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Well, I got off the phone with CF services Pharmacy. They are all out of stock of Maggie's dose of Pancrecarb. So I am calling all pharmacys. I just spoke with maggie's nutritionist as well. She suggested e mailing our senators about this issue. It is very serious. I sent an e mail to our...

I will let you know if I hear anything.

I will let you know if I hear anything.

I will let you know if I hear anything.

Just wondering if anyone has heard if Pancrecarb will be approved by the FDA? I tried to use Zen Pep for Maggie . Gave her half zenpep half Pancrecarb and she had immediate effects that were negative digestive wise. Nausea, stomach aches. Tried to do it one more time this past weekend and...

Just wondering if anyone has heard if Pancrecarb will be approved by the FDA? I tried to use Zen Pep for Maggie . Gave her half zenpep half Pancrecarb and she had immediate effects that were negative digestive wise. Nausea, stomach aches. Tried to do it one more time this past weekend and...

Just wondering if anyone has heard if Pancrecarb will be approved by the FDA? I tried to use Zen Pep for Maggie . Gave her half zenpep half Pancrecarb and she had immediate effects that were negative digestive wise. Nausea, stomach aches. Tried to do it one more time this past weekend and...

Sarah, I am so sorry for your loss. I can not imagine how you feel. In terms of support groups, there are grief support groups usually sponsored by a hospital. Perhaps calling you local hospital about community outreach and grief support groups? My MIL went to a grief support group after my...

Sarah, I am so sorry for your loss. I can not imagine how you feel. In terms of support groups, there are grief support groups usually sponsored by a hospital. Perhaps calling you local hospital about community outreach and grief support groups? My MIL went to a grief support group after my...

Sarah, <br /> <br />I am so sorry for your loss. I can not imagine how you feel. In terms of support groups, there are grief support groups usually sponsored by a hospital. Perhaps calling you local hospital about community outreach and grief support groups? My MIL went to a grief support...

Harriet, Each CF kid is different. I am actually not sure how much school Maggie has missed this year. When she has an exacerbation or gets sick; we play it by ear. I tend to do half days when Maggie is on her strong anti's and needing more nebs and VEST time(that is as long as she is...

Harriet, Each CF kid is different. I am actually not sure how much school Maggie has missed this year. When she has an exacerbation or gets sick; we play it by ear. I tend to do half days when Maggie is on her strong anti's and needing more nebs and VEST time(that is as long as she is...

Harriet, <br /> <br />Each CF kid is different. I am actually not sure how much school Maggie has missed this year. When she has an exacerbation or gets sick; we play it by ear. I tend to do half days when Maggie is on her strong anti's and needing more nebs and VEST time(that is as long as...

The other thing I should add; Do NOT worry about bothering the nurses. That is their job. If you keep calling it is for good reason. When I am worried about my daughter's cough I ask to speak specifically with her CF doctor. The nurses will leave him a message and he'll either call me back...

The other thing I should add; Do NOT worry about bothering the nurses. That is their job. If you keep calling it is for good reason. When I am worried about my daughter's cough I ask to speak specifically with her CF doctor. The nurses will leave him a message and he'll either call me back...

The other thing I should add; Do NOT worry about bothering the nurses. That is their job. If you keep calling it is for good reason. When I am worried about my daughter's cough I ask to speak specifically with her CF doctor. The nurses will leave him a message and he'll either call me back...

It's hard when they are babies cause they can't talk and tell you just how they feel. Do you think she picked up a cold or virus? What I usually do when my daughter catches a cold/cough I increase her VEST time to every 4 hours while she is awake. When she was a baby, I did manual chest pt...

It's hard when they are babies cause they can't talk and tell you just how they feel. Do you think she picked up a cold or virus? What I usually do when my daughter catches a cold/cough I increase her VEST time to every 4 hours while she is awake. When she was a baby, I did manual chest pt...

It's hard when they are babies cause they can't talk and tell you just how they feel. Do you think she picked up a cold or virus? What I usually do when my daughter catches a cold/cough I increase her VEST time to every 4 hours while she is awake. When she was a baby, I did manual chest pt...

Yesterday, I picked up my daughter from school. She was telling me about her day. She was telling me about lunch. She said she gave one boy her potato chips, another boy her pretzels, someone else her jello,...Apparently, I must overpack her lunch box<img...