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Getting a Portable Nebulizer
- Thread starter thesapphirekat
- Start date
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Liza</b></i>
I specifically checked for Pulmozyme because I knew that you can not use an ultra sonic with Pulmozyme. I don't know if something has changed in the last couple off years but when I bought ours they were OK to use with Pulmozyme..</end quote></div>
You are wasting your money buying Pulmozyme, my friend.
Call Genentech, the makers of Pulmozyme - they'll tell you exactly what I have told you.
This is a great example of why it's important not to just rely on your clinic for information - they can be wrong unfortunately.
I specifically checked for Pulmozyme because I knew that you can not use an ultra sonic with Pulmozyme. I don't know if something has changed in the last couple off years but when I bought ours they were OK to use with Pulmozyme..</end quote></div>
You are wasting your money buying Pulmozyme, my friend.
Call Genentech, the makers of Pulmozyme - they'll tell you exactly what I have told you.
This is a great example of why it's important not to just rely on your clinic for information - they can be wrong unfortunately.
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Liza</b></i>
I specifically checked for Pulmozyme because I knew that you can not use an ultra sonic with Pulmozyme. I don't know if something has changed in the last couple off years but when I bought ours they were OK to use with Pulmozyme..</end quote></div>
You are wasting your money buying Pulmozyme, my friend.
Call Genentech, the makers of Pulmozyme - they'll tell you exactly what I have told you.
This is a great example of why it's important not to just rely on your clinic for information - they can be wrong unfortunately.
I specifically checked for Pulmozyme because I knew that you can not use an ultra sonic with Pulmozyme. I don't know if something has changed in the last couple off years but when I bought ours they were OK to use with Pulmozyme..</end quote></div>
You are wasting your money buying Pulmozyme, my friend.
Call Genentech, the makers of Pulmozyme - they'll tell you exactly what I have told you.
This is a great example of why it's important not to just rely on your clinic for information - they can be wrong unfortunately.
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Liza</b></i>
I specifically checked for Pulmozyme because I knew that you can not use an ultra sonic with Pulmozyme. I don't know if something has changed in the last couple off years but when I bought ours they were OK to use with Pulmozyme..</end quote></div>
You are wasting your money buying Pulmozyme, my friend.
Call Genentech, the makers of Pulmozyme - they'll tell you exactly what I have told you.
This is a great example of why it's important not to just rely on your clinic for information - they can be wrong unfortunately.
I specifically checked for Pulmozyme because I knew that you can not use an ultra sonic with Pulmozyme. I don't know if something has changed in the last couple off years but when I bought ours they were OK to use with Pulmozyme..</end quote></div>
You are wasting your money buying Pulmozyme, my friend.
Call Genentech, the makers of Pulmozyme - they'll tell you exactly what I have told you.
This is a great example of why it's important not to just rely on your clinic for information - they can be wrong unfortunately.
Justsmurfin
New member
I LOVE my trek. Very handy! For xopenex/cromolyn sodium/pulmicort/atrovent I have a omron microair VMT and love it because its silent and very small. I use the Trek with TOBI very rarely but I figure doing it with that is better than skipping it. I don't use pulmozyme just mucumyst(the reason I got the trek as I was warned the mucomyst would mess the mesh cap up on the microair)
Usually if I can get the xopenex/pulmicort/cromolyn/mucomyst done in the car or whatever it isn't a big deal to wait till I can use my trusty devilbiss for TOBI so I can count the number of times I've done TOBI in it on one hand! (and my trek is 2 years old). Most being when we had no electricity due to a storm/hurricane/freak things
Usually if I can get the xopenex/pulmicort/cromolyn/mucomyst done in the car or whatever it isn't a big deal to wait till I can use my trusty devilbiss for TOBI so I can count the number of times I've done TOBI in it on one hand! (and my trek is 2 years old). Most being when we had no electricity due to a storm/hurricane/freak things
Justsmurfin
New member
I LOVE my trek. Very handy! For xopenex/cromolyn sodium/pulmicort/atrovent I have a omron microair VMT and love it because its silent and very small. I use the Trek with TOBI very rarely but I figure doing it with that is better than skipping it. I don't use pulmozyme just mucumyst(the reason I got the trek as I was warned the mucomyst would mess the mesh cap up on the microair)
Usually if I can get the xopenex/pulmicort/cromolyn/mucomyst done in the car or whatever it isn't a big deal to wait till I can use my trusty devilbiss for TOBI so I can count the number of times I've done TOBI in it on one hand! (and my trek is 2 years old). Most being when we had no electricity due to a storm/hurricane/freak things
Usually if I can get the xopenex/pulmicort/cromolyn/mucomyst done in the car or whatever it isn't a big deal to wait till I can use my trusty devilbiss for TOBI so I can count the number of times I've done TOBI in it on one hand! (and my trek is 2 years old). Most being when we had no electricity due to a storm/hurricane/freak things
Justsmurfin
New member
I LOVE my trek. Very handy! For xopenex/cromolyn sodium/pulmicort/atrovent I have a omron microair VMT and love it because its silent and very small. I use the Trek with TOBI very rarely but I figure doing it with that is better than skipping it. I don't use pulmozyme just mucumyst(the reason I got the trek as I was warned the mucomyst would mess the mesh cap up on the microair)
Usually if I can get the xopenex/pulmicort/cromolyn/mucomyst done in the car or whatever it isn't a big deal to wait till I can use my trusty devilbiss for TOBI so I can count the number of times I've done TOBI in it on one hand! (and my trek is 2 years old). Most being when we had no electricity due to a storm/hurricane/freak things
Usually if I can get the xopenex/pulmicort/cromolyn/mucomyst done in the car or whatever it isn't a big deal to wait till I can use my trusty devilbiss for TOBI so I can count the number of times I've done TOBI in it on one hand! (and my trek is 2 years old). Most being when we had no electricity due to a storm/hurricane/freak things
thesapphirekat
New member
Thanks for all your input.
