Search results

  1. R

    HTS ineffective

    Yes, it is 7% and not .7%. And thank you all, we will talk to our pulmonoligist/CF team as soon as possible. rosesixtyfivemother of Sam (ddF508, 2 years old)
  2. R

    HTS ineffective

    Yes, it is 7% and not .7%. And thank you all, we will talk to our pulmonoligist/CF team as soon as possible. rosesixtyfivemother of Sam (ddF508, 2 years old)
  3. R

    HTS ineffective

    I will certainly talk to my doctor about it. I definitely want to keep him safe. Sam cultured pseudomonas at 5 months old. He is now 2 years old and has been clear for a while. The doctors put him on .7% because of his early pseudo cultures. (Along with an active schedule of Cayston/Tobi and...
  4. R

    HTS ineffective

    I will certainly talk to my doctor about it. I definitely want to keep him safe. Sam cultured pseudomonas at 5 months old. He is now 2 years old and has been clear for a while. The doctors put him on .7% because of his early pseudo cultures. (Along with an active schedule of Cayston/Tobi and...
  5. R

    HTS ineffective

    My son is two and I do believe we will still use it. If there's a chance it would postpone lung damage, we're going to keep it in the schedule of daily meds.rosesixtyfive,mother of Sam (DDf508, 2 years old)
  6. R

    HTS ineffective

    My son is two and I do believe we will still use it. If there's a chance it would postpone lung damage, we're going to keep it in the schedule of daily meds.rosesixtyfive,mother of Sam (DDf508, 2 years old)
  7. R

    Airline travel

    So, you guys think the big machine that goes with the vest and the nebulizer should come with us as carry-on luggage? I know the machine that goes with the vest is worth lots and lots of money. So, we should keep it with us?
  8. R

    Airline travel

    So, you guys think the big machine that goes with the vest and the nebulizer should come with us as carry-on luggage? I know the machine that goes with the vest is worth lots and lots of money. So, we should keep it with us?
  9. R

    Airline travel

    Hi, All,We are taking a vacation ina few days, and it is our first time on an airplane with a child with CF, also an albuterol puffer. I want to carry the meds with me in a small lunch bag. Sam takes Tobi, HTS, Pulmozyme and enzymes daily. I don't want the medicine with the other luggage because...
  10. R

    Airline travel

    Hi, All,We are taking a vacation ina few days, and it is our first time on an airplane with a child with CF, also an albuterol puffer. I want to carry the meds with me in a small lunch bag. Sam takes Tobi, HTS, Pulmozyme and enzymes daily. I don't want the medicine with the other luggage because...
  11. R

    Healthy Restaurant Foods

    <br>Our lives are very busy, but I won't Sam to eat healthy foods.  We go out to eat a lot.  That is good because the foods are fattening and full of salts, but what restaurant foods (fast and sit-down) have you found to be nutritious, fattening, and full of the right kind of fats - not...
  12. R

    Healthy Restaurant Foods

    <br>Our lives are very busy, but I won't Sam to eat healthy foods. We go out to eat a lot. That is good because the foods are fattening and full of salts, but what restaurant foods (fast and sit-down) have you found to be nutritious, fattening, and full of the right kind of fats - not...
  13. R

    Healthy Restaurant Foods

    <br>Our lives are very busy, but I won't Sam to eat healthy foods. We go out to eat a lot. That is good because the foods are fattening and full of salts, but what restaurant foods (fast and sit-down) have you found to be nutritious, fattening, and full of the right kind of fats - not...
  14. R

    Bronchitol and Denufosol

    Did I understand this correctly - Denufosol wasn't working and they had to reconfigure, but Bronchitol is still in the running? Anyone have any idea if they will be any more beneficial than HTS? Do you think either drug has the potential to have a great impact? Thanks, rosesixyfive, mother of...
  15. R

    Bronchitol and Denufosol

    Did I understand this correctly - Denufosol wasn't working and they had to reconfigure, but Bronchitol is still in the running? Anyone have any idea if they will be any more beneficial than HTS? Do you think either drug has the potential to have a great impact? Thanks, rosesixyfive, mother of...
  16. R

    Bronchitol and Denufosol

    Did I understand this correctly - Denufosol wasn't working and they had to reconfigure, but Bronchitol is still in the running? Anyone have any idea if they will be any more beneficial than HTS? Do you think either drug has the potential to have a great impact? <br />Thanks, <br...
  17. R

    Praying Moms

    I don't think this has been a very popular thread, but I wanted to know if there are any moms who would like to pray with me? Today, I would like to pray that all of our children have a great Saturday. That the children and their families have a day that is relatively free of CF concerns...
  18. R

    Praying Moms

    I don't think this has been a very popular thread, but I wanted to know if there are any moms who would like to pray with me? Today, I would like to pray that all of our children have a great Saturday. That the children and their families have a day that is relatively free of CF concerns...
  19. R

    Praying Moms

    I don't think this has been a very popular thread, but I wanted to know if there are any moms who would like to pray with me? Today, I would like to pray that all of our children have a great Saturday. That the children and their families have a day that is relatively free of CF concerns...
  20. R

    Skye needs our help

    I hope I don't seem naive, but I wish that Skye's mother lived in a place where she could get some financial assistance. No one should have to spend the majority of their time keeping their child alive and worry about keeping their homes, cars, providing a good life for their children. I would...
Top