Search results

Wow....that's a huge mix up! Whenever I pick up my meds, I always take a good look at them, if they look different than what I am used to seeing, I always ask the pharmacist. Sometimes it is just another company making the same drug....but you never know! I have been given the wrong strength of...

When you say shaky hungry, I thought about blood sugars.....get them checked out. Diabetes will cause hunger and weight loss. If it turns out that it isn't a sugar problem, then yes, it is possible to malabsorb despite using enzymes. You may need more of them......I guess what I am saying is to...

When you say shaky hungry, I thought about blood sugars.....get them checked out. Diabetes will cause hunger and weight loss. If it turns out that it isn't a sugar problem, then yes, it is possible to malabsorb despite using enzymes. You may need more of them......I guess what I am saying is to...

Bronchitis can hurt, it is a deep seated ache that intensifies with coughing for me. Keep an eye on it, if you feel like you are getting worse, see someone as soon as possible. For instance, if you are continually spiking fevers, feel short of breath, feel worse in general, don't hesitate to go...

Bronchitis can hurt, it is a deep seated ache that intensifies with coughing for me. Keep an eye on it, if you feel like you are getting worse, see someone as soon as possible. For instance, if you are continually spiking fevers, feel short of breath, feel worse in general, don't hesitate to go...

The one thing I always say regarding problems with ports is that it should be checked out if it is something out of the norm. I have never personally experienced what you are describing, but it sure sounds odd. I would get it checked, it could be anything from a clot to the catheter being...

The one thing I always say regarding problems with ports is that it should be checked out if it is something out of the norm. I have never personally experienced what you are describing, but it sure sounds odd. I would get it checked, it could be anything from a clot to the catheter being...

You definitely need the full sequencing, you could have a rarer mutation. For sure, you have the DF508.....the other one might take a bit of digging if you do indeed have CF.. Make sure you go to an accredited center for testing and evaluation. Have you ever had a sweat test done? That will...

You definitely need the full sequencing, you could have a rarer mutation. For sure, you have the DF508.....the other one might take a bit of digging if you do indeed have CF.. Make sure you go to an accredited center for testing and evaluation. Have you ever had a sweat test done? That will...

I should add that I don't take this med anymore....just steroids on occasion for swelling and painful joints and pain meds chronically. I had too many side effects from it, it did its job well though and fixed the inflammation of my vessels.

I should add that I don't take this med anymore....just steroids on occasion for swelling and painful joints and pain meds chronically. I had too many side effects from it, it did its job well though and fixed the inflammation of my vessels.

Years ago I was put on MTX because of my joints and vasculitis (I had chronic headaches as a result of the inflammation of my vessels).This was the absolute last resort...they had tried Plaquenil first and then the MTX. Mind you , this was before my CF dx. It works to suppress the immune...

Years ago I was put on MTX because of my joints and vasculitis (I had chronic headaches as a result of the inflammation of my vessels).This was the absolute last resort...they had tried Plaquenil first and then the MTX. Mind you , this was before my CF dx. It works to suppress the immune...

As far as showering, I use saran wrap and a generous amount of tape on all corners, but I also purchased a hand held shower which helped tremendously! That way I can direct the stream anywhere I want and away from the dressing. This system has worked well for the years I have had the...

As far as showering, I use saran wrap and a generous amount of tape on all corners, but I also purchased a hand held shower which helped tremendously! That way I can direct the stream anywhere I want and away from the dressing. This system has worked well for the years I have had the...

I get redman's as well and feel similar sensations along with severe itching of my scalp, hands and feet (not to mention the scarlet red that my skin turns). Benedryl will definitely help with that.....also, you might want to slow down the infusion. Jenn 40 wCF

I get redman's as well and feel similar sensations along with severe itching of my scalp, hands and feet (not to mention the scarlet red that my skin turns). Benedryl will definitely help with that.....also, you might want to slow down the infusion. Jenn 40 wCF

It does take some getting used to, but you will adjust.. You will find that it will be much easier to deal with than a PICC. I hope that the IV"s do their job and you feel better soon! If you have any specific issues, give a shout and someone from the elite port club can help you out. Hang in...

It does take some getting used to, but you will adjust.. You will find that it will be much easier to deal with than a PICC. I hope that the IV"s do their job and you feel better soon! If you have any specific issues, give a shout and someone from the elite port club can help you out. Hang in...

Sounds like you could have broken or dislocated your rib Matt.....I hope your visit gets somewhere. Fingers crossed for you Jenn 40 wCF