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Oh, Maggie is 7 1/2 going into the second grade but I would say she became independent with enzymes in first grade.

I need to be working on this as well. I think maggie going to kindergarten was a big push to get her more independent with her enzymes. Maggie has over time been able to become independent doing her enzymes. She occasionally needs a verbal reminder to take them before dinner, but if she is at...

I need to be working on this as well. I think maggie going to kindergarten was a big push to get her more independent with her enzymes. Maggie has over time been able to become independent doing her enzymes. She occasionally needs a verbal reminder to take them before dinner, but if she is at...

I need to be working on this as well. I think maggie going to kindergarten was a big push to get her more independent with her enzymes. Maggie has over time been able to become independent doing her enzymes. She occasionally needs a verbal reminder to take them before dinner, but if she is at...

Zenpep did not work for Maggie. If possible, try getting free samples from your CF clinic before getting a script for the Zenpep; that way you can try it out before wasting $ on it. The beads are big inside the capsule, not like Pancrecarb.

Zenpep did not work for Maggie. If possible, try getting free samples from your CF clinic before getting a script for the Zenpep; that way you can try it out before wasting $ on it. The beads are big inside the capsule, not like Pancrecarb.

Zenpep did not work for Maggie. If possible, try getting free samples from your CF clinic before getting a script for the Zenpep; that way you can try it out before wasting $ on it. The beads are big inside the capsule, not like Pancrecarb.

I may ask about this next time at clinic to use it in addition to the VEST. Maggie got a cough at the end of school, a viral type thing. In addition to her VEST, I would have her breathe like she was doing a PFT and it helped loosen the mucus stuck in her throat. We upped her Bactrim as well...

I may ask about this next time at clinic to use it in addition to the VEST. Maggie got a cough at the end of school, a viral type thing. In addition to her VEST, I would have her breathe like she was doing a PFT and it helped loosen the mucus stuck in her throat. We upped her Bactrim as well...

I may ask about this next time at clinic to use it in addition to the VEST. Maggie got a cough at the end of school, a viral type thing. In addition to her VEST, I would have her breathe like she was doing a PFT and it helped loosen the mucus stuck in her throat. We upped her Bactrim as well...

Heather, Pancrecarb is not harmful, to my knowledge. Our CF doc said that Creon had been overfilling the capsules, so Creon 5 actually was really Creon 6; in terms of dosage. All that company had to do was change the label from Creon 5 to Creon 6 etc, make new labels and now they are an...

Heather, Pancrecarb is not harmful, to my knowledge. Our CF doc said that Creon had been overfilling the capsules, so Creon 5 actually was really Creon 6; in terms of dosage. All that company had to do was change the label from Creon 5 to Creon 6 etc, make new labels and now they are an...

Heather, <br />Pancrecarb is not harmful, to my knowledge. Our CF doc said that Creon had been overfilling the capsules, so Creon 5 actually was really Creon 6; in terms of dosage. All that company had to do was change the label from Creon 5 to Creon 6 etc, make new labels and now they are an...

Cheryl, You can send your e-mail letter to Beth Fritsch at the FDA. Her email is Beth.Fritsch@fda.hhs.gov. I know you have your hands full but sending your personal issue with CF and Pancrecarb I am hoping will help shine light on this issue. CF is a rare disease and we need everyone...

Cheryl, You can send your e-mail letter to Beth Fritsch at the FDA. Her email is Beth.Fritsch@fda.hhs.gov. I know you have your hands full but sending your personal issue with CF and Pancrecarb I am hoping will help shine light on this issue. CF is a rare disease and we need everyone...

Cheryl, <br /> <br />You can send your e-mail letter to Beth Fritsch at the FDA. Her email is Beth.Fritsch@fda.hhs.gov. <br /> <br />I know you have your hands full but sending your personal issue with CF and Pancrecarb I am hoping will help shine light on this issue. CF is a rare disease and...

Tami, That is my whole point...There is no equivalent substitute for Pancrecarb that is appoved. She did not have any input in what we are supposed to do except take approved enzymes.. I think thye do not understand the difference in Pancrecarb..The reason some Cf'ers take it is because...

Tami, That is my whole point...There is no equivalent substitute for Pancrecarb that is appoved. She did not have any input in what we are supposed to do except take approved enzymes.. I think thye do not understand the difference in Pancrecarb..The reason some Cf'ers take it is because...

Tami, <br /> <br />That is my whole point...There is no equivalent substitute for Pancrecarb that is appoved. She did not have any input in what we are supposed to do except take approved enzymes.. I think thye do not understand the difference in Pancrecarb..The reason some Cf'ers take it is...

I got an e-mail from Beth Fritsch (sp?) from the FDA this morning with concern to the Pancrecarb issue, finally. About 2 months after my original e-mail. It was pretty much saying they have found problems with the unapproved enzymes and can not allow patients to take them when there are...