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  1. R

    A mother knows best

    We had a similar experience, but happened in 2009. Ours went on for 3 years (much less than yours) until our daughter was born so so sick that there was no denying it. As soon as we heard CF is about the lungs and digestion, we knew our son had it too. What parent would think those two systems...
  2. R

    Anyone go to Penn, Johns Hopkins, Hershey or Hahnemann Hospital?

    We've had a great experience at Johns Hopkins, but not in the adult section, just children. However, the one thing I don't like is that it's a "teaching hospital" so there are times when we have to explain every detail of every cold to students over and over and over, for their education. Then...
  3. R

    Anyone go to Penn, Johns Hopkins, Hershey or Hahnemann Hospital?

    We've had a great experience at Johns Hopkins, but not in the adult section, just children. However, the one thing I don't like is that it's a "teaching hospital" so there are times when we have to explain every detail of every cold to students over and over and over, for their education. Then...
  4. R

    Anyone go to Penn, Johns Hopkins, Hershey or Hahnemann Hospital?

    We've had a great experience at Johns Hopkins, but not in the adult section, just children. However, the one thing I don't like is that it's a "teaching hospital" so there are times when we have to explain every detail of every cold to students over and over and over, for their education. Then...
  5. R

    CF Storyline on Grey's Anatomy right now!

    If you missed it, you can see it on hulu.com search "grey" It's the most recent episode (obviously!)
  6. R

    CF Storyline on Grey's Anatomy right now!

    If you missed it, you can see it on hulu.com search "grey" It's the most recent episode (obviously!)
  7. R

    CF Storyline on Grey's Anatomy right now!

    If you missed it, you can see it on hulu.com search "grey" It's the most recent episode (obviously!)
  8. R

    Fireplaces and coughing up blood?

    We got an air purifier to put next to the wood stove. It seems to help a lot. <a target=_blank class=ftalternatingbarlinklarge href="http://www.epa.gov/iaq/pubs/insidest.html#Look4">http://www.epa.gov/iaq/pubs/insidest.html#Look4</a>
  9. R

    Fireplaces and coughing up blood?

    We got an air purifier to put next to the wood stove. It seems to help a lot. <a target=_blank class=ftalternatingbarlinklarge href="http://www.epa.gov/iaq/pubs/insidest.html#Look4">http://www.epa.gov/iaq/pubs/insidest.html#Look4</a>
  10. R

    Fireplaces and coughing up blood?

    We got an air purifier to put next to the wood stove. It seems to help a lot. <br /> <br /><a target=_blank class=ftalternatingbarlinklarge href="http://www.epa.gov/iaq/pubs/insidest.html#Look4">http://www.epa.gov/iaq/pubs/insidest.html#Look4</a>
  11. R

    My daughter Samantha

    This is a tough one. I have been teaching for 12 years and have 2 kids with CF. It's a hard situation as a teacher, because you can't just "be out." You have to spend several hours doing the work that you would have done if you were in. Then many more hours checking it. Or you show a movie, and...
  12. R

    My daughter Samantha

    This is a tough one. I have been teaching for 12 years and have 2 kids with CF. It's a hard situation as a teacher, because you can't just "be out." You have to spend several hours doing the work that you would have done if you were in. Then many more hours checking it. Or you show a movie, and...
  13. R

    My daughter Samantha

    This is a tough one. I have been teaching for 12 years and have 2 kids with CF. It's a hard situation as a teacher, because you can't just "be out." You have to spend several hours doing the work that you would have done if you were in. Then many more hours checking it. Or you show a movie, and...
  14. R

    Looking for a great Peds CF Dr in DC area

    DO NOT DO NOT DO NOT DO NOT go to Parnes May and Associates in Columbia, Maryland. They never diagnosed our son, even with 2 hospitalizations, numerous colds and bowel problems, but the age of 3. We were even yelled at by Parnes that, "Children get colds! We will not give you more antibiotics!"...
  15. R

    Looking for a great Peds CF Dr in DC area

    DO NOT DO NOT DO NOT DO NOT go to Parnes May and Associates in Columbia, Maryland. They never diagnosed our son, even with 2 hospitalizations, numerous colds and bowel problems, but the age of 3. We were even yelled at by Parnes that, "Children get colds! We will not give you more antibiotics!"...
  16. R

    Looking for a great Peds CF Dr in DC area

    DO NOT DO NOT DO NOT DO NOT go to Parnes May and Associates in Columbia, Maryland. They never diagnosed our son, even with 2 hospitalizations, numerous colds and bowel problems, but the age of 3. We were even yelled at by Parnes that, "Children get colds! We will not give you more antibiotics!"...
  17. R

    Any Thoughts?

    It could be celiac disease. There is malabsorbtion with that also. You can ask your doctor for a test for it.
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