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For my daughter with CF it seems that her colds/runny nose take longer to get over than her older brother without CF when they have the same thing. If your daughter has no fever, minimal cough, sleeping ok, acting ok I would say it can take 2 weeks for the runny nose to go away. If she gets a...

For my daughter with CF it seems that her colds/runny nose take longer to get over than her older brother without CF when they have the same thing. If your daughter has no fever, minimal cough, sleeping ok, acting ok I would say it can take 2 weeks for the runny nose to go away. If she gets a...

For my daughter with CF it seems that her colds/runny nose take longer to get over than her older brother without CF when they have the same thing. If your daughter has no fever, minimal cough, sleeping ok, acting ok I would say it can take 2 weeks for the runny nose to go away. If she gets a...

Someone was trying to get me to buy Mila, which is ground chia seed(like Chia pet). It is actually high in omegas and protein and lots of good stuff for CF. Anyone use it or know where to buy it online for less? Seemed very expensive for what it is. I could mix it in oatmeal for my daughter...

Someone was trying to get me to buy Mila, which is ground chia seed(like Chia pet). It is actually high in omegas and protein and lots of good stuff for CF. Anyone use it or know where to buy it online for less? Seemed very expensive for what it is. I could mix it in oatmeal for my daughter...

Someone was trying to get me to buy Mila, which is ground chia seed(like Chia pet). It is actually high in omegas and protein and lots of good stuff for CF. Anyone use it or know where to buy it online for less? Seemed very expensive for what it is. I could mix it in oatmeal for my daughter...

Some states provide Children with Special Health Needs program, It is based on income and will provide money for anything CF related not covered by health insurance ie: CF related travel, parking at the CF center, nebs, vitamins, nutritional supplements, co-pays. What about WIC? have you...

Some states provide Children with Special Health Needs program, It is based on income and will provide money for anything CF related not covered by health insurance ie: CF related travel, parking at the CF center, nebs, vitamins, nutritional supplements, co-pays. What about WIC? have you...

Some states provide Children with Special Health Needs program, It is based on income and will provide money for anything CF related not covered by health insurance ie: CF related travel, parking at the CF center, nebs, vitamins, nutritional supplements, co-pays. <br /> <br />What about WIC...

It does suck. A couple things first; what struck me is Alyssa is one strong feisty child; which as I am sure you know will only benefit her in CF. She's only 4? Certainly sounds like she has a mind of her own. I have found rewards work in these situations..A toy she really wants; or movie or...

It does suck. A couple things first; what struck me is Alyssa is one strong feisty child; which as I am sure you know will only benefit her in CF. She's only 4? Certainly sounds like she has a mind of her own. I have found rewards work in these situations..A toy she really wants; or movie or...

It does suck. A couple things first; what struck me is Alyssa is one strong feisty child; which as I am sure you know will only benefit her in CF. She's only 4? Certainly sounds like she has a mind of her own. <br /> <br />I have found rewards work in these situations..A toy she really wants...

Glad it will be available, though in limited supply? I am so fed up with this issue. I've emailed the FDA, senators, no response... Do you think it would be worthwhile to contact the head of the CDC in my state? I am referring to the Pancrecarb issue which is the only enzyme that works for...

Glad it will be available, though in limited supply? I am so fed up with this issue. I've emailed the FDA, senators, no response... Do you think it would be worthwhile to contact the head of the CDC in my state? I am referring to the Pancrecarb issue which is the only enzyme that works for...

Glad it will be available, though in limited supply? <br /> <br />I am so fed up with this issue. I've emailed the FDA, senators, no response... <br /> <br />Do you think it would be worthwhile to contact the head of the CDC in my state? <br /> <br />I am referring to the Pancrecarb issue...

I sent out long emails to our senators. There is not an alternative to Pancrecarb right now. Our nutritionist was mentioning/looking into taking a bicarbonate with the alternative enzyme, though she was not sure what it would be or how to mimic Pancrecarb. I will talk to a pharmacist to see...

I sent out long emails to our senators. There is not an alternative to Pancrecarb right now. Our nutritionist was mentioning/looking into taking a bicarbonate with the alternative enzyme, though she was not sure what it would be or how to mimic Pancrecarb. I will talk to a pharmacist to see...

I sent out long emails to our senators. There is not an alternative to Pancrecarb right now. Our nutritionist was mentioning/looking into taking a bicarbonate with the alternative enzyme, though she was not sure what it would be or how to mimic Pancrecarb. I will talk to a pharmacist to see...

Well, I got off the phone with CF services Pharmacy. They are all out of stock of Maggie's dose of Pancrecarb. So I am calling all pharmacys. I just spoke with maggie's nutritionist as well. She suggested e mailing our senators about this issue. It is very serious. I sent an e mail to our...

Well, I got off the phone with CF services Pharmacy. They are all out of stock of Maggie's dose of Pancrecarb. So I am calling all pharmacys. I just spoke with maggie's nutritionist as well. She suggested e mailing our senators about this issue. It is very serious. I sent an e mail to our...