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I would take your CPT cups to your next CF clinic visit or ask for an appointment with the respiratory therapist and show him/her what you are doing. They can either adjust your technique or tell you that you are doing it right. Either way as a new mom you will leave with more confidence...

I have a 14 year old so it's been a long time since I had to stay at the hospital with a little one. I hope you didn't have to be admitted. Best wishes.

I looked into the Affordable Care Plan for my family. If you or your spouses job offer health insurance no matter how high the monthly premiums or how few things are covered or if it has any max out of pocket expense you are not eligible for any subsidy under the Affordable care Act. I work...

We do well with a high deductible health plan. I basically paid m max out of pocket expense with one CF and endocrine appointment. My daughter maxed out our families deductible with one lab work, clinic, medical equipment bill. The rest of the year we pay our high monthly fee and nothing...

You should not hesitate to call you CF clinic if you are worried.

You can look on the www.cff.org website and their is information specific to CRMS. It seems that CRMS is a diagnosis used very differently by different CF clinics, although on the cff website it specifies who should have this diagnosis. For the doctors it allows them to feel comfortable...

I think it is important to be near an accredited CF center, but as for which consider the fact that it is also important to live near a support system for yourself and your husband. Living near grandparents or close friends is important too.

Wow the divorce options is soooo sad, but I have heard CFers get married in a religious ceremony, but not legally with the state for financial reasons.

For both my husband's employer and my employer we now have more options of insurance plans to pick from, but for me all options cost more then last year as far as total out of pocket expense. My husband had one option that was the same and so we chose that option. As far as Obama care my...

This sounds like a dream come true for me. I feel great when on a cruise sleeping with the balcony door cracked open. Too bad my health insurance company won't fund a monthly cruise.

Does your daughter have a 504 plan? Relating school to work I found out the 504 plan lasts through college. I recently had an issue with a family I work with in their home smoking cigarette's inside right before I arrived. My boss allowed me to switch out of the home, but I wasn't sure my...

I hope someone has information as I'm curious also. My daughter had a positive culture for aspergillus, but because 6 months before her culture her IGE was normal we were told she had no allergic reaction to it so no problem. Recently she is having trouble with shortness of breath. She has...

I was wondering about myself just like you a couple of years ago. I have two children. My one daughter's lung function dropped to 50% and my other daughter had a 20% decline in lung function although she declined to the 90s. This led to both of them being tested for CF after I saught a second...

Some people with CF are pancreatic insufficient and that can cause the odd stools. This is tested with a fecal elastase test which is done by dropping off a poop sample at the lab. 11 is considered normal for a sweat test, but was it done at an accredited CF center? Check www.cff.org and make...

I understand what you are saying. I'm 37 with CF and when my husband I married we made the same income. I always intended to be an equal financial contributor, but instead I have chosen and/or been stuck in a part time job because it has benefits, extremely flexible work hours, paid extended...

I have my ears pierced and never had them infected. When I was young I remember using rubbing alcohol to clean my ears and it burned. Now you get cleaning solution meant for ears which doesn't burn. If she is responsible for her meds she should be responsible enough to clean her ears. Go...

Welcome to the forum. I was diagnosed with CF at 35 and now at 37 with proper treatment I feel so much better. My daughter is genetically a CF carrier, but with CF treatments her lung function went from 50% to a high of 100% and holding in the 90s. She also went from being below the zero...

My daughter used to have frequent lung infections. Her pediatrician ordered a sinus CT which to our surprise showed blocked sinuses from infection, inflammation, and nasal polyps. This was prior to her CF treatment. She has sinus surgery making the "windows" and its been two years and so far...

I take albuterol too and yes I get shaky. My daughter switched from Albuterol to Xopenex and she doesn't get shaky or the fast heart rate. Xopenex comes in an I abler and nebulizer form and can be used before hypersal nebs to prevent bronchi spasm or for quick relief during an asthma attack...

Thank for the advice my boss agreed to reassign me. We have 71 employees. I didn't have to tell her about my CF at least not yet.