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<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>JustDucky</b></i> I've always wondered how they come up with the names of the meds we use..... Jenn 40 w/CF</end quote> Sometimes I think they just play a game of Scrabble and make up a name, or think of one that would fit into a...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>JustDucky</b></i> I've always wondered how they come up with the names of the meds we use..... Jenn 40 w/CF</end quote> Sometimes I think they just play a game of Scrabble and make up a name, or think of one that would fit into a...

I think there is a lot of awareness already out there. I wouldn't say that we're shunning the disease off to the side at all. Maybe it's just the area you live in, but from what I've experienced a lot of people know about the disease (maybe not expertly, but they've heard of it). There's just...

I think there is a lot of awareness already out there. I wouldn't say that we're shunning the disease off to the side at all. Maybe it's just the area you live in, but from what I've experienced a lot of people know about the disease (maybe not expertly, but they've heard of it). There's just...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>cfsucks</b></i> how come more people aren't chiming in on the drug? are there so few people on it?</end quote> Probably because it's so bloody expensive. I was just talking with my mother about this and asked her how in the world...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>cfsucks</b></i> how come more people aren't chiming in on the drug? are there so few people on it?</end quote> Probably because it's so bloody expensive. I was just talking with my mother about this and asked her how in the world...

No, I am not pregnant nor intend to become so for a very long time, but this question has always floated around in my mind. How does pregnancy affect a meconium ileus scar? I had the surgery as a baby and of course have the lovely 6 inch scar right across my abdomin, above my belly button, as...

what really surprised me is that the CF clinic in Tucson didn't seem to have any idea about this. I just had an appointment yesterday and they just said, "If you have any problems getting your Cayston (due to insurance, they hate me) call us!" Not a word about what's going on. And once drugs...

what really surprised me is that the CF clinic in Tucson didn't seem to have any idea about this. I just had an appointment yesterday and they just said, "If you have any problems getting your Cayston (due to insurance, they hate me) call us!" Not a word about what's going on. And once drugs...

So, just tried to refill my cayston and was told by the CF pharmacy that there's a "maufacturing issue" as of last week (a.k.a a shortage) and that GILEAD is only giving cayston to those who have had 2 rounds in the last 6 months or another specific group of people. For some reason they say I...

So, just tried to refill my cayston and was told by the CF pharmacy that there's a "maufacturing issue" as of last week (a.k.a a shortage) and that GILEAD is only giving cayston to those who have had 2 rounds in the last 6 months or another specific group of people. For some reason they say I...

Hello, While I'm not exactly PS, I'd say I'm pretty darn close. Odly enough my pancreas seems to have gotten better as I've gotten older (likewise m lungs were great, but are taking the heat now). As a kid, god forbid I forgot enzymes because I'd be hurting the next day. Now, I can miss an...

Hello, While I'm not exactly PS, I'd say I'm pretty darn close. Odly enough my pancreas seems to have gotten better as I've gotten older (likewise m lungs were great, but are taking the heat now). As a kid, god forbid I forgot enzymes because I'd be hurting the next day. Now, I can miss an...

I went to public school up until 10th grade, when I transferred to a private high school for non-CF related reasons. The main "issue" was enzymes, but that was really a non-issue. The school nurse was familiar with me and I'd just pop in after lunch, take my pills, show off that I didn't need...

I went to public school up until 10th grade, when I transferred to a private high school for non-CF related reasons. The main "issue" was enzymes, but that was really a non-issue. The school nurse was familiar with me and I'd just pop in after lunch, take my pills, show off that I didn't need...

The 2 times I've had bronchs done I've had interesting experiences, but love them all the same. The 1st time I felt like I'd been hit by a truck afterwards in my chest, but it was a thorough cleaning. I also bit down on the scope (equals more anesthetic=headache for 3 days). The 2nd time I...

The 2 times I've had bronchs done I've had interesting experiences, but love them all the same. The 1st time I felt like I'd been hit by a truck afterwards in my chest, but it was a thorough cleaning. I also bit down on the scope (equals more anesthetic=headache for 3 days). The 2nd time I...

issues with generic could also be from the power of suggestion--you think it may be lesser quality, so it seems off to you. I've done every type of hypertonic solution under the sun and they all seem the same. If I don't do them for awhile, then start up again I'll get a sore throat until I get...

I don't have any personal experience with permanent ports, but from what I understand and have experienced with PICC lines is that anything with direct access to your bloodstream comes with risks of introducing bacteria. If there's a clot it could break off and a pulmonary embolism (which could...

I don't have any personal experience with permanent ports, but from what I understand and have experienced with PICC lines is that anything with direct access to your bloodstream comes with risks of introducing bacteria. If there's a clot it could break off and a pulmonary embolism (which could...