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Do you regularly use any of these Yes Ricki, <br />I am fully aware of different nationalities and mutations. <br />I think Bink can answer questions about Herself. <br />I asked what were her gene mutations, which it's obvious she does not know. I didn't feel the need to write a book about CF...

Hi Bink, Thanks for answering some of my questions. I'm always serching/reserching, wondering why some people have hardly any symptoms and some like my little one, has been in the hospital so many times in the last few months, you stop counting.And she's on soooooooo many daily treatments. Right...

Hi Bink, Thanks for answering some of my questions. I'm always serching/reserching, wondering why some people have hardly any symptoms and some like my little one, has been in the hospital so many times in the last few months, you stop counting.And she's on soooooooo many daily treatments. Right...

Hi Bink, <br />Thanks for answering some of my questions. I'm always serching/reserching, wondering why some people have hardly any symptoms and some like my little one, has been in the hospital so many times in the last few months, you stop counting.And she's on soooooooo many daily treatments...

Yes Pebbles8, Our clinic did say a onion rot can cause B. Cepecia. That was only after myself reserching and me questioning the clinic. With this disease you have to do a lot of reserch yourself, especially with it being such a complex disease. There are many things that can give bad pathogens...

Yes Pebbles8, Our clinic did say a onion rot can cause B. Cepecia. That was only after myself reserching and me questioning the clinic. With this disease you have to do a lot of reserch yourself, especially with it being such a complex disease. There are many things that can give bad pathogens...

Yes Pebbles8, <br /> Our clinic did say a onion rot can cause B. Cepecia. That was only after myself reserching and me questioning the clinic. With this disease you have to do a lot of reserch yourself, especially with it being such a complex disease. <br />There are many things that can give...

Dear Jane, You are one busy mama. I can't help you on this, because Mak has always been in the hospital when on IV antibiotics. I have never done Home IV Antibiotics and do not want to. With all the things she does now, I can't imagine doing the IV antibiotics. God Bless You and Give You...

Dear Jane, You are one busy mama. I can't help you on this, because Mak has always been in the hospital when on IV antibiotics. I have never done Home IV Antibiotics and do not want to. With all the things she does now, I can't imagine doing the IV antibiotics. God Bless You and Give You...

Dear Jane, <br />You are one busy mama. I can't help you on this, because Mak has always been in the hospital when on IV antibiotics. I have never done Home IV Antibiotics and do not want to. With all the things she does now, I can't imagine doing the IV antibiotics. <br /> <br />God Bless...

Hi, Just curious on why the reason for the question on Advair? What are your daily medications? You said you had no lung symptoms till you were 26, did you not take any meds till you were 26? What kind of symtoms did you have at 26, but you were dx at age 3. How and why did they diagnois you at...

Hi, Just curious on why the reason for the question on Advair? What are your daily medications? You said you had no lung symptoms till you were 26, did you not take any meds till you were 26? What kind of symtoms did you have at 26, but you were dx at age 3. How and why did they diagnois you at...

Hi, <br />Just curious on why the reason for the question on Advair? What are your daily medications? You said you had no lung symptoms till you were 26, did you not take any meds till you were 26? What kind of symtoms did you have at 26, but you were dx at age 3. <br />How and why did they...

Dear Robert, I am so sorry your mother passed away. The bond between a mother and their child is enormous, and though sometimes it's not perfect , it's something you always count on . You have shared a relationship with her from the moment you were born. I'm sure she was so glad that God chose...

Dear Robert, I am so sorry your mother passed away. The bond between a mother and their child is enormous, and though sometimes it's not perfect , it's something you always count on . You have shared a relationship with her from the moment you were born. I'm sure she was so glad that God chose...

Dear Robert, I am so sorry your mother passed away. <br /> <br />The bond between a mother and their child is enormous, and though sometimes it's not perfect , it's something you always count on . You have shared a relationship with her from the moment you were born. I'm sure she was so glad...

Hi SaraProctor, I have always heard of kids that are PS might get pancreatitis, but, as in our case Mak has been in the hospital 6times in the past few months with pancreatitis, and she is "PI". She has been put on morphine due to the pain being so bad, and this is unusal for a PI person to get...

Hi SaraProctor, I have always heard of kids that are PS might get pancreatitis, but, as in our case Mak has been in the hospital 6times in the past few months with pancreatitis, and she is "PI". She has been put on morphine due to the pain being so bad, and this is unusal for a PI person to get...

Hi SaraProctor, <br />I have always heard of kids that are PS might get pancreatitis, but, as in our case Mak has been in the hospital 6times in the past few months with pancreatitis, and she is "PI". She has been put on morphine due to the pain being so bad, and this is unusal for a PI person...

Hi Seana, Sorry it has taken me so long to respond, things have been crazy. How is Courtney doing? Are you still in the hospital? Tell her we all love her and thinking of her. I hope things are going well. I know the hospital really sucks. Please let us know something, when you can. All my...