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  1. J

    One more night oxygen question

    Ayr is wonderful stuff, also KY jelly without any fragrance or additives works well (plain KY), just make sure it is water soluble and not petroleum based. I use my O2 with a humidifier, if you do opt for this, make sure you use sterile water in it and change out the canister frequently to...
  2. J

    hypoglycemia in CF

    Before I became diabetic, I was actually hypoglycemic, quite frequently. I recall an incident when I was working as a CNA on a peds unit, I suddenly became very clammy, shaky and dizzy. The nurse took my sugars and it was 43. That was my first real scare with it, I was about 23 at the time, 10...
  3. J

    Who cooks?

    I enjoy cooking, was brought up to love food! I like to cook asian, my stir fry is pretty good and I make a yummy homemade wonton soup (even the noodles are homemade)... My wok gets alot of use <img src="i/expressions/face-icon-small-smile.gif" border="0"> I also love to make desserts, anything...
  4. J

    PFT Goal's thread. Trying to achieve 60% FEV1.

    You really do look amazing! Such an inspiration! Jenn 40 wCF
  5. J

    2 Year old daughter recently diagnosed with CF

    One thing is certain, CF doesn't present the same in every case...there are over 1600 known mutations for CF, even for people with the same mutations, their disease course could be radically different from each other. I am an adult diagnosis, dx'd at 33. I didn't have the obvious CF symptoms as...
  6. J

    Nurse Case Manager through the ins.company

    Before I went on Medicare, I had United as well and was assigned a case manager too. She was actually a godsend, she made sure I got every medication, necessary equipment, tests, flawless coverage from lengthy hospitalizations etc. This was all before my CF dx, I was very sick nonetheless and...
  7. J

    Nurse Case Manager through the ins.company

    Before I went on Medicare, I had United as well and was assigned a case manager too. She was actually a godsend, she made sure I got every medication, necessary equipment, tests, flawless coverage from lengthy hospitalizations etc. This was all before my CF dx, I was very sick nonetheless and...
  8. J

    Nurse Case Manager through the ins.company

    Before I went on Medicare, I had United as well and was assigned a case manager too. She was actually a godsend, she made sure I got every medication, necessary equipment, tests, flawless coverage from lengthy hospitalizations etc. This was all before my CF dx, I was very sick nonetheless and...
  9. J

    picc line help

    I too had terrible times with PICC lines, my skin hated the tegaderms, would also blister and my dressing had to be changed often because of the irritation that was caused from my sweating skin. I think that is because of our super salty skin..Because of this, bacteria always somehow...
  10. J

    picc line help

    I too had terrible times with PICC lines, my skin hated the tegaderms, would also blister and my dressing had to be changed often because of the irritation that was caused from my sweating skin. I think that is because of our super salty skin..Because of this, bacteria always somehow...
  11. J

    new, pls help

    I would follow dramamama's advice, go to an ER that isn't associated with the VA (such as U of Colorado).....I too fear that he may have a blockage which is an emergency, this should be assessed immediately. They will be able to get the ball rolling as far as his CF goes. Please don't wait until...
  12. J

    new, pls help

    I would follow dramamama's advice, go to an ER that isn't associated with the VA (such as U of Colorado).....I too fear that he may have a blockage which is an emergency, this should be assessed immediately. They will be able to get the ball rolling as far as his CF goes. Please don't wait until...
  13. J

    new, pls help

    I agree that he should go to an ER that has a CF specialist on board. He sounds like he needs a good cleanout, lung wise as well as bowel. He could easily have an obstruction, which is an emergency, please make sure he gets care ASAP. As Aboveallislove said, once hospitalized, the social worker...
  14. J

    new, pls help

    I agree that he should go to an ER that has a CF specialist on board. He sounds like he needs a good cleanout, lung wise as well as bowel. He could easily have an obstruction, which is an emergency, please make sure he gets care ASAP. As Aboveallislove said, once hospitalized, the social worker...
  15. J

    Appartments & smokers....

    Is there any way you can leave and find a place that is smoke free? I know, easier said than done, it is very expensive to move but it may be your only recourse. I wish I could be more help, but it sounds like you need to get out of that situation before something happens to you again. I am...
  16. J

    Appartments & smokers....

    Is there any way you can leave and find a place that is smoke free? I know, easier said than done, it is very expensive to move but it may be your only recourse. I wish I could be more help, but it sounds like you need to get out of that situation before something happens to you again. I am...
  17. J

    weird symptoms near my port

    I would see a doctor about it, when in doubt check it out is what I like to say. Yeah, it could be a pulled muscle, but if you are feeling pulsations in your head when they weren't there before, then I might be concerned.. It could be nothing, but it also might be something. I guess what I am...
  18. J

    weird symptoms near my port

    I would see a doctor about it, when in doubt check it out is what I like to say. Yeah, it could be a pulled muscle, but if you are feeling pulsations in your head when they weren't there before, then I might be concerned.. It could be nothing, but it also might be something. I guess what I am...
  19. J

    Anesthesia issues?

    They have always had to give me more than the usual dose to put me under, novacaine included for the dentist (he is always giving me multiple doses of novacaine just to get through a drill and fill. Wears off so quickly!). I remember the time I had an endoscopy, they had to put massive amounts...
  20. J

    Anesthesia issues?

    They have always had to give me more than the usual dose to put me under, novacaine included for the dentist (he is always giving me multiple doses of novacaine just to get through a drill and fill. Wears off so quickly!). I remember the time I had an endoscopy, they had to put massive amounts...
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