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Neither my parents or grandparents (maternal or paternal) had Cystic Fibrosis. The only other case we've been able to track was a cousin of my mother. She had two boys that had CF. Both died around 12-14 years of age and that was about 40 years ago. I remember meeting them once and I think I was...

I'm on day 14 of Trikafta and haven't had anything you could call a "purge". I've noticed my mucus is thinner and comes up easier, but in no way has there been a purge. (I have abdominal pain and nausea though and I've heard others have had this as well).

Ah yes! The ole' CF Sinus issues. I've had around 20 sinus surgeries (lost track). Everything from polyps to having "windows" put in to having bone removed to make the opening to the frontal sinuses bigger. I do daily sinus rinses. This will help. I do 2-3 per day. If my infection is real bad I...

Ah yes! The ole' CF Sinus issues. I've had around 20 sinus surgeries (lost track). Everything from polyps to having "windows" put in to having bone removed to make the opening to the frontal sinuses bigger. I do daily sinus rinses. This will help. I do 2-3 per day. If my infection is real bad I...

Ah yes! The ole' CF Sinus issues. I've had around 20 sinus surgeries (lost track). Everything from polyps to having "windows" put in to having bone removed to make the opening to the frontal sinuses bigger. I do daily sinus rinses. This will help. I do 2-3 per day. If my infection is real bad I...

I'm 50 (well, in a few more days) and my fev1 is about 54%.

I'm 50 (well, in a few more days) and my fev1 is about 54%.

I'm 50 (well, in a few more days) and my fev1 is about 54%.

Colleen, By far my most trouble with CF has been sinus related. I've had 20 surgeries on them to date. I have used Tobi in my rinses before, I use pulmocort also. I have MRSA in my sinus and lungs. I've had many unique procedures done to try and put off the total frontal sinus obliteration. They...

Colleen, By far my most trouble with CF has been sinus related. I've had 20 surgeries on them to date. I have used Tobi in my rinses before, I use pulmocort also. I have MRSA in my sinus and lungs. I've had many unique procedures done to try and put off the total frontal sinus obliteration. They...

Colleen, By far my most trouble with CF has been sinus related. I've had 20 surgeries on them to date. I have used Tobi in my rinses before, I use pulmocort also. I have MRSA in my sinus and lungs. I've had many unique procedures done to try and put off the total frontal sinus obliteration. They...

Colleen, By far my most trouble with CF has been sinus related. I've had 20 surgeries on them to date. I have used Tobi in my rinses before, I use pulmocort also. I have MRSA in my sinus and lungs. I've had many unique procedures done to try and put off the total frontal sinus obliteration. They...

Colleen, <br />By far my most trouble with CF has been sinus related. I've had 20 surgeries on them to date. I have used Tobi in my rinses before, I use pulmocort also. I have MRSA in my sinus and lungs. I've had many unique procedures done to try and put off the total frontal sinus...

Merry Christmas everyone. May we all have a great year in 2010.

Merry Christmas everyone. May we all have a great year in 2010.

Merry Christmas everyone. May we all have a great year in 2010.

Merry Christmas everyone. May we all have a great year in 2010.

Merry Christmas everyone. May we all have a great year in 2010.

After 19 sinus surgeries and seeing my ENT at least once a week for the past 3 years my doctor told me Monday he thinks it is time. We have been fighting MRSA in my sinuses and my lungs for 3 years. He thinks the sinus issues are "feeding" the lung problems. He has been trying to avoid this (as...

After 19 sinus surgeries and seeing my ENT at least once a week for the past 3 years my doctor told me Monday he thinks it is time. We have been fighting MRSA in my sinuses and my lungs for 3 years. He thinks the sinus issues are "feeding" the lung problems. He has been trying to avoid this (as...