Search results

  1. M

    Researching for my book on CF

    Hi Blacky, I am sending you a PM.
  2. M

    Need a new nebulizer

    Hi, I have the SAME EXACT problem as you. I had the Pari Ultra Neb and it started to blow. I told my insurance to please send me something quiet cause this neb is driving me to drink with the noise. They said "yeah, yeah" and ended up sending the DeVibliss Pulmoneb. I can tell you that it is...
  3. M

    Need a new nebulizer

    Hi, I have the SAME EXACT problem as you. I had the Pari Ultra Neb and it started to blow. I told my insurance to please send me something quiet cause this neb is driving me to drink with the noise. They said "yeah, yeah" and ended up sending the DeVibliss Pulmoneb. I can tell you that it is...
  4. M

    Need a new nebulizer

    Hi, I have the SAME EXACT problem as you. I had the Pari Ultra Neb and it started to blow. I told my insurance to please send me something quiet cause this neb is driving me to drink with the noise. They said "yeah, yeah" and ended up sending the DeVibliss Pulmoneb. I can tell you that it is...
  5. M

    Little sharp pains feels like it's in my heart..

    Hi, I also have stabbing pains in my lungs. It was caused by really bad infection. I had to go on i.v's. I suffer from anxiety for years and it doesnt happen with anxiety...the anxiety feeling is more like someone has you in a bear hug. the pain around your heart can also be indigestion. I...
  6. M

    Little sharp pains feels like it's in my heart..

    Hi, I also have stabbing pains in my lungs. It was caused by really bad infection. I had to go on i.v's. I suffer from anxiety for years and it doesnt happen with anxiety...the anxiety feeling is more like someone has you in a bear hug. the pain around your heart can also be indigestion. I...
  7. M

    Little sharp pains feels like it's in my heart..

    Hi, I also have stabbing pains in my lungs. It was caused by really bad infection. I had to go on i.v's. I suffer from anxiety for years and it doesnt happen with anxiety...the anxiety feeling is more like someone has you in a bear hug. the pain around your heart can also be indigestion. I...
  8. M

    Can you just go up and buy Ataluren (PTC 124)

    I am on the drug now...or maybe on the placebo. Seems like a lot of money for a gram of product. I wonder who would order it?
  9. M

    Can you just go up and buy Ataluren (PTC 124)

    I am on the drug now...or maybe on the placebo. Seems like a lot of money for a gram of product. I wonder who would order it?
  10. M

    Can you just go up and buy Ataluren (PTC 124)

    I am on the drug now...or maybe on the placebo. Seems like a lot of money for a gram of product. I wonder who would order it?
  11. M

    I have a girlfriend with CF and don't know how to ask about how long she has in this life..

    I have a girlfriend with CF and don't know how to ask about how long she has in this life.. Hi, I was born in 1970...I am 40.....there you go...you never know. I would just enjoy life with your gf. Have fun! You are only young once. Dont waste a second of your time dwelling on the "what if's"...
  12. M

    I have a girlfriend with CF and don't know how to ask about how long she has in this life..

    I have a girlfriend with CF and don't know how to ask about how long she has in this life.. Hi, I was born in 1970...I am 40.....there you go...you never know. I would just enjoy life with your gf. Have fun! You are only young once. Dont waste a second of your time dwelling on the "what if's"...
  13. M

    I have a girlfriend with CF and don't know how to ask about how long she has in this life..

    I have a girlfriend with CF and don't know how to ask about how long she has in this life.. Hi, I was born in 1970...I am 40.....there you go...you never know. I would just enjoy life with your gf. Have fun! You are only young once. Dont waste a second of your time dwelling on the "what if's"...
  14. M

    R117C/R117H

    I wondered the same thing. I have the same two mutations as Debbie's child. I had very mild CF as a child. Now as a adult CF has taken a big toll and caught up with me big time. I guess the R117 mutation is mild and it seams that if you have another mild mutation then you are in luck! My other...
  15. M

    R117C/R117H

    I wondered the same thing. I have the same two mutations as Debbie's child. I had very mild CF as a child. Now as a adult CF has taken a big toll and caught up with me big time. I guess the R117 mutation is mild and it seams that if you have another mild mutation then you are in luck! My other...
  16. M

    R117C/R117H

    I wondered the same thing. I have the same two mutations as Debbie's child. I had very mild CF as a child. Now as a adult CF has taken a big toll and caught up with me big time. I guess the R117 mutation is mild and it seams that if you have another mild mutation then you are in luck! My other...
  17. M

    Heart Problems

    Hi I also had an alblation for an SVT (super ventricular tachtacardia (forgive my spelling). My heart rate was 225+....had to go to emergency room many times for a shot to slow my heart rate below the operation. If you get diagnosed with SVT feel free to PM me. <img...
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