Search results

National Jewish is five stars..ten stars. Dr Nick is over the top..emails back on vacation instantly. Smart, thinks outside the box proactive. He is my hero in a doctor..he is too far to see all,the time but I will see him at least once or twice a year or more if i progress, less if I dont My...

Beth Sufian is the way to go ! Good luck!

Beth Sufian is the way to go ! Good luck!

I spoke tomJery's brother last night. Jerry has his breathing tube out and was sitting up in a chair!!!!! like there was ever any doubt!!!!!! Go Jerry!

I spoke tomJery's brother last night. Jerry has his breathing tube out and was sitting up in a chair!!!!! like there was ever any doubt!!!!!! Go Jerry!

I just spoke to Jery's brother! Jerry is doing great. All his numbers look good and he may be extubated to or row or the next day!!!he got amazing lungs...he certainly deserves them!!! Go Jerry o you will never fail!

I just spoke to Jery's brother! Jerry is doing great. All his numbers look good and he may be extubated to or row or the next day!!!he got amazing lungs...he certainly deserves them!!! Go Jerry o you will never fail!

He Is in recovery and doing great!go Jerry!

He Is in recovery and doing great!go Jerry!

I was diagnosed with CF at the age of 29. Via positive sweat tests, and one gene that showed DF508. Years later when I switched centers which was the hell experience of my life I was completely undiagnosed with CF based on one negative Nasal PD...in spite of having the full genetic work...

I was diagnosed with CF at the age of 29. Via positive sweat tests, and one gene that showed DF508. Years later when I switched centers which was the hell experience of my life I was completely undiagnosed with CF based on one negative Nasal PD...in spite of having the full genetic work...

Thanks for saving me a headache. I will stay clear!

Thanks for saving me a headache. I will stay clear!

Well I was just put back on enzymes and I sure as heck don't have trouble gaining weight but I have bowel obstructions and well lets say I have to flush the toilet more then once several times a day. I would highly recommend going to the best place you can go, Even normal CF centers are not up...

I have been put back on Pulmozyme, hypertonic saline and Source CF vitamins and enzymes. The last time I was on any of these I was working and had insurance. I now have Medicare Part A, B, and D. with special medication assistance and then Medicaid as my secondary..or at least that is how I...

I have been put back on Pulmozyme, hypertonic saline and Source CF vitamins and enzymes. The last time I was on any of these I was working and had insurance. I now have Medicare Part A, B, and D. with special medication assistance and then Medicaid as my secondary..or at least that is how I...

It has been recommended to me on more then one occasion that I should get the wrap done as well. I am maxed out on PPI and H2 blockers and I feel like it is doing okay. My PH test was totally abnormal and I have a family history of espohageal cancer..... I also culture in my lungs bacteria...

It has been recommended to me on more then one occasion that I should get the wrap done as well. I am maxed out on PPI and H2 blockers and I feel like it is doing okay. My PH test was totally abnormal and I have a family history of espohageal cancer..... I also culture in my lungs bacteria...

I guess if I were you, I would be grateful my doctor gave a crud enough to investigate things, to be proactive and that he or she cares enough to try to keep you in the best possible care. I think it is amazing that they want to investigate each thing .. I went a long time with seeing...

I guess if I were you, I would be grateful my doctor gave a crud enough to investigate things, to be proactive and that he or she cares enough to try to keep you in the best possible care. I think it is amazing that they want to investigate each thing .. I went a long time with seeing...