My daughter is on Xopenex(2 times a day), Tobi(2 times a day/bi-monthly), Pulmozyme(once a day), & hypertonic saline(2 times a day). We need to do the saline & Tobi in the car if possible. Found out today that our insurance will cover all but 10% of a Pari Trek! I think we will try it.
It would also be great to have an eflow. Sakasuka, what does it take to get one at no cost?
My daughter is on Xopenex(2 times a day), Tobi(2 times a day/bi-monthly), Pulmozyme(once a day), & hypertonic saline(2 times a day). We need to do the saline & Tobi in the car if possible. Found out today that our insurance will cover all but 10% of a Pari Trek! I think we will try it.
It would also be great to have an eflow. Sakasuka, what does it take to get one at no cost?
thesapphirekat
New member
Thanks for all your input.
My daughter is on Xopenex(2 times a day), Tobi(2 times a day/bi-monthly), Pulmozyme(once a day), & hypertonic saline(2 times a day). We need to do the saline & Tobi in the car if possible. Found out today that our insurance will cover all but 10% of a Pari Trek! I think we will try it.
It would also be great to have an eflow. Sakasuka, what does it take to get one at no cost?
My daughter is on Xopenex(2 times a day), Tobi(2 times a day/bi-monthly), Pulmozyme(once a day), & hypertonic saline(2 times a day). We need to do the saline & Tobi in the car if possible. Found out today that our insurance will cover all but 10% of a Pari Trek! I think we will try it.
It would also be great to have an eflow. Sakasuka, what does it take to get one at no cost?
thesapphirekat
New member
Thanks for all your input.
My daughter is on Xopenex(2 times a day), Tobi(2 times a day/bi-monthly), Pulmozyme(once a day), & hypertonic saline(2 times a day). We need to do the saline & Tobi in the car if possible. Found out today that our insurance will cover all but 10% of a Pari Trek! I think we will try it.
It would also be great to have an eflow. Sakasuka, what does it take to get one at no cost?
My daughter is on Xopenex(2 times a day), Tobi(2 times a day/bi-monthly), Pulmozyme(once a day), & hypertonic saline(2 times a day). We need to do the saline & Tobi in the car if possible. Found out today that our insurance will cover all but 10% of a Pari Trek! I think we will try it.
It would also be great to have an eflow. Sakasuka, what does it take to get one at no cost?
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sakasuka</b></i>
if your child is on a nebbed anitibiotic (colistamethate or tobi), the eFlow will be free.</end quote></div>
Contact foundation care.
www.foundcare.com
as I said, if your child is on a nebbed antibiotic and you purchase the antibiotic from Foundation Care, you will get the eFlow free <img src="i/expressions/face-icon-small-smile.gif" border="0">
if your child is on a nebbed anitibiotic (colistamethate or tobi), the eFlow will be free.</end quote></div>
Contact foundation care.
www.foundcare.com
as I said, if your child is on a nebbed antibiotic and you purchase the antibiotic from Foundation Care, you will get the eFlow free <img src="i/expressions/face-icon-small-smile.gif" border="0">
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sakasuka</b></i>
if your child is on a nebbed anitibiotic (colistamethate or tobi), the eFlow will be free.</end quote></div>
Contact foundation care.
www.foundcare.com
as I said, if your child is on a nebbed antibiotic and you purchase the antibiotic from Foundation Care, you will get the eFlow free <img src="i/expressions/face-icon-small-smile.gif" border="0">
if your child is on a nebbed anitibiotic (colistamethate or tobi), the eFlow will be free.</end quote></div>
Contact foundation care.
www.foundcare.com
as I said, if your child is on a nebbed antibiotic and you purchase the antibiotic from Foundation Care, you will get the eFlow free <img src="i/expressions/face-icon-small-smile.gif" border="0">
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sakasuka</b></i>
if your child is on a nebbed anitibiotic (colistamethate or tobi), the eFlow will be free.</end quote></div>
Contact foundation care.
www.foundcare.com
as I said, if your child is on a nebbed antibiotic and you purchase the antibiotic from Foundation Care, you will get the eFlow free <img src="i/expressions/face-icon-small-smile.gif" border="0">
if your child is on a nebbed anitibiotic (colistamethate or tobi), the eFlow will be free.</end quote></div>
Contact foundation care.
www.foundcare.com
as I said, if your child is on a nebbed antibiotic and you purchase the antibiotic from Foundation Care, you will get the eFlow free <img src="i/expressions/face-icon-small-smile.gif" border="0">
6
65rosessamurai
Guest
Out of curiosity, is the E-flow available in Japan?!
