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Wow I can't believe what you have been through. We were seeking a diagnosis at the same time for our children. My daughter remains in limbo and I found out I have CF. I worried about situation often. I am so happy you have good doctor's now. I'm so sorry you had such a tough journey. Jen

My daughter is 12 and in CF diagnostic limbo for 18 months. I have CF. Her PFTs 18 months ago were FEV1 55% and FEF 25-75 was 28%. A year later her FEV1 was 111% and her FEF 25-75 was 115% thanks to teh best doctor and to her vest and hypersal and antibiotics. However, at her clinic appointment...

We have the Pari S Trek compressor and it worked well for vacation. It comes with house and car plugs and a battery can be purchased as well. You can use any Pari neb cups you already use with it. As for the VMT we bought an Omron when we thought our daughter had asthma before CF treatment...

I just got diagnosed with CF and started hypersal. I started with 3% and it cleaned out my lungs well. I use 2 dixie cups per treatment now to spit innow that I started 7% but feel great after the treatment. I did have to start using albuterol before the hypersal too as my doctor put it "to...

I wish you the best at your appointment tomorrow. You came to a great place for support. You are correct your baby has a 25% of having CF, 50% chance of being a carrier, and 25% chance of having no CFTR mutations. I don't have the gene combination you mentioned, but my understanding is that...

Jenn I am definately in shock and hope to feel better with more energy as soon as possible.

I forgot to mention I think what saved my lungs for so long was cross country running junior high and high school followed by required running for the military. My symptoms got worst on bed rest with my daughter who is 10 and I just never seemed to recover lung or sinus wise.

Welshwitch, my symptoms were chronic sinus infection, constant mucus despite 4 1/2 years of allergy shots, recurring pneumonia and bronchitis, and asthma diagnosis. It turns out according my PFTs I have no asthma component as my lung disease is obstructive with no improvement with albuterol...

I am 36 years old and I was diagnosed with CF yesterday. It explains all of my symptoms. Has anyone else been diagnosed because of their children's testing. each of my children have a different mutation and apparently they both came from me verses my husband.

Sorry I don't have advice, but I want to praise your effort. I hope I raise my children to care for each other as much as you care for your sister.

I had a sleep study and since I live in a different state then my pulmonologist he suggested I look locally to do the test. I called my health insurance company and they provided a list of places I could chose from. You may be able to call your health insurance company for a company that...

My daughter has a splatter paint skin it on her vest machine and after a year of traveling with it we see no signes of age.

Here are a few links that caused me to ask if anyone knew about sweat test results varrying with menstrual cycle. Cigna Health Insurance site: http://www.cigna.com/individualandfamilies/health-and-well-being/hw/medical-tests/sweat-test-hw5781.html . Adults generally have higher salt...

Looking at my insurance website I read adult women's sweat test results can varry greatly depending on the time of the month compared to her menstrual cycle. Has anyone heard of this? Have you redone sweat tests with very different results? Do clinical trials consider this for before and after...

I read on my insurance website about adult women's sweat test results changing greatly depending ont the time of the month compared to her menstrual cycle. does anyone know about this?

Maybe you can go to the ER of the CF center you choose in San Antonio. If you get a consult from the CF pulmonologist, then they may consider you a current patient which would make it easier to get a follow-up appointment. I hope you feel better.

My daughter had bronchocospy with sinus surgery, so her recovery was quite different. If your throat burns it could be from the breathing tube making your throat sore. If you are concerned you should call the on-call doctor and just be sure you are OK. You posted in the young people section...

I have a different story, but definately recommend you both get tested. My daughter is in CF diagnostic limbo for more than 1 1/2 years. I am very thankful that she has the most wonderful doctor who treats her for CF and the treatments work (Hypersal, anitbiotics including IV, vest for mucus...

Many preyers for peace for the family.

My genetic results were completed by Ambry while my daughter's testing was done by another company. If mom has v470 polymorphism on each gene does the child have to have a v470 polymorphism or could the child have a m470v polumorphism. I realize the polymorphisms themselves may not be...