Search results

  1. M

    Sinus/Lung Inflamation

    Great advice from Amy. I also the same exact problem. I have major inflammation and the worst reactive airways. I get closed up from all sorts of things too-perfume-extream heat-extream cold-certain spicy foods-cat dander-dust-you name it. I would love to hear what other people say...I struggle...
  2. M

    Sinus/Lung Inflamation

    Great advice from Amy. I also the same exact problem. I have major inflammation and the worst reactive airways. I get closed up from all sorts of things too-perfume-extream heat-extream cold-certain spicy foods-cat dander-dust-you name it. I would love to hear what other people say...I struggle...
  3. M

    cf in ten years?

    Its funny...if you asked me in 2001 where CF would be I would probably say there would be a cure in 2011 or at least better drugs. But here I sit in 2011 with the same vest on...trying to get the mucus out with the same exact drugs. Ugh!
  4. M

    cf in ten years?

    Its funny...if you asked me in 2001 where CF would be I would probably say there would be a cure in 2011 or at least better drugs. But here I sit in 2011 with the same vest on...trying to get the mucus out with the same exact drugs. Ugh!
  5. M

    cf in ten years?

    <BR>Its funny...if you asked me in 2001 where CF would be I would probably say there would be a cure in 2011 or at least better drugs. But here I sit in 2011 with the same vest on...trying to get the mucus out with the same exact drugs. Ugh!
  6. M

    ataluren

    I am on the drug now but the open label has not started yet....but soon. I dont' know if I am on drug or placebo. If anyone wants to pm me about the progress please feel free.
  7. M

    ataluren

    I am on the drug now but the open label has not started yet....but soon. I dont' know if I am on drug or placebo. If anyone wants to pm me about the progress please feel free.
  8. M

    ataluren

    I am on the drug now but the open label has not started yet....but soon. I dont' know if I am on drug or placebo. If anyone wants to pm me about the progress please feel free.<BR>
  9. M

    Poison Ivy (and fevers uh oh!)

    Hi,  I have had poison ivy before twice. The first time I really didnt have it so bad..just a few spots and went away in a few weeks.  The second time was HELL.  I had it all over my body.  It was probably the worst thing I ever went through...and I have been through a lot.  The itching was...
  10. M

    Poison Ivy (and fevers uh oh!)

    Hi, I have had poison ivy before twice. The first time I really didnt have it so bad..just a few spots and went away in a few weeks. The second time was HELL. I had it all over my body. It was probably the worst thing I ever went through...and I have been through a lot. The itching was terrible...
  11. M

    Poison Ivy (and fevers uh oh!)

    Hi, I have had poison ivy before twice. The first time I really didnt have it so bad..just a few spots and went away in a few weeks. The second time was HELL. I had it all over my body. It was probably the worst thing I ever went through...and I have been through a lot. The itching was terrible...
  12. M

    Flying after a pneumothorax (collapsed lung)

    I had a collapsed lung (fully) and I got on a plane around 9 months later. Since then I have been on 3 other flights.  My doc said right after the collapse I shouldnt get on a long flight (more then 5 hours) and that I should wait until my lungs are in better shape so I waited 9 months. I really...
  13. M

    Flying after a pneumothorax (collapsed lung)

    I had a collapsed lung (fully) and I got on a plane around 9 months later. Since then I have been on 3 other flights. My doc said right after the collapse I shouldnt get on a long flight (more then 5 hours) and that I should wait until my lungs are in better shape so I waited 9 months. I really...
  14. M

    Flying after a pneumothorax (collapsed lung)

    <BR>I had a collapsed lung (fully) and I got on a plane around 9 months later. Since then I have been on 3 other flights. My doc said right after the collapse I shouldnt get on a long flight (more then 5 hours) and that I should wait until my lungs are in better shape so I waited 9 months. I...
  15. M

    Need to vent

    thank you all for your responses..I learn from everyone here. I understand and appreciate everyones opinions and I guess that I hit some buttons with my questioning of God (who i do have faith in). Sometimes I dont understand things and I analyze my life and I guess I compare to others. Yes, I...
  16. M

    Need to vent

    thank you all for your responses..I learn from everyone here. I understand and appreciate everyones opinions and I guess that I hit some buttons with my questioning of God (who i do have faith in). Sometimes I dont understand things and I analyze my life and I guess I compare to others. Yes, I...
  17. M

    Need to vent

    thank you all for your responses..I learn from everyone here. I understand and appreciate everyones opinions and I guess that I hit some buttons with my questioning of God (who i do have faith in). Sometimes I dont understand things and I analyze my life and I guess I compare to others. Yes, I...
  18. M

    Need to vent

    thank you all for your replies. I am starting therapy this week. I do try to stay positive and I know that stress, anxiety and negativity do terrible things to the body. It seems like there are only two options-1. drown in the negativity and just feel sorry for myself or 2. wake up each day and...
  19. M

    Need to vent

    thank you all for your replies. I am starting therapy this week. I do try to stay positive and I know that stress, anxiety and negativity do terrible things to the body. It seems like there are only two options-1. drown in the negativity and just feel sorry for myself or 2. wake up each day and...
  20. M

    Need to vent

    thank you all for your replies. I am starting therapy this week. I do try to stay positive and I know that stress, anxiety and negativity do terrible things to the body. It seems like there are only two options-1. drown in the negativity and just feel sorry for myself or 2. wake up each day and...
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