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I am so sorry Matt....I hope you feel better.

I am so sorry Matt....I hope you feel better.

I am so sorry, My joint pain is related to the cipro we think but I don't take narcotics at all period, all the do is make me loopy. I have to say advil is my very best friend.. I take 800mgs every eight hours and that helps a lot. I hate being in pain... I don't struggle too bad with it...I...

I am so sorry, My joint pain is related to the cipro we think but I don't take narcotics at all period, all the do is make me loopy. I have to say advil is my very best friend.. I take 800mgs every eight hours and that helps a lot. I hate being in pain... I don't struggle too bad with it...I...

He is at Columbia and he is still waiting to hear as of right now if the lungs are a go. Long wait for the poor guy... Hopefully no news truly is good news and these will be the lungs for him...... They are not local lungs so it takes a bit longer

He is at Columbia and he is still waiting to hear as of right now if the lungs are a go. Long wait for the poor guy... Hopefully no news truly is good news and these will be the lungs for him...... They are not local lungs so it takes a bit longer

I had a Bronch done in December, I don't remember anything because I was already on a vent, I was so glad they did it because they found bacteria in my lungs that I had never been able to produce on my own with a sample. They took that sample and sent it off for synergy testing because it is pan...

I had a Bronch done in December, I don't remember anything because I was already on a vent, I was so glad they did it because they found bacteria in my lungs that I had never been able to produce on my own with a sample. They took that sample and sent it off for synergy testing because it is pan...

double post

double post

UNC did not undiagnose me, my old CF center at MUSC undiagnosed me, UNC did the Nasal PD, Dr Donaldson did, I was never seen in their clinic, just the clinical trail building, so it is not fair to say they undiagnosed me. Come to find out over a year later that they had no intention of doing it...

UNC did not undiagnose me, my old CF center at MUSC undiagnosed me, UNC did the Nasal PD, Dr Donaldson did, I was never seen in their clinic, just the clinical trail building, so it is not fair to say they undiagnosed me. Come to find out over a year later that they had no intention of doing it...

Hi Steve, I had posted about a year and half ago, I have DF508 gene and then one that has not been or had not been described at the time which is q1330e, I was undiagnosed with CF after 10 years of having CF at an old center I went to based on one negative Nasal PD, however my new place I am...

Yes, it was the same doctor. I can't say too much especially until I get the final word on a few things. I really like the doctor that undiagnosed me, he is a nice guy. I just think he failed to do best by me by not doing cultures and not doing a few other things. Even if the undiagnoses is...

Yes, it was the same doctor. I can't say too much especially until I get the final word on a few things. I really like the doctor that undiagnosed me, he is a nice guy. I just think he failed to do best by me by not doing cultures and not doing a few other things. Even if the undiagnoses is...

Becca's Mom, what did the Nasal Pd show? I also had one done at UNC, which my old clinic used to undiagnose me with CF in spite of positive sweat tests, one known CF gene and one gene that that has never been described yet. They totally undiagnosed me based on that one test. I was left...

Becca's Mom, what did the Nasal Pd show? I also had one done at UNC, which my old clinic used to undiagnose me with CF in spite of positive sweat tests, one known CF gene and one gene that that has never been described yet. They totally undiagnosed me based on that one test. I was left...

Chap stick, hand lotion, tons of snacks, enzymes like you said, (though I am not on them) a noise maker to drown out outside noises, lap top, games, Clorox wipes to wipe down everything all the time. Comfortable clothes, maybe get some craft projects from Michaels. Most hospitals have a Child...

Chap stick, hand lotion, tons of snacks, enzymes like you said, (though I am not on them) a noise maker to drown out outside noises, lap top, games, Clorox wipes to wipe down everything all the time. Comfortable clothes, maybe get some craft projects from Michaels. Most hospitals have a Child...

I can not believe I am reading this... I just can't... I am on IV Cipro, IV Zyvox, IV amikacian, oral Zithro and Oral Bactrim and have been for five months. When the Zyvox goes in I feel like I want to crawl out of my skin... I get so antsy and restless that I don't even want to take the drug...