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I place a mask that comes off of an anbu bag(CPR) over my port while I do my vest. My port is placed on my right side under my armpit. The CPR mask is great because it's hallow but the edges are filled with air so your cushioned against the vest. Just ask a RT for one and if they won't give you...

Hey Jenn, thanks so much for the info. Is there a certain brand you prefer for needles? Also notice you said you purchased iv tubing . I would love to know how you go about doing home ivs since Medicare doesn't' t pay for supplies. I don't do home ivs anymore but I did them for years when I had...

Does anyone know where to get reasonable priced port supplies? I will be paying for them out of pocket since my insurance does not cover them. They were covered by my old insurance so I'm not even sure what a good price for the individual items would be . I have looked online some and it...

Thinking of you. No,you are not overreacting by putting a sign on the door. You are taking care of your daughter.

If she is an intelligent child and should be in honor classes I would let her take them. It will definitely help her with college. She can try it the first year and if you see she can't handle it she can go to on level . I agree with Aboveallislove, I had rather deal with the absences and...

What psi would you use with 7 percent hypersonic saline? Thanks

Triples15: Thanks so much! I hadn't thought about that since the surgery should be laparoscopic. I will be asking the surgeon about the vest. Again thanks for your suggestion.

Oh I will definitely be trying to do my vest . No doubt about it. I have tried the belt style vest and don't like it. It's very painful on the girls up top. Having gallbladder surgery, should be laparoscopic. I don't think I should have a problem with vest unless I end up with an incision...

Will be having surgery soon and every time I have surgery I have my secretions become thick, green ,very hard to cough up, just plain nasty.I hoping an outpatient surgery won't end up with me being readmitted for a 2week stay. I won't be able to do my vest for a couple of days but I think I have...

I do my rinses twice daily. The evening one I do about an hour before I go to bed. Would like to know the ratio of baking soda to salt you use in the distilled water. I would love it if I didn't have to buy the neil med packets.

Does anyone take mucinex(genric) ?Was told I could take 1200mg bid by cf nurse pract. Just wondering if it works for you or I'm I wasting my money? Thanks.

I'm 37 and just had a colonoscopy. The prep solution was called moviprep that I used. I will perhaps ask for a different one next time . Doc said it should have done a better job and I drank of that stuff. I encourage everyone to have one if you have any ongoing issues that are not normal for...

I am concerned that my bloating won't go away after surgery. Do certain foods seem to make your bloating worse? Does eliminating certain foods make it better? How long did the bloating from the surgery last? My consultation with the surgeon was this morning so I have a surgery date. I'm just...

Perfumes did not seem to bother me in older grades. I myself wore perfume until my late twenties. Then I had some asthmatic symptoms develop with my cf. Peanut allergies can cause death if not immediately treated. There is a little difference . More than likely when in highschool your child will...

That's okay. Any info is appreciated.

There are special people out there that can handle cf. So don't think someone will just give up on you. I've been married to a wonderful man for eighteen years. I' ve been through collapsed lung , blood clot, tons of hospitalizations and my husband has always been by my side . He has never...

Yes , I have cf. Sorry if it was unclear in my post.

Hi. I'm new to posting but been reading for a while. I'm 37, married , mother of two(no cf), diagnosed at 3 months. I recently had a colonoscopy,upper gi scope and ultrasound done which now I have to have my gall bladder removed. It started about 1 1/2 to 2 years ago with my stomach bloating...

Each of us are different. Even with patients that have the same mutations our symptoms can be different. I know you worry, I myself I'm a mother of two . I'm 37, DD508, diagnosed at 3 months old(failure to thrive) ,one hospitalization during that first year. Not hospitalized again until I was...

Thanks, the DeVilbiss compressor is more than I wanted to spend since I'm sure insurance most likely will not cover . That"s why I was looking at the mobilaire. It"s around $300 and more within my buget.