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Wonderful information.....As far as yeast goes, I know it has gone systemic with me at times especially whenever I am on high dose, multiple antibiotics. Thankfully, the ID doc treats that as well because I do get symptomatic, it messes with my immune system big time. Carly, definitely look...

Wonderful information.....As far as yeast goes, I know it has gone systemic with me at times especially whenever I am on high dose, multiple antibiotics. Thankfully, the ID doc treats that as well because I do get symptomatic, it messes with my immune system big time. Carly, definitely look...

To get your strips covered your doc should change your dx to diabetes..I agree, those strips are very expensive! Mine are covered because my doctor stated to the supply company that I have diabetes, so I get plenty of strips, lancets and even free monitors because of that.. As far as your O2...

To get your strips covered your doc should change your dx to diabetes..I agree, those strips are very expensive! Mine are covered because my doctor stated to the supply company that I have diabetes, so I get plenty of strips, lancets and even free monitors because of that.. As far as your O2...

I PM'd you....I am so sorry that your daughter has this as well as CF issues, pain control becomes that much harder when you have two problems that can cause serious pain. GERD is huge with EDS as well as with CF, I have severe reflux disease because of having both of these disorders. As I have...

I PM'd you....I am so sorry that your daughter has this as well as CF issues, pain control becomes that much harder when you have two problems that can cause serious pain. GERD is huge with EDS as well as with CF, I have severe reflux disease because of having both of these disorders. As I have...

Sending you guys hugs...I'm so sorry that Michah has had such a rough road. It just isn't fair,....I hope the new IV plan slows his progression, he is just so fragile. I wish I had more to offer, but just know that all of you are in my thoughts and prayers. Jenn 40 w/CF

Sending you guys hugs...I'm so sorry that Michah has had such a rough road. It just isn't fair,....I hope the new IV plan slows his progression, he is just so fragile. I wish I had more to offer, but just know that all of you are in my thoughts and prayers. Jenn 40 w/CF

Have they cultured you for MAC or done a bronch to get a really good sample to make sure they aren't missing any new bugs? If not, then they should...that's a huge drop, there has got to be a reason. Also, do you grow out Aspergillus (fungus)? That can cause really bad reactive airway problems...

Have they cultured you for MAC or done a bronch to get a really good sample to make sure they aren't missing any new bugs? If not, then they should...that's a huge drop, there has got to be a reason. Also, do you grow out Aspergillus (fungus)? That can cause really bad reactive airway problems...

That would be your best bet, get the genetics screening, make sure it is the comprehensive full panel and not the 50 mutation panel (there are over 1600 mutations, Ambry has a test that screens for all of them as well as looks for novel mutations)....I am sure that your son will also get a sweat...

That would be your best bet, get the genetics screening, make sure it is the comprehensive full panel and not the 50 mutation panel (there are over 1600 mutations, Ambry has a test that screens for all of them as well as looks for novel mutations)....I am sure that your son will also get a sweat...

Oh...wow! That does take the cake...never heard of the vest causing cancer from the shaking. Sounds like dad is in serious denial of your son's CF. So sad because Ty suffers, not him. He should not be allowed to be with him alone until he learns to be compliant with your son's treatments. Just...

Oh...wow! That does take the cake...never heard of the vest causing cancer from the shaking. Sounds like dad is in serious denial of your son's CF. So sad because Ty suffers, not him. He should not be allowed to be with him alone until he learns to be compliant with your son's treatments. Just...

Awesome that you were approved, that is a huge weight off of your chest no doubt! Sorry that you need it, but this will help you in the long run financially...it's just one less thing to think about. Jenn 40 w/CF

Awesome that you were approved, that is a huge weight off of your chest no doubt! Sorry that you need it, but this will help you in the long run financially...it's just one less thing to think about. Jenn 40 w/CF

(((Marie))), I have been following your journey for the last 5 years and you certainly have had it rough! I'm sorry that your left eye has decreased in vision, but happy that your right eye hasn't changed. Hang in there, I pray that your eyes remain fungus free and that the vision doesn't get...

(((Marie))), I have been following your journey for the last 5 years and you certainly have had it rough! I'm sorry that your left eye has decreased in vision, but happy that your right eye hasn't changed. Hang in there, I pray that your eyes remain fungus free and that the vision doesn't get...

Oh wow Matt! So sorry about your experience with that pain clinic....awful! Can you go elsewhere? Don't give up, I know you feel hopeless and frustrated now but keep searching until you find relief. Unfortunately there are many doctors out there who do not take pain seriously, I am surprised...

Oh wow Matt! So sorry about your experience with that pain clinic....awful! Can you go elsewhere? Don't give up, I know you feel hopeless and frustrated now but keep searching until you find relief. Unfortunately there are many doctors out there who do not take pain seriously, I am surprised...