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  1. J

    When you're sick...would love input

    Sounds like you could have broken or dislocated your rib Matt.....I hope your visit gets somewhere. Fingers crossed for you Jenn 40 wCF
  2. J

    Ototoxcity

    Mine would be borderline for the most part, not terribly high....so it kind of surprised my doc that I had such bad symptoms. I think that maybe once it was high and I had to readjust, but that was early in my treatment. I really hope you don't have to stop this one, I know you have a long road...
  3. J

    Ototoxcity

    I had this problem with Gent....I was on it for 5 weeks when the ringing and pressure started. It progressed quickly to balance problems, I could barely walk and I had terrible nausea. That was last April, the only residual issues that I have now is that I can't turn my head too quickly or I...
  4. J

    When you're sick...would love input

    If it is a dull achy type pain, then yes. I attribute that type of pain from the mucus plugs, they always seem to cause discomfort. I can literally feel where they are in my chest. Also, if you are coughing alot, then perhaps it could be muscle pain. If you press on the affected area and it...
  5. J

    When you're sick...would love input

    If it is a dull achy type pain, then yes. I attribute that type of pain from the mucus plugs, they always seem to cause discomfort. I can literally feel where they are in my chest. Also, if you are coughing alot, then perhaps it could be muscle pain. If you press on the affected area and it...
  6. J

    When you're sick...would love input

    Lately, yes....In fact, that is one indicator that I need IV's. I will be okay one day,but the next, I have run fevers in the 103 range and just be very sick. It is so scary that it hits so quickly now, no real warning signs like it used to be. In the past, my decline would be more...
  7. J

    When you're sick...would love input

    Lately, yes....In fact, that is one indicator that I need IV's. I will be okay one day,but the next, I have run fevers in the 103 range and just be very sick. It is so scary that it hits so quickly now, no real warning signs like it used to be. In the past, my decline would be more...
  8. J

    PLEASE READ - I really need help

    Wow....how frustrating! Do you have a GP yet? If you do, he or she may be able to pull a few strings and get you into the CF center earlier because you are ill. I am amazed that the CF center wont take you earlier now that you have a significant exacerbation, clearly the present docs have NO...
  9. J

    PLEASE READ - I really need help

    Wow....how frustrating! Do you have a GP yet? If you do, he or she may be able to pull a few strings and get you into the CF center earlier because you are ill. I am amazed that the CF center wont take you earlier now that you have a significant exacerbation, clearly the present docs have NO...
  10. J

    Muscle and Joint Pain/severe exhaustion

    I'm so sorry Matt.....please don't give up though. It took at 3 different rheumy's, a geneticist and finally, the help of a wonderful GP to get my pain diagnosed, taken seriously and treated. I hope that won't be the case for you, but the moral of the story is, just keep moving on until you get...
  11. J

    Muscle and Joint Pain/severe exhaustion

    I'm so sorry Matt.....please don't give up though. It took at 3 different rheumy's, a geneticist and finally, the help of a wonderful GP to get my pain diagnosed, taken seriously and treated. I hope that won't be the case for you, but the moral of the story is, just keep moving on until you get...
  12. J

    I was chosen as a finalist for a contest

    Done! Fingers crossed for you! Jenn 40 w/CF
  13. J

    I was chosen as a finalist for a contest

    Done! Fingers crossed for you! Jenn 40 w/CF
  14. J

    Muscle and Joint Pain/severe exhaustion

    Hi Matt....been wondering how you made out. Good that you are seeing a rheumy...they will do a very thorough exam, looking at your skin, your joints, range of motion, take a detailed history of your symptoms (when they are worse, what makes it better etc.) and will more than likely draw labs to...
  15. J

    Muscle and Joint Pain/severe exhaustion

    Hi Matt....been wondering how you made out. Good that you are seeing a rheumy...they will do a very thorough exam, looking at your skin, your joints, range of motion, take a detailed history of your symptoms (when they are worse, what makes it better etc.) and will more than likely draw labs to...
  16. J

    Late Diagnosis

    Wow azmaveth.....what is going to happen as far as being in the Marines now that you have a CF dx? I was 33 when I was dx'd (am 40 now) and remember the shock and feeling overwhelmed from all of the new treatments that I now had to do (vest, pulmozyme, Creon etc). This is a great forum to vent...
  17. J

    Late Diagnosis

    Wow azmaveth.....what is going to happen as far as being in the Marines now that you have a CF dx? I was 33 when I was dx'd (am 40 now) and remember the shock and feeling overwhelmed from all of the new treatments that I now had to do (vest, pulmozyme, Creon etc). This is a great forum to vent...
  18. J

    How did you know?

    I base the number of enzymes on fat content as not taking enough of them for a fatty meal would make me most miserable. I am not severely PI at all, moderately so, perhaps more on the milder spectrum because I am able to maintain even gain weight . If I eat a greasy meal like pizza, then those...
  19. J

    How did you know?

    I base the number of enzymes on fat content as not taking enough of them for a fatty meal would make me most miserable. I am not severely PI at all, moderately so, perhaps more on the milder spectrum because I am able to maintain even gain weight . If I eat a greasy meal like pizza, then those...
  20. J

    Back into the hospital tonight

    It never ends, does it? Sending many prayers and healing vibes Micah's way...I'm sorry that he is back in after only being out a month. Thinking of you guys too, this all has to be so hard! Hugs, Jenn 40 w/CF
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