Search results

  1. M

    Would anyone like these books?

    Hi Jane , am I to late to get the book about CF inside and out? If I am, could you tell me where to get it? Makailyn does Tobi but they have never sent me a book. This is so nice for you to offer this, you are such a special, strong , person. Karla<img src="i/expressions/heart.gif" border="0">...
  2. M

    Would anyone like these books?

    Hi Jane , am I to late to get the book about CF inside and out? If I am, could you tell me where to get it? Makailyn does Tobi but they have never sent me a book. This is so nice for you to offer this, you are such a special, strong , person. Karla<img src="i/expressions/heart.gif" border="0">...
  3. M

    Would anyone like these books?

    Hi Jane , am I to late to get the book about CF inside and out? If I am, could you tell me where to get it? Makailyn does Tobi but they have never sent me a book. <br /> <br />This is so nice for you to offer this, you are such a special, strong , person. <br />Karla<img...
  4. M

    Do you regularly use any of these "Asthma" meds?

    WOW,,, Mr. He, No one was getting short. My questions were not to get you in a hissy,,,,,, gezzzzzzzzzzzz. If you go back and read what I wrote to YOU, not ricky, than maybe you will understand. I am very iterested in everyone's mutations, rather you feel that they will make any significant...
  5. M

    Do you regularly use any of these "Asthma" meds?

    WOW,,, Mr. He, No one was getting short. My questions were not to get you in a hissy,,,,,, gezzzzzzzzzzzz. If you go back and read what I wrote to YOU, not ricky, than maybe you will understand. I am very iterested in everyone's mutations, rather you feel that they will make any significant...
  6. M

    Do you regularly use any of these "Asthma" meds?

    WOW,,, Mr. He, <br />No one was getting short. My questions were not to get you in a hissy,,,,,, gezzzzzzzzzzzz. If you go back and read what I wrote to YOU, not ricky, than maybe you will understand. <br />I am very iterested in everyone's mutations, rather you feel that they will make any...
  7. M

    Sarah and Connor

    Dear Joanna, Thank you for what you are trying to do. There have been many of us that have passed the word on and keep bumping and giving updates on this beatiful family , and at times I was begging for people to respond on this site, "Prayers for Conner", I am so grateful to the people who...
  8. M

    Sarah and Connor

    Dear Joanna, Thank you for what you are trying to do. There have been many of us that have passed the word on and keep bumping and giving updates on this beatiful family , and at times I was begging for people to respond on this site, "Prayers for Conner", I am so grateful to the people who...
  9. M

    Sarah and Connor

    Dear Joanna, Thank you for what you are trying to do. There have been many of us that have passed the word on and keep bumping and giving updates on this beatiful family , and at times I was begging for people to respond on this site, "Prayers for Conner", <br />I am so grateful to the people...
  10. M

    Someone please help me understand

    Hi Jessica, I do agree with a lot Linds is saying. There can be so many reasons a child can't get a transplant, or maybe they tried and couldn't. I know a little boy on this site Garren, who did get a TX, I think at age 8. The one thing about this is there are a lot of children, 18months, 8...
  11. M

    Someone please help me understand

    Hi Jessica, I do agree with a lot Linds is saying. There can be so many reasons a child can't get a transplant, or maybe they tried and couldn't. I know a little boy on this site Garren, who did get a TX, I think at age 8. The one thing about this is there are a lot of children, 18months, 8...
  12. M

    Someone please help me understand

    Hi Jessica, <br />I do agree with a lot Linds is saying. There can be so many reasons a child can't get a transplant, or maybe they tried and couldn't. <br />I know a little boy on this site Garren, who did get a TX, I think at age 8. <br />The one thing about this is there are a lot of...
  13. M

    Pancreas removal

    Hi Margaret, Thanks for your imfo. Mak has been in the hospital several times in the past few months with pancreatitis, which they say this is abnormal with her being 'PI'. They did a GI Scope to check how bad PI she was. I saw the numbers/results, it was bad. At one time on Xmas AM they didn't...
  14. M

    Pancreas removal

    Hi Margaret, Thanks for your imfo. Mak has been in the hospital several times in the past few months with pancreatitis, which they say this is abnormal with her being 'PI'. They did a GI Scope to check how bad PI she was. I saw the numbers/results, it was bad. At one time on Xmas AM they didn't...
  15. M

    Pancreas removal

    Hi Margaret, <br />Thanks for your imfo. Mak has been in the hospital several times in the past few months with pancreatitis, which they say this is abnormal with her being 'PI'. They did a GI Scope to check how bad PI she was. I saw the numbers/results, it was bad. <br />At one time on Xmas AM...
  16. M

    Pancreas removal

    Hi Debbie, A person can not live without a Pancreas! It is rare, but there have been pancreas transplants, but, that has been in Adults that I know of. You can live without your gallbladder, maybe they have this mixed up. I wish you and this child the best, karla<img...
  17. M

    Pancreas removal

    Hi Debbie, A person can not live without a Pancreas! It is rare, but there have been pancreas transplants, but, that has been in Adults that I know of. You can live without your gallbladder, maybe they have this mixed up. I wish you and this child the best, karla<img...
  18. M

    Pancreas removal

    Hi Debbie, <br />A person can not live without a Pancreas! It is rare, but there have been pancreas transplants, but, that has been in Adults that I know of. You can live without your gallbladder, maybe they have this mixed up. <br />I wish you and this child the best, karla<img...
  19. M

    Do you regularly use any of these "Asthma" meds?

    Do you regularly use any of these Yes Ricki, I am fully aware of different nationalities and mutations. I think Bink can answer questions about Herself. I asked what were her gene mutations, which it's obvious she does not know. I didn't feel the need to write a book about CF genes, to ask...
  20. M

    Do you regularly use any of these "Asthma" meds?

    Do you regularly use any of these Yes Ricki, I am fully aware of different nationalities and mutations. I think Bink can answer questions about Herself. I asked what were her gene mutations, which it's obvious she does not know. I didn't feel the need to write a book about CF genes, to ask...
Top