One major consideration is the battery charger voltage specifications.
Since NO battery can go on-and-on-and-on without being charged, the battery charger would have to meet the voltage ratings for this country if I were to use it.
If eflow is also restricted to certain medications for nebbing, I'd have to find out what my doctor intends to prescribe for me, if I were in need of doing such treatments in the future.
I'm already told my health insurance would not even cover 1% of the costs for the compressor, but will cover about a third for the meds.
So, before I invest so much, I wanna be sure it's the proper selection, and reliable. Having technical support would be benefical, too!
One major consideration is the battery charger voltage specifications.
Since NO battery can go on-and-on-and-on without being charged, the battery charger would have to meet the voltage ratings for this country if I were to use it.
If eflow is also restricted to certain medications for nebbing, I'd have to find out what my doctor intends to prescribe for me, if I were in need of doing such treatments in the future.
I'm already told my health insurance would not even cover 1% of the costs for the compressor, but will cover about a third for the meds.
So, before I invest so much, I wanna be sure it's the proper selection, and reliable. Having technical support would be benefical, too!
6
65rosessamurai
Guest
Out of curiosity, is the E-flow available in Japan?!
One major consideration is the battery charger voltage specifications.
Since NO battery can go on-and-on-and-on without being charged, the battery charger would have to meet the voltage ratings for this country if I were to use it.
If eflow is also restricted to certain medications for nebbing, I'd have to find out what my doctor intends to prescribe for me, if I were in need of doing such treatments in the future.
I'm already told my health insurance would not even cover 1% of the costs for the compressor, but will cover about a third for the meds.
So, before I invest so much, I wanna be sure it's the proper selection, and reliable. Having technical support would be benefical, too!
One major consideration is the battery charger voltage specifications.
Since NO battery can go on-and-on-and-on without being charged, the battery charger would have to meet the voltage ratings for this country if I were to use it.
If eflow is also restricted to certain medications for nebbing, I'd have to find out what my doctor intends to prescribe for me, if I were in need of doing such treatments in the future.
I'm already told my health insurance would not even cover 1% of the costs for the compressor, but will cover about a third for the meds.
So, before I invest so much, I wanna be sure it's the proper selection, and reliable. Having technical support would be benefical, too!
6
65rosessamurai
Guest
Out of curiosity, is the E-flow available in Japan?!
One major consideration is the battery charger voltage specifications.
Since NO battery can go on-and-on-and-on without being charged, the battery charger would have to meet the voltage ratings for this country if I were to use it.
If eflow is also restricted to certain medications for nebbing, I'd have to find out what my doctor intends to prescribe for me, if I were in need of doing such treatments in the future.
I'm already told my health insurance would not even cover 1% of the costs for the compressor, but will cover about a third for the meds.
So, before I invest so much, I wanna be sure it's the proper selection, and reliable. Having technical support would be benefical, too!
One major consideration is the battery charger voltage specifications.
Since NO battery can go on-and-on-and-on without being charged, the battery charger would have to meet the voltage ratings for this country if I were to use it.
If eflow is also restricted to certain medications for nebbing, I'd have to find out what my doctor intends to prescribe for me, if I were in need of doing such treatments in the future.
I'm already told my health insurance would not even cover 1% of the costs for the compressor, but will cover about a third for the meds.
So, before I invest so much, I wanna be sure it's the proper selection, and reliable. Having technical support would be benefical, too!
But can you hook your VEST up to the power inverter and vest while driving down the road? I'm saying this in jest BTW...
This came up in conversation last week, when DH and I were trying to coordinate DS's treatments for a graduation. And DH brought up the idea of a power inverter for nebbing him, and then got this wild look in his eye -- hey, could we do his vest, too? Errr, wouldn't that put a HUGE drain on the car battery or make things go kabloohey?
Actually it's really no big deal to coordinate his beatment since he's not on tobi we'll just neb his albuterol/atrovent while doing his vest before we leave. Takes all of 20-30 min..
This came up in conversation last week, when DH and I were trying to coordinate DS's treatments for a graduation. And DH brought up the idea of a power inverter for nebbing him, and then got this wild look in his eye -- hey, could we do his vest, too? Errr, wouldn't that put a HUGE drain on the car battery or make things go kabloohey?
Actually it's really no big deal to coordinate his beatment since he's not on tobi we'll just neb his albuterol/atrovent while doing his vest before we leave. Takes all of 20-30 min..