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  1. T

    3 week old with CF

    I can't give you any help with having a CF baby that young. But I would like to say that I was diagnosed at 6 weeks (there was family hostory) and that was almost 27 years ago, before all these wonderful drugs and treatments we have now. I had as close to a normal childhood as a CFer can get. I...
  2. T

    3 week old with CF

    I can't give you any help with having a CF baby that young. But I would like to say that I was diagnosed at 6 weeks (there was family hostory) and that was almost 27 years ago, before all these wonderful drugs and treatments we have now. I had as close to a normal childhood as a CFer can get. I...
  3. T

    3 week old with CF

    I can't give you any help with having a CF baby that young. But I would like to say that I was diagnosed at 6 weeks (there was family hostory) and that was almost 27 years ago, before all these wonderful drugs and treatments we have now. I had as close to a normal childhood as a CFer can get. I...
  4. T

    3 week old with CF

    I can't give you any help with having a CF baby that young. But I would like to say that I was diagnosed at 6 weeks (there was family hostory) and that was almost 27 years ago, before all these wonderful drugs and treatments we have now. I had as close to a normal childhood as a CFer can get. I...
  5. T

    3 week old with CF

    I can't give you any help with having a CF baby that young. But I would like to say that I was diagnosed at 6 weeks (there was family hostory) and that was almost 27 years ago, before all these wonderful drugs and treatments we have now. I had as close to a normal childhood as a CFer can get. I...
  6. T

    i could use your help

    The most important piece of advice I can give is to really listen to your patients! It may sound simple but you would be amazed at how many nurses and doctors don't. You don't know my body better than me. Also if you are dealing with a patient with a chronic condition that you are unfamiliar...
  7. T

    i could use your help

    The most important piece of advice I can give is to really listen to your patients! It may sound simple but you would be amazed at how many nurses and doctors don't. You don't know my body better than me. Also if you are dealing with a patient with a chronic condition that you are unfamiliar...
  8. T

    i could use your help

    The most important piece of advice I can give is to really listen to your patients! It may sound simple but you would be amazed at how many nurses and doctors don't. You don't know my body better than me. Also if you are dealing with a patient with a chronic condition that you are unfamiliar...
  9. T

    i could use your help

    The most important piece of advice I can give is to really listen to your patients! It may sound simple but you would be amazed at how many nurses and doctors don't. You don't know my body better than me. Also if you are dealing with a patient with a chronic condition that you are unfamiliar...
  10. T

    i could use your help

    The most important piece of advice I can give is to really listen to your patients! It may sound simple but you would be amazed at how many nurses and doctors don't. You don't know my body better than me. Also if you are dealing with a patient with a chronic condition that you are unfamiliar...
  11. T

    Letter from doc

    I know I told you in chat Sonia, but just in case anyone else is wondering: the CF legal hotline will send you an example letter for your doc to follow. They can also give you good advise to help you win your case. 1-(800)622-0385.
  12. T

    Letter from doc

    I know I told you in chat Sonia, but just in case anyone else is wondering: the CF legal hotline will send you an example letter for your doc to follow. They can also give you good advise to help you win your case. 1-(800)622-0385.
  13. T

    Letter from doc

    I know I told you in chat Sonia, but just in case anyone else is wondering: the CF legal hotline will send you an example letter for your doc to follow. They can also give you good advise to help you win your case. 1-(800)622-0385.
  14. T

    Letter from doc

    I know I told you in chat Sonia, but just in case anyone else is wondering: the CF legal hotline will send you an example letter for your doc to follow. They can also give you good advise to help you win your case. 1-(800)622-0385.
  15. T

    Letter from doc

    I know I told you in chat Sonia, but just in case anyone else is wondering: the CF legal hotline will send you an example letter for your doc to follow. They can also give you good advise to help you win your case. 1-(800)622-0385.
  16. T

    cf centers in washington

    I don't know about Spokane but I LOVE Seattle! I go the the University of Washington Medical Center. There are 3 attendings there. Dr. Mark Tonnelli (sp?), Dr. Moira Aitken (I see her the most, she's great!), and Dr. Chris Goss (I see him once in a while as he also works at Children's). I...
  17. T

    cf centers in washington

    I don't know about Spokane but I LOVE Seattle! I go the the University of Washington Medical Center. There are 3 attendings there. Dr. Mark Tonnelli (sp?), Dr. Moira Aitken (I see her the most, she's great!), and Dr. Chris Goss (I see him once in a while as he also works at Children's). I...
  18. T

    cf centers in washington

    I don't know about Spokane but I LOVE Seattle! I go the the University of Washington Medical Center. There are 3 attendings there. Dr. Mark Tonnelli (sp?), Dr. Moira Aitken (I see her the most, she's great!), and Dr. Chris Goss (I see him once in a while as he also works at Children's). I...
  19. T

    cf centers in washington

    I don't know about Spokane but I LOVE Seattle! I go the the University of Washington Medical Center. There are 3 attendings there. Dr. Mark Tonnelli (sp?), Dr. Moira Aitken (I see her the most, she's great!), and Dr. Chris Goss (I see him once in a while as he also works at Children's). I...
  20. T

    cf centers in washington

    I don't know about Spokane but I LOVE Seattle! I go the the University of Washington Medical Center. There are 3 attendings there. Dr. Mark Tonnelli (sp?), Dr. Moira Aitken (I see her the most, she's great!), and Dr. Chris Goss (I see him once in a while as he also works at Children's). I...
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