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  1. M

    how tall are you?how much do you weigh?

    I was doing some research about alpha-1 antitrypsin deficiency--what has been considered a possible cause for my bronchiectasis--and looking at whether gene combos that cause variations in this "substance" are researched in people with CF. A1AT in layman's terms helps with repairing damage to...
  2. M

    how tall are you?how much do you weigh?

    I was doing some research about alpha-1 antitrypsin deficiency--what has been considered a possible cause for my bronchiectasis--and looking at whether gene combos that cause variations in this "substance" are researched in people with CF. A1AT in layman's terms helps with repairing damage to...
  3. M

    Quick - Anyone Know about Breastfeeding and IV Tobi?

    Your dr and Hale's are great resources. I can only add that if you deny Lillian the breast, you'll likely respond very well to the pump. I stopped nursing for meds with my last kid. He was 11 months and eating lots of solids. I thought he wasn't taking all that much milk from me and I...
  4. M

    Quick - Anyone Know about Breastfeeding and IV Tobi?

    Your dr and Hale's are great resources. I can only add that if you deny Lillian the breast, you'll likely respond very well to the pump. I stopped nursing for meds with my last kid. He was 11 months and eating lots of solids. I thought he wasn't taking all that much milk from me and I...
  5. M

    Quick - Anyone Know about Breastfeeding and IV Tobi?

    Your dr and Hale's are great resources. I can only add that if you deny Lillian the breast, you'll likely respond very well to the pump. <br /> <br />I stopped nursing for meds with my last kid. He was 11 months and eating lots of solids. I thought he wasn't taking all that much milk from...
  6. M

    Pregnancy blues

    I agree with Mary. Talk to a therapist and your OB/GYN. Your brain chemicals are pulling a number on you and it doesn't sound like a fun. ((hugs)) That said, there is nothing incorrect in feeling stressed and worried about adding another child to your family. Your feelings that it won't...
  7. M

    Pregnancy blues

    I agree with Mary. Talk to a therapist and your OB/GYN. Your brain chemicals are pulling a number on you and it doesn't sound like a fun. ((hugs)) That said, there is nothing incorrect in feeling stressed and worried about adding another child to your family. Your feelings that it won't...
  8. M

    Pregnancy blues

    I agree with Mary. Talk to a therapist and your OB/GYN. Your brain chemicals are pulling a number on you and it doesn't sound like a fun. ((hugs)) <br /> <br />That said, there is nothing incorrect in feeling stressed and worried about adding another child to your family. Your feelings...
  9. M

    cholesterol issues and CF?

    Pancreatic sufficient here, but noting that I can't eat some fats (bacon or pepperoni) w/o having diarrhea. I am on the thin side. And have had a cholesterol level ranging btw 220 and 250 since it was first checked in my early twenties. My good cholesterol is still adequate such that no one...
  10. M

    cholesterol issues and CF?

    Pancreatic sufficient here, but noting that I can't eat some fats (bacon or pepperoni) w/o having diarrhea. I am on the thin side. And have had a cholesterol level ranging btw 220 and 250 since it was first checked in my early twenties. My good cholesterol is still adequate such that no one...
  11. M

    cholesterol issues and CF?

    Pancreatic sufficient here, but noting that I can't eat some fats (bacon or pepperoni) w/o having diarrhea. I am on the thin side. And have had a cholesterol level ranging btw 220 and 250 since it was first checked in my early twenties. My good cholesterol is still adequate such that no one...
  12. M

    To do or not to do

    I am sorry you are going through this. I have a nine-year-old son and I can only imagine planning for a transplant as well as my family's continued daily lives. I do not have advice for you, but if you do not get a response soon, you might consider re-posting in the Adults section because it...
  13. M

    To do or not to do

    I am sorry you are going through this. I have a nine-year-old son and I can only imagine planning for a transplant as well as my family's continued daily lives. I do not have advice for you, but if you do not get a response soon, you might consider re-posting in the Adults section because it...
  14. M

    To do or not to do

    I am sorry you are going through this. I have a nine-year-old son and I can only imagine planning for a transplant as well as my family's continued daily lives. <br />I do not have advice for you, but if you do not get a response soon, you might consider re-posting in the Adults section...
  15. M

    Question on culturing?

    Lauren, Thank you for the info! My NYU pulmo felt the same about Quest and had me bring my cultures into NYC...lol, not always an easy feat from the suburbs. My suburban pulmos also have me use the local hospital's lab. Probably an improvement over Quest and LabCorp, but I have little doubt...
  16. M

    Question on culturing?

    Lauren, Thank you for the info! My NYU pulmo felt the same about Quest and had me bring my cultures into NYC...lol, not always an easy feat from the suburbs. My suburban pulmos also have me use the local hospital's lab. Probably an improvement over Quest and LabCorp, but I have little doubt...
  17. M

    Question on culturing?

    Lauren, <br />Thank you for the info! My NYU pulmo felt the same about Quest and had me bring my cultures into NYC...lol, not always an easy feat from the suburbs. My suburban pulmos also have me use the local hospital's lab. Probably an improvement over Quest and LabCorp, but I have little...
  18. M

    Question on culturing?

    I get my cultures through a pulmonologist and what they've always specified on the paper is that they want a regular culture and cultures for fungus and slow-growing bacteria, like mycobacterium/TB, called AFB (acid fast bacilli...or something like that). This last one takes up to 5 weeks to...
  19. M

    Question on culturing?

    I get my cultures through a pulmonologist and what they've always specified on the paper is that they want a regular culture and cultures for fungus and slow-growing bacteria, like mycobacterium/TB, called AFB (acid fast bacilli...or something like that). This last one takes up to 5 weeks to...
  20. M

    Question on culturing?

    I get my cultures through a pulmonologist and what they've always specified on the paper is that they want a regular culture and cultures for fungus and slow-growing bacteria, like mycobacterium/TB, called AFB (acid fast bacilli...or something like that). This last one takes up to 5 weeks to...
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