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I have had a PICC for two months now. I have had some nerve pain... an Advil will fix it. I had to have two dressing changes this week due to the holidays and rescheduling my home health visit appointments. After this changed the bandage on Wednesday the skin under the wings of the PICC (the...

I talked with my endocrinologist. She thinks it may have been the fact that I deviated from my normal breakfast food. I have gone back to the morning burritos and late morning granola bar. So far much better!! I also now think it might be my meds. I think they may be lowering my sugars 2-3...

Let me start by saying NO I don't take insulin. I want to avoid insulin as long as I can. I have been having random low blood sugars. Today they tanked out at 59. That is the lowest I have EVER gone. It took me forever to get them back up (2 + hour to be more accurate). I when I deviate...

Yesterday I started Minocycline. Within about 15 minutes I was jittery and felt like my heart was racing. I took my second dose at bedtime and shorting after that I started feeling super weird. I could not be still and when I forced myself I felt like I was on a high dose of caffeine or...

The past few days my scalp itches something horrible. I am on MAC drugs and Amikacin. There seems to be no bumps on my scalp. Spots itch so bad I am afraid I will scratch my scalp raw. It is only certain parts of my head. I am drinking tons of water. Yeast infection?? Or just old...

I give people a silly look and act a smidge dramatic if I get a person staring at me. Might as well give them something fun to watch. :) I get lots of stares when I wear my mask at the grocery store or clothes shopping. I usually just stare back and they look away all embarrassed. Yep, you...

From what I was told it depends on the drug. I am on amikacin and they can take my peak and trough right from my PICC line. Sweet deal. No pokes or prodding. I did Tobra a few years ago and they HAD to do sticks. I was told that Tobra stays in the line and corrupts the blood draw.

Thank you to everyone for your advice. Deb, you are right. This infection is not easy. I have been sleeping alot lately. I sit in the chair and I fall asleep. I took a short nap last night before bed... even if it was for only 20 minutes was wonderful (I had to get up and put Kiddo to...

Julie7, I don't have friends near me to help with that. They all disappeared a couple of years ago when I couldn't participating in their mommy adventures. As soon as I became "unfun" and got tired too often they wanted nothing to do with me.

I will consider going back to the hospital if my fatigue doesn't get better. No nagging here. I assure you that!!!

They bothered me with trivial things even while I was in the hospital. They couldn't deal with the littlest issues without calling me or texting me. I was ready to throw my phone from my 9th floor hospital room window. My mom called with household issues that I needed to solve for her and my...

I was diagnosed with MAC and Norcardia... I am not able to keep up with life due to the intense IV treatment and fatigue. I admitted to friends and family that I need help... help caring for my son and keeping up with my house. I have gotten pretty much NOTHING. Instead of helping me, my...

I just had my PICC dressing changed this morning. Shortly after the nurse left the site started to sting. The nurse removed a blood scab near the insertion site (stuck to the skin and and the PICC) . It hurt when she removed it and it seems to hurt in the same location now that it is gone...

A few days into my hospitalization I discovered I was allergic to the mesh PICC covers. My arm got all red and insanely itchy. It even burns in spots on my arm when I try to wear it. I have a super long extension on my PICC so that I can access it. We have tried all sorts of homemade covers...

I am on Doripenem. I have to infuse every 8 hour and it has to infuse for 4 hours. Kinda of a pain but it only will last for 3 weeks.

This is the first time at home that I will have to IV drugs during the night. Hook up at 10pm and drug will be done running at 2am. Do you set an alarm and flush as soon as the drug is done?? What happens if I sleep through the alarm with the medicine ball still attached?? Bad things...

I just found out I cultured Nocardia. I am starting doripenem this morning. Anyone else culture this??? Anyone have successful treatment??? How long did you have to treat it until no longer cultured it???

No one else????

I am starting my MAC treatment on Monday. Those of you who have done MAC drugs... what were your side effects?? Were they easy to manage?? Lose your vision... diminished vision?? Hives, rash, red skin?? How about joint pain or muscle pain??? What drugs cause the side effects?? I have...

Once in a while my husband will rub my back to ease my sore muscles from coughing. When he isn't available I will do a warm bath or a warm heating pad on my back and shoulders. Sometimes it gets to be too much and I will take 1-2 Advil to help with the discomfort. Doesn't ease the cough but...