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I'm sorry your time in the chat room was an unpleasant experience. <img src="i/expressions/face-icon-small-sad.gif" border="0"> Feel free to e-mail me for support, questions or concerns. Newman.a710@gmail.com

Bill- We used to have chat every week night a while back but in 2009 Melissa (JazzysMom) passed away and it was a great loss to us all. People stopped showing up for chat every night. Eventually the chat become empty. Joni (BelEAche) started weekly chats to try and help us come together again...

We have weekly chat night on Wednesdays at 8pm Eastern time.

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>lilmac7</b></i> it's usually just slackness on my part so I'm the one to blame for my troubles.</end quote> True. Happens to me sometimes too But, I agree...That's A LOT of enzymes!

<img src="i/expressions/face-icon-small-happy.gif" border="0"> Mark... <img src="i/expressions/face-icon-small-tongue.gif" border="0">

I wish you the best of luck Jonathan & Frank. You will be missed. <img src="i/expressions/face-icon-small-sad.gif" border="0">

Hey Joni- I'll be there! <img src="i/expressions/face-icon-small-happy.gif" border="0">

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Ratatosk</b></i> DS takes Creon 12,000 as well. Takes 7-8 with meals and 4-5 with snacks. He was on Pancrease MT 10?s and when they reformulated them to Pancreaze.</end quote> I was on those too. (Pancrease MT 10's) For a LONNGG time...

I was wondering what type (brand name) of enzymes you take and how many per meal/snack? I know some of it depends on weight and such but I'm just curious. I've switched enzymes at least 3 or 4 times since the FDA isn't approving them. I've been taking Creon 12,000 for at least a year and half or...

I can't wait to hear more about the progress! Thanks for the update Jeanne <img src="i/expressions/face-icon-small-smile.gif" border="0">

Kayla- IF you have a cellphone maybe you could set the alarm on it for wednesday 8pm Eastern time as a reminder. Hope you can make it next week! <img src="i/expressions/face-icon-small-smile.gif" border="0">

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>BikerEd</b></i> Ok, I'm not CFRD, but I don't like cake. I do like ice cream, however I get a birthday pie or some other item I like. I look at this way, its your birthday, you get to pick your "cake" (my kids and mom usally make some...

<span>Join the fun in the new weekly blogs on Tuesday's and Friday's! We could definitely use some happy action around here<img src="http://blogs.cysticfibrosis.com/i/expressions/face-icon-small-smile.gif" alt="" border="0" /> <span>Here's How: <span>Look to the left of the screen under "Lastest...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>devora</b></i> Pay her. I used to pay my daughter to eat.</end quote> My parents tried that on me for eating/gaining weight! Perhaps try a sticker chart. Print off a calendar of the month (you can get free ones online) or create a...

I'm coming! <img src="i/expressions/face-icon-small-happy.gif" border="0">

I don't believe that is 100% true. After a certain point of time it is yours. I believe I received a letter in a mail saying mine was finished being paid for by insurance and is mine. It is not rented, like an oxygen concentrator is. I do believe you are correct in that while the insurance...

This sounds like something very similar to what I have! (if not then, it's pretty close!) I've been on Bactrim continuously (M-W-F) since my transplant in 2007. It's a post tx medication. My family started noticing these small red blotches and tiny bumps on my upper back a few YEARS ago. Mine...

My personal experience: After being on Amikacin I.V long term I had some renal damage. (at least 2 years) I had a double lung transplant in March 2007. The anti-rejection medication I was taking for my lungs worsened my kidneys even more causing renal failure which resulted in a kidney...

I see this question was asked a while ago but I wanted to add my thoughts anyways...That's actually a good question MSBumba. I was wondering the same thing myself for future information....

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Tisha</b></i> Hi Nutsa! Life goes on! Don't let CF stop you. I fulfilled my dream of going to university in the United States and get a degree (I live in Spain). I have acted in theatre and have been singing on the radio. Follow your...