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The point is, they don't know for sure that the drug isn't dangerous. So they don't want to give you a drug that could harm you unless you really really need it. It's a safety issue. Not an efficacy issue. Edit : Oh wait, I had already replied... What's ridiculous is the duplication of the...

If he said that one of your mutations is uncommon, it is likely not DF508, because it's the most common mutation.

One thing I'm very interested in is, did you notice anything in the amount of saliva in your mouth? I've been suspecting that in the end, how I always find some types of foods (meat, cake) too dry to eat might not be a whim, but a genuine lack of saliva. Also, eye dryness and if you are a woman...

Even at 23, I'm very very bad at noticing whether meds make a difference or not for me, unless it's very very obvious (like taking antibiotics) or I pay very close attention BEFORE so I can compare after. Some people just aren't very self-aware. Maybe you should make her run? (Once she got over...

<div class="FTQUOTE"><begin quote><em>Originally posted by: <strong>Incomudrox</strong></em> Azithromycin is not used to increase FEV1. Azithromycin, even though it is an antibiotic is not used as an antibiotic in Cystic Fibrosis patients. Azithromycin is used in CF patients because it inhibits...

My doctor gave me a regimen of prednisone to take for 2 and a half week. It went like this : Using 5mg caplets 8 caplets x 3 days6 caplets x 3 days4 caplets x 3 days3 caplets x 3 days2 caplets x 3 days1 caplets x 3 daysExcept that instead of doing 2 caplets for 3 days, I did 2 caplets x 1 day...

Vitamin D : UV lamp.

<div class="FTQUOTE"><begin quote><em>Originally posted by: <strong>jacobus</strong></em> The strange thing is that it only happens when I first lay down at night. I would then bring up 3 or 4 mouths full of pure blood (sometimes a bit more), however it would always stop fairly quickly...

I read other people taking vitamin K too... let me see... ah, yes! According to google, gotu kola is rich in vitamin K! So it makes a lot of sense.

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>musclemania70</b></i> one other thing that i'm not sure other countries have is LOBBYISTS. America is notorious for them and the gov't will only do what they are pressured to do by lobbyists. THEY'RE the ones that call the shots.</end...

I sent an email to my representative to ask him whether he will agree to present a petition to create a new class of drugs for breakthrough drugs, speed up the approval process of drugs in that new class and facilitate the access to these drugs under the Special Access Programme. Should he...

I find that my adherence to a therapy will directly depend on how much of a tangible difference it makes. If it doesn't make a difference that I can feel, I just don't remember taking/doing it.

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>robert321</b></i> The big problem in all of this is "who is going to pay for drug development?" Its a business just like anything else and it must make money or it will not do the work. Yes there is a problem but cutting the money out...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>all4Eden</b></i> You need to read this healthcare bill and look at the Canadian and European. Understand that this president along with his entourage, has a very heavy socialist agenda. To my understanding, the middle class is going...

<div class="FTQUOTE"><begin quote><em>Originally posted by: <strong>ymikhale</strong></em> <div class="FTQUOTE"><begin quote><em>Originally posted by: <strong>jaimers</strong></em> I go to UNC and they are doing the PTC124 trials there. I'm still trying to see if I can figure out my schedule...

ryry11, studies show that oral vitamin D does very very little to increase the vitamin D levels in the blood of CFers. Another recent study has also found that using a solar lamp might have better effects on vitamin D levels in the blood. You might want to go that way if you can afford it. <a...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>AnnieT</b></i> We moved here to another state and I need to start over with drs. I needed a new Primary care dr. I saw her the other day and it was a awful experience <img title="Frown"...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>scarecrow</b></i> I'm going to put in my 2 cents worth and I hope I don't step on too many toes. It is impossible to imagine that the repeated use of very strong anti-biotics wouldn't have dramatic and often terrible effects on your...

I would have no problem with cutting out everything you mentioned Tisha, but cheese? Oh god no! Please! I'm french Canadian. I need cheese! Hahahahaha.

Joint pain... are you sure it's not a reaction to an antibiotic? I had noticed the last 4 IV courses or so that I was getting worse after an IV course than I did before... turned out I was allergic to Tazobactam. The allergy was mild enough that I wouldn't realize until I was done that it had...