Search results

  1. J

    MedicAlert

    I have one...no name or anything. Just says "cystic fibrosis, Severe food and drug allergies" on the back.
  2. J

    MedicAlert

    I have one...no name or anything. Just says "cystic fibrosis, Severe food and drug allergies" on the back.
  3. J

    MedicAlert

    I have one...no name or anything. Just says "cystic fibrosis, Severe food and drug allergies" on the back.
  4. J

    Who are you in a nut shell

    who are you My name is rebekah I'm a girl (duh) I'm 22 years old Live in SC 5'3 and not telling my weight was diagnosed with CF at age 16 after a life of lung and GI issues that were misdiagnosed I'm a christian I want to go back to school to be a LVT I love animals I have 2 cats and 2 dogs I...
  5. J

    I'm on the scrounge

    Go to the health section on Ebay and search for vests. A lot of times there are some listed on there. The Hillrom models 103 and 104. I know at one point someone had a new in box hillrom 104 that went for $1000. Some of the older ones go for just a few hundred. I haven't seen any listed in...
  6. J

    I'm on the scrounge

    Go to the health section on Ebay and search for vests. A lot of times there are some listed on there. The Hillrom models 103 and 104. I know at one point someone had a new in box hillrom 104 that went for $1000. Some of the older ones go for just a few hundred. I haven't seen any listed in...
  7. J

    I'm on the scrounge

    Go to the health section on Ebay and search for vests. A lot of times there are some listed on there. The Hillrom models 103 and 104. I know at one point someone had a new in box hillrom 104 that went for $1000. Some of the older ones go for just a few hundred. I haven't seen any listed in...
  8. J

    Other Genetic Diseases

    My mom has had breast cancer, my aunt has down syndrome, my dad had a congenital heart defect that is considered genetic. Several suspected but undiagnosed CF cases (and can't test now as those people are dead!) And various mental health issues (my dad has rather severe OCD.) depression and...
  9. J

    Other Genetic Diseases

    My mom has had breast cancer, my aunt has down syndrome, my dad had a congenital heart defect that is considered genetic. Several suspected but undiagnosed CF cases (and can't test now as those people are dead!) And various mental health issues (my dad has rather severe OCD.) depression and...
  10. J

    Other Genetic Diseases

    My mom has had breast cancer, my aunt has down syndrome, my dad had a congenital heart defect that is considered genetic. Several suspected but undiagnosed CF cases (and can't test now as those people are dead!) And various mental health issues (my dad has rather severe OCD.) depression and...
  11. J

    I need workout song suggestions

    I love walking to Bach. Also the Beatles, B'Z, X Japan, Pink Floyd, Sheryl Crow and Martina McBride
  12. J

    I need workout song suggestions

    I love walking to Bach. Also the Beatles, B'Z, X Japan, Pink Floyd, Sheryl Crow and Martina McBride
  13. J

    I need workout song suggestions

    I love walking to Bach. Also the Beatles, B'Z, X Japan, Pink Floyd, Sheryl Crow and Martina McBride
  14. J

    Getting a Portable Nebulizer

    I LOVE my trek. Very handy! For xopenex/cromolyn sodium/pulmicort/atrovent I have a omron microair VMT and love it because its silent and very small. I use the Trek with TOBI very rarely but I figure doing it with that is better than skipping it. I don't use pulmozyme just mucumyst(the reason I...
  15. J

    Getting a Portable Nebulizer

    I LOVE my trek. Very handy! For xopenex/cromolyn sodium/pulmicort/atrovent I have a omron microair VMT and love it because its silent and very small. I use the Trek with TOBI very rarely but I figure doing it with that is better than skipping it. I don't use pulmozyme just mucumyst(the reason I...
  16. J

    Getting a Portable Nebulizer

    I LOVE my trek. Very handy! For xopenex/cromolyn sodium/pulmicort/atrovent I have a omron microair VMT and love it because its silent and very small. I use the Trek with TOBI very rarely but I figure doing it with that is better than skipping it. I don't use pulmozyme just mucumyst(the reason I...
  17. J

    diagnosis story

    I wasnt diagnosed until age 16 but have had symptoms all my life As a baby I had a ton of mucus and had stomach issues etc. The doctors kept brushing my mom off and I had several other health issues that were the main focus then. Anyway I always small (10%-20% on the growth charts). I always...
  18. J

    diagnosis story

    I wasnt diagnosed until age 16 but have had symptoms all my life As a baby I had a ton of mucus and had stomach issues etc. The doctors kept brushing my mom off and I had several other health issues that were the main focus then. Anyway I always small (10%-20% on the growth charts). I always...
  19. J

    diagnosis story

    I wasnt diagnosed until age 16 but have had symptoms all my life As a baby I had a ton of mucus and had stomach issues etc. The doctors kept brushing my mom off and I had several other health issues that were the main focus then. Anyway I always small (10%-20% on the growth charts). I always...
  20. J

    Question about refrigerated meds

    The TOBI is/ According to Chiron TOBI is okay out of the fridge for 28 days so I wouldn't hesitate to use it
Top