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  1. H

    We got the acapella

    <div class="FTQUOTE"><begin quote>Our medical supply store messed up and got us the cheaper one and since we opened it up before realizing it was the wrong one, we are stuck <img src="i/expressions/face-icon-small-sad.gif" border="0"></end quote></div> I would appeal that. You had no way of...
  2. H

    We got the acapella

    <div class="FTQUOTE"><begin quote>Our medical supply store messed up and got us the cheaper one and since we opened it up before realizing it was the wrong one, we are stuck <img src="i/expressions/face-icon-small-sad.gif" border="0"></end quote> I would appeal that. You had no way of knowing...
  3. H

    We got the acapella

    <div class="FTQUOTE"><begin quote>Our medical supply store messed up and got us the cheaper one and since we opened it up before realizing it was the wrong one, we are stuck <img src="i/expressions/face-icon-small-sad.gif" border="0"></end quote> <br />I would appeal that. You had no way of...
  4. H

    We got the acapella

    Ours was covered. If not, the Acapella Choice (this is the one you want, since it can be taken apart for cleaning and can be boiled; the regular less-expensive Acapella cannot) can be purchased through medical suppliers, amazon, etc.
  5. H

    We got the acapella

    Ours was covered. If not, the Acapella Choice (this is the one you want, since it can be taken apart for cleaning and can be boiled; the regular less-expensive Acapella cannot) can be purchased through medical suppliers, amazon, etc.
  6. H

    We got the acapella

    Ours was covered. <br /> <br />If not, the Acapella Choice (this is the one you want, since it can be taken apart for cleaning and can be boiled; the regular less-expensive Acapella cannot) can be purchased through medical suppliers, amazon, etc. <br /> <br />
  7. H

    We got the acapella

    Our clinic RT gave Emily an Acapella at her first visit (she was 7.) She was taught to take a slow deep breath in, hold for a couple seconds and then lonnnng exhalation (kind of like huffing.) Do multiple times in a row and then cough; repeat... The goal was for a 10min session twice a day...
  8. H

    We got the acapella

    Our clinic RT gave Emily an Acapella at her first visit (she was 7.) She was taught to take a slow deep breath in, hold for a couple seconds and then lonnnng exhalation (kind of like huffing.) Do multiple times in a row and then cough; repeat... The goal was for a 10min session twice a day...
  9. H

    We got the acapella

    Our clinic RT gave Emily an Acapella at her first visit (she was 7.) She was taught to take a slow deep breath in, hold for a couple seconds and then lonnnng exhalation (kind of like huffing.) Do multiple times in a row and then cough; repeat... The goal was for a 10min session twice a day...
  10. H

    Night time routine..

    You can do the nebs while he's doing the vest... this will save a lot of time, and will make airway clearance more effective, too.
  11. H

    Night time routine..

    I vividly remember running around the house being CHASED by my parents/brother to try to hold me down for "thumping" (CPT). Screaming and crying because thumping hurt so much. I am SO sorry CPT was a painful experience for you. Emily started with CPT when dx'ed at age 7. She hated, hated...
  12. H

    Summer Camp for CF Children

    I agree with Beansmom. As sad as it makes me that Emily is so isolated from other children that she would be able to relate to with her disease, I would not permit her to attend a camp like this either. Strict infection control is HARD to maintain even in the clinic/hospital setting, and I...
  13. H

    Summer Camp for CF Children

    I agree with Beansmom. As sad as it makes me that Emily is so isolated from other children that she would be able to relate to with her disease, I would not permit her to attend a camp like this either. Strict infection control is HARD to maintain even in the clinic/hospital setting, and I...
  14. H

    Summer Camp for CF Children

    I agree with Beansmom. <br /> <br />As sad as it makes me that Emily is so isolated from other children that she would be able to relate to with her disease, I would not permit her to attend a camp like this either. Strict infection control is HARD to maintain even in the clinic/hospital...
  15. H

    CF and my son?

    <div class="FTQUOTE"><begin quote>Lucas was tested as a newborn for cystic fibrosis and they said he had the gene that can manifest itself. Which personally i've never heard of.</end quote></div> In your state, if IRT is elevated it's followed up with a genetic test. He is, of course, a carrier...
  16. H

    CF and my son?

    <div class="FTQUOTE"><begin quote>Lucas was tested as a newborn for cystic fibrosis and they said he had the gene that can manifest itself. Which personally i've never heard of.</end quote> In your state, if IRT is elevated it's followed up with a genetic test. He is, of course, a carrier since...
  17. H

    CF and my son?

    <div class="FTQUOTE"><begin quote>Lucas was tested as a newborn for cystic fibrosis and they said he had the gene that can manifest itself. Which personally i've never heard of.</end quote> <br />In your state, if IRT is elevated it's followed up with a genetic test. He is, of course, a carrier...
  18. H

    need to know questions to ask

    It appears that your state does a genetic test for the most common mutations responsible for causing CF if the IRT levels are elevated. This is a much more thorough newborn screen than most states perform (most states only test for elevated IRT levels and as Heather posted, the vast majority of...
  19. H

    need to know questions to ask

    It appears that your state does a genetic test for the most common mutations responsible for causing CF if the IRT levels are elevated. This is a much more thorough newborn screen than most states perform (most states only test for elevated IRT levels and as Heather posted, the vast majority of...
  20. H

    need to know questions to ask

    It appears that your state does a genetic test for the most common mutations responsible for causing CF if the IRT levels are elevated. This is a much more thorough newborn screen than most states perform (most states only test for elevated IRT levels and as Heather posted, the vast majority of...
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