They have fantastic customer service and we've been very pleased with Emily's the last two years. The InCourage system by Respiritech is the other one to look into, in addition...
  16. H

    CF vest - where did you buy yours?

    The Vest- made by HillRom is absolutely reputable. <img src="i/expressions/face-icon-small-smile.gif" border="0"> They have fantastic customer service and we've been very pleased with Emily's the last two years. <br /> <br />The InCourage system by Respiritech is the other one to look into...
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    ANOTHER CF CHILD AT MY DAUGHTER'S SCHOOL

    I wouldn't worry about my daughter catching a cold or flu from another child with cf. That is in inevitable in the school environment (or anywhere large groups of people gather.) It's the other risks of cross-contamination that concern me. It truly upsets me that CF is as isolating a disease...
  18. H

    ANOTHER CF CHILD AT MY DAUGHTER'S SCHOOL

    I wouldn't worry about my daughter catching a cold or flu from another child with cf. That is in inevitable in the school environment (or anywhere large groups of people gather.) It's the other risks of cross-contamination that concern me. It truly upsets me that CF is as isolating a disease...
  19. H

    ANOTHER CF CHILD AT MY DAUGHTER'S SCHOOL

    I wouldn't worry about my daughter catching a cold or flu from another child with cf. That is in inevitable in the school environment (or anywhere large groups of people gather.) It's the other risks of cross-contamination that concern me. <br /> <br />It truly upsets me that CF is as...
  20. H

    ANOTHER CF CHILD AT MY DAUGHTER'S SCHOOL

    I am very glad you have a very mild case of CF. Many of the children here are not as blessed as you are. The vast majority of the parents here do ALL that they can to provide their children with lives apart from their CF and as healthy and balanced a life as possible. We think of their...
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