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Welcome Dot! I think it's great that you've joined us to ask questions of those who most affected by your decision. I hope you hang around our site for a long time as you care for CFers. I was uncertain from your post whether you were part of a new approved CF Center, or simply a hospital...

Here's a thought - kids, preteens, and teens often feel very comfortable wearing full face masks. They're primed for it by Halloween and crafts made in school, etc. I wonder if you could make a FULL face mask in fabric, sporting a character they would enjoy, but which would perform the same...

Oh wow! Great links everyone! I love it! We should post pictures!

I know . . . for the kiddos, write "Ninja in Training" on it and bring their nun chucks! Any other suggestions?

Ya know, I don't love wearing the masks either. They're hot on your face. They make it harder to breathe. But . . . . I'm reminded that there are two ways to look at most things. You can balk at it, moan about it, feel bad, slink to your appointment hugging the wall with your head down, or ...

I can sympathize. My little guy was appalled when they told him to wear a mask. It's a long walk from the front door to the Clinic and he felt like everyone was staring at him. So I donned a mask too, but that wasn't quite enough for him to feel more at ease. Now I bring a sharpie and...

Great job! Is there a specified email address for them?

Thanks for the link AboveAll. Do you know if there is a way to get automatic updates or notifications from the Federal Register or the FDA on things related to CF meds?

Thanks Melissa. Hard, but good to know.

Anien, Of course Santa Claus is based in part upon a real person but he didn't claim to be God. Jesus did. Jesus is (was) also a real person as all acknowledge. And I believe St. Nicholas existed, although I really can't prove it, can I. There are historical recountings of him, written texts...

Anien, I did forget to mention something that I think is generally misunderstood. Faith and Belief are absolutely not the same thing. Faith is a product of revelation - and comes from inspiration. An "aha" moment if you will and frankly God inspired. It is not a choice; it is knowledge. In...

Anien- as Imogene said in her original post...."However, wherever you pray, let us know." As I said in my post - the major religions are in many ways astoundingly similar. That is a thought worth pondering. How did that happen? I wouldn't be surprised to discover they are all the same God by...

Imogene. Thank you for your post. I found it inspired and bold. I love the Lord, believe in God, and thank Christ for caring enough to do the ultimate penance for my sins, ahead of time, without qualification and with the ultimate version of parental love. If I think PICC lines, nebulizers...

The site referenced by bharrison also contains the link to Recreation Grants, which was the subject of one of my previous posts. If you need funds to pursue exercise or sports, do check it out. Grants are not loans - you do not have to pay them back. Don't skip membership at the Y or gym, or...

I am so tickled to see this thread. I have long believed we need a spot for kids to safely communicate with one ajother. They need to know they are not alone. I used to explain this to my DS and even show him videos of other kids vesting which helped. But being able to reach out and...

I have to agree with LittleLab. ADHD does seem to be diagnosed rather quickly sometimes! I had a brother who was probably ADHD under todays guidelines when he was little. My mother couldn't even keep him still long enough to eat dinner. He absolutely terrorized me as a child! Today, he is a...

MRSI can easily be acquired from different sources.But it is my recollection that of a CFer generally acquires MRSA in their lungs from their hospital, clinic, or other CFers. I would really suggest that you ask for a referral or consult with an infectious disease specialist. They deal with MRSA...

I have no experience with this organization but thought some might find it helpful....if you apply for a Recreation Grant, or have done so before, let us know your experience! If your application is approved, the grant is up to $500. It is based on the premise that activity is especially...

How nice! I personally would prefer removable/adjustable dividers. There are so many different meds and most don't take exactly the same combination, so storage needs differ. In addition, meds get added and potentially subtracted as your condition changes. Our current ideal is for...

Love it. Best solution so far without having to get out a hammer and saw!