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I googled all the medications that I am on for MAC and CF.... I am having insomnia something horrible. The only thing that comes up is that zithromycin can cause insomnia. I am on 500 mg every day. Anyone else have this experience?? How do I get some decent sleep while following my MAC...

Not from my spouse but from other family members-- Yes! Until they live your life, feel your exhaustion, feel the discouragement.... they have no clue. The can make all the suggestions in the world and point out all the reasons in the world that you dropped the ball. The reality is this...

I am being treated for MAC (mycobacteria avium complex). I had my CT scan on Wednesday. The doc said that their is some progress on the healing of the hole in my lung. No idea how much... inches, centimeters. They are not happy with the little progress. They want to start me on even more...

The radiology department just called my doctor and said they found an esophageal dysmotility. I was having a CT scan for my MAC. Anyone else have this??? I can't move forward with treatment.... my insurance deductible started over and we can't afford the tests. The MAC treatment is costing...

Yesterday I had my 3 month long PICC line pulled. Tonight my arm stings. It feels like it is burned. I have small pimples where the bandage had been and where the statlock was the skin looks like leather. I have gently washed the arm off with warm (not hot) water. When I touch the arm with...

Let me clarify something... I am schedule to do the oral drugs for 12-18 months to start out. I am doing IV amikacin for 3 months and then be moved to inhaled Amikacin. I suffer from insomnia and when I do sleep it is very light. I am on oxygen to help my sleep issues. We do need to...

I have been doing the 3 drug regime for MAC. I haven't had a night sweat since I started the 3 drugs... almost 3 months. Last night I woke up in the middle of the night with my chest and neck soaking wet. I felt sweaty but not super warm. What does this mean?? Is the MAC drugs not working...

I am allergic to Bactrium as well. I don't have the anxiety symptoms but I do get hives (really bad).

I was on Zithro MWF for a few months. When I started have NTM (avium) show up they took me off the Zithro immediately . I am now on it full time (every day) to treat my NTM (avium). They took me off it so that they could use it with the two big MAC drugs... it gives the NTM a big punch.

They look cute. I might wait to see if the price goes down (Yes, I am cheap). I just get so frustrated the way jeans flt my CF bod (pinch and bind) . If I can't find any, I might just have to stick with skirts and knit pants.

Ladies, where do you find well fitting jeans?? I have tried men's jeans but they just don't fit right. Teenage jeans are highly inappropriate for this middle aged woman. From all the coughing, tummy issues and an un-lovely hernia I am not skinny by any stretch of the imagination. I have...

That is just the point I made in the letter. I asked my family if they want to be guilty of killing me. I am done sugar coating things for them.... things have never been sugar coated for me. They are so removed from my illness that they can forget that the disease exists. I put all the...

I wrote a letter to my family and friends. It has already been strongly accepted by my family so far. I am still waiting to hear from my inlaws. We are expecting to meet resistance but at least they will know in writing how we stand. My Hubby is on my side. He was just hesitant.

I am taking MAC drugs... almost at 3 month mark. I have been really careful during this cold and flu season. At Christmas my inlaws came and knowingly exposed me to cold and virus germs. We have told them over and over to stay home if they have been around sick people. They refuse to listen...

I have that mutation as well. I didn't loose lung function until a few years ago.... was in the upper 90's and now I in the low 70's. Pretty sure it is due to the MAC that I have in my lungs now. I have always taken enzymes. I am a touch on the "squishing side" around the midsection and...

I don't "work" from home but I am housebound. I have a super touchy immune system so I stay at home as much as I can. I keep VERY busy. I homeschool my son, quilt, hand stitch, knit and cook/bake. I am going to be doing some work for my Hubby's business after the first of the year.

Happy Happy Birthday Joni!!! Hope you had a wonderful day!! (^)

Oh, man!!! Brad was a good friend here.... he gave me wonderful advice. My heart is sad to hear this news. :(

She is moving it a little each time. PICC insertions site is in a weird location. Yes, the burning is 24 hours after dressing changes. Drives me crazy. I hate dressing changes. The round disk seems to be spitting out medicine for 2 days after the dressing change. Feels much better day 3 thru...

Nurse said no sign of infection. I just found it is is called a statlock. I guess they can cause irritation (searched google). I have a month left.