Search results

It never ends, does it? Sending many prayers and healing vibes Micah's way...I'm sorry that he is back in after only being out a month. Thinking of you guys too, this all has to be so hard! Hugs, Jenn 40 w/CF

Infuriated!..Respiratory nurse takes my neb cups and washes them in sink and goes to put them in the bag hanging for next treatment???? I would "accidentally" throw them in the trash bin, that way they HAVE to give new ones. Especially being in a hospital that is more germ laden than your own...

Infuriated!..Respiratory nurse takes my neb cups and washes them in sink and goes to put them in the bag hanging for next treatment???? I would "accidentally" throw them in the trash bin, that way they HAVE to give new ones. Especially being in a hospital that is more germ laden than your own...

I am happy that you won that battle~! Sometimes they make it so hard, sounds like you have been through the wringer with this one. Congrats, now that is one less thing to worry about. Do you have continuing problems with your clinic? If so, maybe you should look into switching if it is...

I am happy that you won that battle~! Sometimes they make it so hard, sounds like you have been through the wringer with this one. Congrats, now that is one less thing to worry about. Do you have continuing problems with your clinic? If so, maybe you should look into switching if it is...

I think it is awesome that she is being as proactive as she is being right now and at least trying to find answers. I don't know many 15 year olds who actually do that....and those who are, they certainly are in the minority. At this time in life, parents are and should be a huge part in a...

I think it is awesome that she is being as proactive as she is being right now and at least trying to find answers. I don't know many 15 year olds who actually do that....and those who are, they certainly are in the minority. At this time in life, parents are and should be a huge part in a...

I think something is being missed, I agree with the above posters. Just because a culture is negative doesn't mean that there aren't any bacteria present in your lungs. You probably aren't giving good samples or the bacteria are hiding in the deep recesses of your lungs. Your doc definitely...

I think something is being missed, I agree with the above posters. Just because a culture is negative doesn't mean that there aren't any bacteria present in your lungs. You probably aren't giving good samples or the bacteria are hiding in the deep recesses of your lungs. Your doc definitely...

Good to know....The last apt I rented definitely had mold. You could smell it....the basement was a dirt basement (the house was really old and wasn't kept up as well as it should have been). Unfortunately, when I moved, it was during the winter months when things dry out so I didn't realize how...

Good to know....The last apt I rented definitely had mold. You could smell it....the basement was a dirt basement (the house was really old and wasn't kept up as well as it should have been). Unfortunately, when I moved, it was during the winter months when things dry out so I didn't realize how...

I've had a few bronchs done, mine were a little different as I already have a trach, so that's where they went down with mine. I was also lightly sedated, but remember everything (don't worry, not too bad). The nebbed some lidocaine prior to the bronch so that my lungs would be numb which worked...

I've had a few bronchs done, mine were a little different as I already have a trach, so that's where they went down with mine. I was also lightly sedated, but remember everything (don't worry, not too bad). The nebbed some lidocaine prior to the bronch so that my lungs would be numb which worked...

Even if she switched companies right now, it wouldn't help that she still has 50 K plus in hospital bills that have already been incurred....but, if the option exists for future hospitalizations, it would be worth looking into. For the time being, get the financial adviser from the hospital on...

So sorry you have to go back into the hospital Carly....how frustrating this all must be for you! It looks like you have a good plan of action once you get settled back in there....Basically, they just need to check everything to make sure nothing is being missed. You mentioned CT scans...

So sorry you have to go back into the hospital Carly....how frustrating this all must be for you! It looks like you have a good plan of action once you get settled back in there....Basically, they just need to check everything to make sure nothing is being missed. You mentioned CT scans...

I feel bad for you guys as well....went through similar issues and have said this on many threads. I also don't fit the typical CF mold and was not treated adequately at one CF center, I was pretty much brushed off. Fortunately, I have found good care and am treated aggressively. I only hope...

I feel bad for you guys as well....went through similar issues and have said this on many threads. I also don't fit the typical CF mold and was not treated adequately at one CF center, I was pretty much brushed off. Fortunately, I have found good care and am treated aggressively. I only hope...

I have found that azithromycin has helped my asthmatic component dramatically. I used to be very brittle in that regards, but since azithromycin was introduced into my regimen, my bronchospasms have really improved. So I guess that is one good thing that has come out of it <img...

I have found that azithromycin has helped my asthmatic component dramatically. I used to be very brittle in that regards, but since azithromycin was introduced into my regimen, my bronchospasms have really improved. So I guess that is one good thing that has come out of it <img...