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has anyone heard an update on Joni?

has anyone heard an update on Joni?

sending healing vibes to Joni. Get well soon.

sending healing vibes to Joni. Get well soon.

I started going through what your describing about ten years ago. I thought it was low blood sugar too. I was so scared. It turned out it was a good old fashioned panic attack. They would happen suddely and go away in about 15 minutes...for me the residual after effects were terrible....they...

I started going through what your describing about ten years ago. I thought it was low blood sugar too. I was so scared. It turned out it was a good old fashioned panic attack. They would happen suddely and go away in about 15 minutes...for me the residual after effects were terrible....they...

phase 3 is definately done....I am 100% sure of this. We should hear results in early 2012. We are all now on open label. I have also heard there may be a potentiator for ataluren..but that is just talk.

phase 3 is definately done....I am 100% sure of this. We should hear results in early 2012. We are all now on open label. I have also heard there may be a potentiator for ataluren..but that is just talk.

phase 3 is definately done....I am 100% sure of this. We should hear results in early 2012. We are all now on open label. I have also heard there may be a potentiator for ataluren..but that is just talk.

what is also interesting is that different X mutations are responding differently. I believe that the subjects in Israel with W1282X are having better results...again, lets wait for the published reports. I have the same mutation so feel free to pm me after I start real drug.

what is also interesting is that different X mutations are responding differently. I believe that the subjects in Israel with W1282X are having better results...again, lets wait for the published reports. I have the same mutation so feel free to pm me after I start real drug.

what is also interesting is that different X mutations are responding differently. I believe that the subjects in Israel with W1282X are having better results...again, lets wait for the published reports. I have the same mutation so feel free to pm me after I start real drug.

thank you for asking this question. I m currently in the trial. Phase 3 is completed and now we go to real drug. I heard that there were over 200 people enrolled in the study. I posted many times asking other PTCer's (atalurens) to pm me back. I only heard back from 3 or 4 people. I can honestly...

thank you for asking this question. I m currently in the trial. Phase 3 is completed and now we go to real drug. I heard that there were over 200 people enrolled in the study. I posted many times asking other PTCer's (atalurens) to pm me back. I only heard back from 3 or 4 people. I can honestly...

thank you for asking this question. I m currently in the trial. Phase 3 is completed and now we go to real drug. I heard that there were over 200 people enrolled in the study. I posted many times asking other PTCer's (atalurens) to pm me back. I only heard back from 3 or 4 people. I can honestly...

thank you for asking this question. I m currently in the trial. Phase 3 is completed and now we go to real drug. I heard that there were over 200 people enrolled in the study. I posted many times asking other PTCer's (atalurens) to pm me back. I only heard back from 3 or 4 people. I can honestly...

thank you for asking this question. I m currently in the trial. Phase 3 is completed and now we go to real drug. I heard that there were over 200 people enrolled in the study. I posted many times asking other PTCer's (atalurens) to pm me back. I only heard back from 3 or 4 people. I can honestly...

thank you for asking this question. I m currently in the trial. Phase 3 is completed and now we go to real drug. I heard that there were over 200 people enrolled in the study. I posted many times asking other PTCer's (atalurens) to pm me back. I only heard back from 3 or 4 people. I can honestly...

All I can say is I am sorry. Stay strong! Miracles happen each day.

All I can say is I am sorry. Stay strong! Miracles happen each day.