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Attention Parents/Guardians of Children with CF There is a new face book page for children with life threatening illnesses. You can sign your child up for the program and they will give you an individual "sponsor/donor" who will send gifts to your child and correspond with you by mail/e-mail or...

I'm also 21. My heart aches for you knowing you have lost your son at such a young age. Stay Strong. My thoughts are with you... Much Love, Amber

Great news Jeanne! Keep up the great work :) Happy Holidays! Much Love (L)

Spread your wings and fly beautiful Lezly. You fought until the very end. (L) Much love and comfort for Lezly's family.

Is anyone currently watching the new season that started last Sunday? My boyfriend got me watching it last week! There was a marathon all weekend before the season premiere. I always thought it looked too scary and zombies don't interest me but the story line is interesting. Now I'm hooked! lol

This is terrific news Joni! I'm very happy that your health is stable right now and that you enjoy the rehab program to stay healthy. It sounds like you had a blast on your vacation. Breath taking sight seeing! I'm hoping to see the Grand Canyon someday as well. It's always rewarding being able...

Hi Kris, I don't have too much to add since everyone else has pretty much said everything I would say. I agree with the others here. 19 years old is such a young age for someone that doesn't have CF to be able to fathom everything you have to go through. People are also at that point in their...

This is an interesting topic. I just wanted to chime in and add that it seems like it's strongly based on what your primary insurance is? I'm covered with part D like Lena Bean but since I'm post transplant I do not use any kind of nebulizer drugs. All of my oral meds (15+) are covered most of...

Chat right now :)

Please join us tonight in the chat room at 8pm eastern time. Everyone is welcome! I look forward to talking with you :)

Hi there, I've never experienced this issue before but wanted to chime in and say that I agree with the doctors suggesting a feeding tube. I've had one since I was 11 years old and it has worked well for me. I still have it today and I use it every night. It has kept my weight from dropping...

Hey everyone, please join us tonight at 8pm eastern time in the chat room. Look forward to talking with you all :) if you can't make it tonight, come back tomorrow night same time.

Wow! What a unique & creative costume. I'm very touched by this little boys story & his dad. He is a father of the year! (L) Before I had my transplant & was too sick to walk, I used my wheelchair and dressed up as an old lady, using my real oxygen complete with wig, glasses, flower print...

This is a support forum, especially for NEWLY DIAGNOSED patients. Please be courteous to everyone involved. Sarcasm is not necessary.

I'm 21 years old. My baseline FEV1 is around 65% I'm 5 years post transplant.

Well, I'm never sick anymore but before my transplant I would always know because of: -extreme shortness of breath -Fever in some cases -Coughing up a lot of mucus -Tired during my usual activities and of course decline in PFT's

Hi Ellie, I'm Amber. I'm a bit older than you are. I'm 21 but I just wanted you to know that you can message me whenever you'd like. I hope you find others that would like to communicate with you. Hope all is well. Hugs to you...

There are other people with CF that are in similar emotional stress. You are not alone. I understand exactly what you mean. I feel that way too sometimes. I try to find people with CF that are more optimistic with life in general even during their struggles. We live with tough situation's and it...

I don't have much advice for you since I have CF myself but I wanted you to know that my thoughts are with you. It will get better over time. Always have hope. Hope is a powerful thing. It helps me get through the tough times. Stay strong for yourself & your daughter. Hugs to you (L)

Lakes and ponds are especially risky after transplant. You don't know what kind of bacteria is in every lake. However, you are able to swim and do activities in salt water such as oceans like lovelifepassion mentioned. In reality you can do whatever you want. No one is stopping you. Just make...