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    Help with Sputum Culture Results

    i would say that it means there were many different germs present at day 3 adn the culture was positive. In the end they identified staph in small numbers, that is why they are watching it. hope it helps
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    Air purifier

    Well, I am not an expert, I have had a hepa with carbon filter for a while. Can't say I saw a huge difference, but 2 things are to mention: 1/ when I change the carbon filter (approx every 3 months), it has a thick layer of dust on it, so it does make air cleaner 2/ my dD has been having a...
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    Sould we be doing breathing treatments

    My dd has alWays done CPT. She is 4.5 y/o and does not do nebs systematically. Our doctor's'view is that you have to do tissk/benefit analysis for every med and you have to weigh the pros and cons. CPTn however is not negociable
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    Acid food and cold water

    My dd (4 y/o) has not experienced this but I try not to give her acid foods b/c germs thrive in acid environment. Don't have any scientific proof on that but it kind of makes sense. Never mentionned it to the doctor - will probably react the same way as yours. IMHO sometimes it is just easier to...
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    Daughter has cultured Staph. A

    My dd cultured staph until recently (oct 2011). We only treated it if there were symptoms or white blood cells in her cultures indicating infection, in which case it could cause damage as any other bug.
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    Probiotics ~ Do you think they help

    my answer is no. I have tried many different kinds, including refrigirated ones etc, no change in overall health. I think it helps when you take antibiotic and have stomach problems b/c of damaged flora, but my dd did not have any tummy problems with antibiotics. I still give her a probiotic...
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    Probiotics ~ Do you think they help

    my answer is no. I have tried many different kinds, including refrigirated ones etc, no change in overall health. I think it helps when you take antibiotic and have stomach problems b/c of damaged flora, but my dd did not have any tummy problems with antibiotics. I still give her a probiotic...
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    How old was your child when they first cultured pseudomonas?

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>kitomd21</b></i> When DD cultures PA, they'll advise a hospital admit for IV meds instead of an initial treatment with TOBI. What are others' thoughts?</end quote> From research I read, IVs do not give better results in terms of...
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    How old was your child when they first cultured pseudomonas?

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>kitomd21</b></i> When DD cultures PA, they'll advise a hospital admit for IV meds instead of an initial treatment with TOBI. What are others' thoughts?</end quote> From research I read, IVs do not give better results in terms of...
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    How old was your child when they first cultured pseudomonas?

    Mine was 18 m/o. Also eradicated w/Tobi but showed up again a year later. Tobi again and so far so good (it's. Been a year)
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    How old was your child when they first cultured pseudomonas?

    Mine was 18 m/o. Also eradicated w/Tobi but showed up again a year later. Tobi again and so far so good (it's. Been a year)
  12. Y

    link for additional info on more mutations that may benefit from Ivacaftor

    I looked through this presentation but am confused somewhat: are they saying Kalydeco might work for splicing mutations as well?
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    link for additional info on more mutations that may benefit from Ivacaftor

    I looked through this presentation but am confused somewhat: are they saying Kalydeco might work for splicing mutations as well?
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    Kinesitherapy - how?

    Hi there, i am russian too but i live in France, my dd has CF. We do not have vest here but a different kind of physio therapy ( it is called kinesitherapy) than in the US and it is very effective when done properly. i will try to find a video ffor you (if you understand french i can probably...
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    Kinesitherapy - how?

    Hi there, i am russian too but i live in France, my dd has CF. We do not have vest here but a different kind of physio therapy ( it is called kinesitherapy) than in the US and it is very effective when done properly. i will try to find a video ffor you (if you understand french i can probably...
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    Sinus/Nasal Issues

    Very interesting discussion. My dd is going through the same thing. Stuffy nose and nothing comes out. We went to see a specialised ENT last year before I noticed all this and he did not see anything with his lamp. Going for another round.
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    Sinus/Nasal Issues

    Very interesting discussion. My dd is going through the same thing. Stuffy nose and nothing comes out. We went to see a specialised ENT last year before I noticed all this and he did not see anything with his lamp. Going for another round.
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    Update on my daughter's case, help plz

    If the first testwas done at a acknowledged facility, I would definitely trust it. You might ask the researcher to specifically test for the two mutations and see what he comes up with.
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    Update on my daughter's case, help plz

    If the first testwas done at a acknowledged facility, I would definitely trust it. You might ask the researcher to specifically test for the two mutations and see what he comes up with.
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    Update and a question...

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sanfloraine</b></i> We have the same problem: a baby with a negative sweat test and pancreatic problems. My 21 months old son has had terrible diarrhea since July, it started after I stopped breastfeeding. His first 16 months, he...
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