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Well, people with high blood pressure are supposed to eat low salt diets. So for them, LESS salt equals lower BP. The opposite of what's happening in CF and in CF carriers. That's as much as I can connect......Little Lab? Anyone can connect the dots?

Yup.....pickle juice and olives. My guy won't eat pickles but sucks on them and drinks the juice. He will eat an entire jar of olives if you let him. I keep salt packets (from Sam's Club) in his lunch box and the car. Sometimes he carries them in his pockets. AboveAll.....where did you...

I'm glad you've switched. I hope they are better able to handle this, Cam. I am praying for you. Let us know what's happening. We're here, watching, listening and praying for healing and to give you strength and comfort..... Blessings......

Cam, do let us know how you are doing. I remember you had a choice potentially of two different Centers. If all this is still happening at the first one, I would seriously consider going elsewhere. Have you switched centers yet? I hope things are going better. . . .

You've received great advice here and I won't repeat it for you. But I really want to emphasize one thing. A clinic that refuses to call you back is the wrong clinic. No matter what they think, they should have the courtesy to discuss your concerns with you. Failure to return your call at...

The protocols you're following are great. An infectious disease specialist can give you a list of detailed instructions. It usually needs to be done regularly.....not just once. Do check with them to optimize your chances of eradication.

You can generally find similar pads at your local WalMart in the section for Depends and similar items usually by the pharmacy section. Been there done that!

Yes. We had weeks where he actually went backwards and lost weight despite my efforts. But it was two steps forward and one back. What kind of food does she like? Is she a citrus kid (oranges, lemon and lime flavors? Verries?) Or a chocolate kid? Just have to find that food that makes her...

I'm glad to see an update, Jenrenea. I was wondering just last night how the week has gone for you. I'm also glad they are treating it. It is absolutely true that some docs look at it as untreatable and aren't going to bother with it unless and until it starts giving problems. Obviously...

By the way, most kids don't like malt flavored ovaltine, only the plain chocolate kind.....just to be sure! Its the same idea as Carnation though. And some kids prefer the strawberry flavored drinks rather than chocolate or vanilla. And my guy won't drink any flavor of Ensure and only one of...

Teething can be a tough time. One child of mine was consoled biting on a standard iced teething ring and the other wanted nothing to do with anything but a cold washcloth to bite on. And despite my pediatricians revelation that they dont suggest anbesol for kids anymore, I used it anyway with...

Perhaps if you let others know your general location they might be able to provide recommendations - either by post or private message...

Wonderful Margarita. I had no idea they would do that! That's a wonderful tip. And excellent customer service. Kudos to Respirtech!

How awful Ratatosk. Absolutely awful.

Ratatosk, I'm hoping that was a long time ago. No clinic should even be considering stunts like that anymore.

Here's the link to forum discussion on the various nebulizer compressors that I previously mentioned. There are two - the Mobilaire and the DeVilbiss that are commonly used for heavy use. With the different psi needed for different meds, it seems we need a compressor that allows you to change...

I suggest you review the Cystic Fibrosis Foundation Guidelines for more information on what to expect or request at your Clinic. In particular, I am pasting the Guideline regarding the use if masks by CF patients at all facilities - regardless of whether anY other patients wear a mask. [I]21...

Kris, from the heading on your post, it appears you have two copies of "delta f 508". If that's correct it sounds like your doc is recommending you take the new drug by Vertex that has just been approved, known as Orkambi. It is a combination drug in one pill. One of the drugs in the...

I bet Momto2. That would be tough. Don't push too hard. But keep at it. You're exercise regime was incredible before. Definitely not the norm! For anyone! So although it's a big decrease, it's not quite as big as you probably see it! Blessings.

Yikes, Ratatosk. No they are not all equal, but that UNEQUAL is discouraging. I'm with you......I'm repeatedly asked if his current cough when sick is a change in his baseline cough. I always reply, that NO cough is acceptable. I still have the luxury of rejecting any cough as "acceptable."...