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  1. R

    Creon enzyme problems

    We had an occupational thearpist for our daughter's eating problems and rejecting food in her mouth. She has no problem now. It took about 4 months, but she was less than two years old. Insurance will usually cover it, or there may be a state or county-wide intervention for children before they...
  2. R

    Creon enzyme problems

    We had an occupational thearpist for our daughter's eating problems and rejecting food in her mouth. She has no problem now. It took about 4 months, but she was less than two years old. Insurance will usually cover it, or there may be a state or county-wide intervention for children before they...
  3. R

    Creon enzyme problems

    We had an occupational thearpist for our daughter's eating problems and rejecting food in her mouth. She has no problem now. It took about 4 months, but she was less than two years old. Insurance will usually cover it, or there may be a state or county-wide intervention for children before they...
  4. R

    Your opinion?

    I think there are times when we feel like it is such a burden and there are times when I wonder if it won't make our kids more compassionate or understanding of differences. I can't say always one feeling or the other. It depends on what is going on. Really, like most things in life it matters...
  5. R

    Your opinion?

    I think there are times when we feel like it is such a burden and there are times when I wonder if it won't make our kids more compassionate or understanding of differences. I can't say always one feeling or the other. It depends on what is going on. Really, like most things in life it matters...
  6. R

    Your opinion?

    I think there are times when we feel like it is such a burden and there are times when I wonder if it won't make our kids more compassionate or understanding of differences. I can't say always one feeling or the other. It depends on what is going on. <br /> <br />Really, like most things in life...
  7. R

    Only 15 years old but will help donate

    Thank you. Every bit helps. The really difficult thing about this disease is that there is no government or drug funding for a cure since it is not worth it for them, economically speaking. But, on the other hand, nothing at all is wrong with the person with CF other than that sodium and salt...
  8. R

    Only 15 years old but will help donate

    Thank you. Every bit helps. The really difficult thing about this disease is that there is no government or drug funding for a cure since it is not worth it for them, economically speaking. But, on the other hand, nothing at all is wrong with the person with CF other than that sodium and salt...
  9. R

    Only 15 years old but will help donate

    Thank you. Every bit helps. The really difficult thing about this disease is that there is no government or drug funding for a cure since it is not worth it for them, economically speaking. But, on the other hand, nothing at all is wrong with the person with CF other than that sodium and salt...
  10. R

    So I am joing Nicole and now am eating sugar-free :)

    I really hope it works. It is helpful to see what others are doing, and especially helpful with DD508. I kind of feel like it's a different situation than other CF because it is so severe-- At least for us it has been. I think high carbs, low sugar is good. Keep us updated on how it goes!! Mom...
  11. R

    So I am joing Nicole and now am eating sugar-free :)

    I really hope it works. It is helpful to see what others are doing, and especially helpful with DD508. I kind of feel like it's a different situation than other CF because it is so severe-- At least for us it has been. I think high carbs, low sugar is good. Keep us updated on how it goes!! Mom...
  12. R

    So I am joing Nicole and now am eating sugar-free :)

    I really hope it works. It is helpful to see what others are doing, and especially helpful with DD508. I kind of feel like it's a different situation than other CF because it is so severe-- At least for us it has been. I think high carbs, low sugar is good. Keep us updated on how it goes!! <br...
  13. R

    Useful website

    Our experience has been that as soon as we say someone is in the hospital again, our friends and family say, "Is there anything I can do? Do you need meals?" If so, then we've said, "Sure that would be helpful. Can I just email you the information and you can decide." We haven't just populated...
  14. R

    Useful website

    Our experience has been that as soon as we say someone is in the hospital again, our friends and family say, "Is there anything I can do? Do you need meals?" If so, then we've said, "Sure that would be helpful. Can I just email you the information and you can decide." We haven't just populated...
  15. R

    Useful website

    Our experience has been that as soon as we say someone is in the hospital again, our friends and family say, "Is there anything I can do? Do you need meals?" If so, then we've said, "Sure that would be helpful. Can I just email you the information and you can decide." We haven't just populated...
  16. R

    Useful website

    Our experience has been that as soon as we say someone is in the hospital again, our friends and family say, "Is there anything I can do? Do you need meals?" If so, then we've said, "Sure that would be helpful. Can I just email you the information and you can decide." We haven't just populated...
  17. R

    Useful website

    Our experience has been that as soon as we say someone is in the hospital again, our friends and family say, "Is there anything I can do? Do you need meals?" If so, then we've said, "Sure that would be helpful. Can I just email you the information and you can decide." We haven't just populated...
  18. R

    Useful website

    Our kids are in the hospital, and a friend introduced us to this site. It's mainly for people who are having a baby and in need of meals, but anyone can use it for any situation when you may need to arrange some help with meals. www.mealbaby.com Mom to 2 w/cf
  19. R

    Useful website

    Our kids are in the hospital, and a friend introduced us to this site. It's mainly for people who are having a baby and in need of meals, but anyone can use it for any situation when you may need to arrange some help with meals. www.mealbaby.com Mom to 2 w/cf
  20. R

    Useful website

    Our kids are in the hospital, and a friend introduced us to this site. It's mainly for people who are having a baby and in need of meals, but anyone can use it for any situation when you may need to arrange some help with meals. www.mealbaby.com Mom to 2 w/cf
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