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Im walking little each day still not doin much better I hope something changes soon for the good thank you for all kind words

Thank you so much for info on pluracy it does hurt and I have been negative for mac for two weeks and the nodules in my lungs are bacterial indused they said I hope all this gets better thanks agian and im concernd bout my wt. Lost 10lbs while in here I have alot to get better hope in time it...

Thank you for all the words of help and support im still in hospital and they told me I have pluracy not sure how to spell it causing me pain when I breath still doin the iv meds and hoping it gets better thank agian everyone hope to give good news soon

Thank you for kind words and encouragment I have a pft this morning cant sleep I worried it hasnt improved Im hoping it has this one is goin to b a long road back thank you all agian

Thats awesome to hear hope u have many more

Still in hospital got to walk little bit today felt good bit goin to b in here for awhile im feeling little better but im worried that it wont reflect on pft but thsnkful im feeling better just hope lungs r doin better

Had pft still really bad its 46 and base is 58 I hope I can get back havimg sweats like printer said it takes awhile to get mac results but im hopefull I just want to breathe agian and get back to were I was never had this big of a drop before got me worried thank u for all the help and messages

Still no word on mac yet they said they have to check sputum for awhile to test for it still having pain in chest on breathing in I have a pft today to see were im at still not feeling very good but hoping I will thank you for all the help ill get back on to tell ya how pfts are hopin the mac is...

They think it might be mac I dont know what that is really or how bad they said think cause cultures havnt come back yet and cause I have nodules in lungs that dont look right I really hope its not any info orhelp I woild appreciate is mac really bad and what damage will it do is it cureable...

Im in hospital at wvu might be goin to upmc soon but my pft went down from 58 to 40 in a month and have a temp of 102.5 and really hurts to breathe they r treating me with normal antibiotics until they know what kind of infection I have on iv tobi and meipenum amd zyvox oral my o2 stats suck to...

That question was for scorp sorry not good at this thing im doin it on phone

Do you have cepica and if u dont mind me askin how is ur lung function thanks

Scorp is correct u will always have it forever even if u dont culture it from time to time in my experiences it suvks I have cepica also witch also sucks multi drug resistant and so hard to treat just have to keep it in check with inhaled antibiotics and iv antibiotics I believe I got mine from...

Doxy and steriods or cipro and steriods but still ask doctor if that is option I cant take doxy make me wqnt to vomit but on and off steriods really helps me

I have had 4 sinus surgies the first 3 went good but the last one was horrific and painful and I hate breathing out of my mouth feels like im suffocating and I feak out for days til they take some packing out I had to stay in hospital for 2 weeks it started bleeding bad u know the puke bucket I...

Im not goin threw this I just wanted to say im praying for you and hope it can get better im sorry I have cf all my life and in last 5 yrs has been a big decline for me im 35yrs old but my lungs are 78yrs old I really hope and pray for a cure and they get the transplants to everyone who needs...

Please keep us posted feel same way hope u feel better

I have depression and anxiety im depressed for years over having this illness and not being able to do everything that I wanted and want to with my life and the anxiety only came on strong bout 8 years ago when my health started to go down and coughing up blood all the time so my anxiety is...

The blood stopped at least for few days my breathing is still not good im goin back to Pittsburgh as soon as I can get up there I hope it gets better thank u for all replies and help very much

Im doin ok but still not were I should b thak u so much for replies and kind words im goin bk to Pittsburgh soon if not better thank u again