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  1. H

    Who cooks?

    Where you have your images hosted, go there and right click on the image. Select "copy image URL" then paste that URL in the add photo dialogue box here on the forum. You can also specify a size so it's not too big. I think I made mine 300x300.
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    Hypoglycemia and cf....

    If it was her blood sugar and it was low enough that she was unresponsive, she would not have come out of it without glucose. You probably should have called EMS and had them check her blood sugar then just to see what it was. You can always refuse transport if it turns out that she is ok.
  3. H

    hypoglycemia in CF

    My dietitian said to me once that if you're going low you're also probably having spikes. As she explained it, people with CF are usually very sensitive to insulin (although because of atrophy and fatty replacement of the pancreas, we may not produce as much of it). So, you have a spike and...
  4. H

    Acid food and cold water

    You do realize that stomach acid is between 1.5 and 3.5 pH right? Whereas a common acid added to foods is citric acid and is around 6 pH. The human body has a very narrow normal range of pH (7.35-7.45) and is very good at maintaining homeostasis. I have never read any serious medical literature...
  5. H

    Advair

    ^^ Good point.
  6. H

    Nocturnal

    Yeah I'm a night person, but I've been trying very hard to adapt to normal people's schedule.
  7. H

    Advair

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>rubyroselee</b></i> Joni- My new CF doctor just told me about a study that CFers do not benefit from Advair. He wanted me to do a "test" of not taking it for a month prior to one of my clinic visits to see if there was any difference...
  8. H

    Advair

    Yes, there is an HFA version.
  9. H

    Ever dreaded a hospital stay?

    TED.com and Topdocumentaryfilms.com help pass the hours and are so much better than the crap that's on TV.
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    Cayston on vacation

    Send Ennio a PM, so he knows about it.
  11. H

    Symptomatic CF Carriers

    A dominant gene does not always repress every phenotypic expression of the recessive, so as a carrier some CF symptoms are possible. The most common are usually digestive issues and sinus/allergy issues. As others have stated, sometimes it's a matter of an unknown second mutation that isn't caught.
  12. H

    Anyone on Kalydeco seen changes in LFT's?

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>dasjsmum</b></i> Well, as I said, my son is one of the few people in the world who actually has been on Kaly for nearly three years. His LFT improved on Kaly and he has had NO side effects at all, major or minor. There's another young...
  13. H

    Anyone on Kalydeco seen changes in LFT's?

    In a relatively short term study, yes it would seem to infer that. Unfortunately, people will be on Kalydeco for the rest of their lives (given that something better doesn't come along) and we have no data on long term side effects.
  14. H

    Salty Hands

    ^^^ agreed
  15. H

    How are you treating your MRSA?

    <div class="FTQUOTE"><begin quote><em>Originally posted by: <strong>travlinuf</strong></em> Has anyone ever heard of Colloidal Silver to treat MRSA in CF kids? My 2 yr old just cultured MRSA for the first time and a friend said she had luck with Colloidal Silver orally in her teenage CFer. I was...
  16. H

    Who cooks?

    Melissa, I prefer the breast, but you can use thighs(most Indian restaurants do), you can also substitute lamb or shrimp.
  17. H

    Who cooks?

    <img src="http://sphotos.xx.fbcdn.net/hphotos-ash4/c0.0.403.403/p403x403/317937_250624255039645_100002762173229_362601_1491657081_n.jpg" alt="" width="300" height="300" /> The curry was from earlier. Dinner tonight was: Grilled chicken wrap with peanut saytay. 1. tortilla (wheat) 2. Spring...
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    Who cooks?

    Yes, the stuff I get is gluten free.
  19. H

    Who cooks?

    <img src="http://sphotos.xx.fbcdn.net/hphotos-ash4/c0.0.403.403/p403x403/390402_175092745926130_100002762173229_215511_1731785408_n.jpg" alt="" width="300" height="300" /> Chicken Vindaloo: 1. 2-3 boneless, skinless chicken breasts 2. 3 bell peppers (I use red orange and green ususally) 3. 1/2...
  20. H

    Are you continuing HTS for <6?

    Here is the study: http://www.nih.gov/news/health/may2012/nhlbi-21.htm
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