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  1. J

    How awesome is your doctor?

    My daughters doc gets a 4. When you actually see them, she is treated like a queen. But sometimes getting a call back takes forever, and Abby is one of those that you better act fast because her little problems turn ugly extremely fast and we live 3 hours away so if they want to see her they...
  2. J

    How awesome is your doctor?

    My daughters doc gets a 4. When you actually see them, she is treated like a queen. But sometimes getting a call back takes forever, and Abby is one of those that you better act fast because her little problems turn ugly extremely fast and we live 3 hours away so if they want to see her they...
  3. J

    Jerry Cahill is in for lungs for real this time!

    That is amazing!! Praying for a speedy recovery!!!
  4. J

    Jerry Cahill is in for lungs for real this time!

    That is amazing!! Praying for a speedy recovery!!!
  5. J

    Kalydeco off-label: My first 4 days

    So exciting!! Thank you so much for sharing your journey!!! Can't wait till the next update!! Good Luck!!
  6. J

    Kalydeco off-label: My first 4 days

    So exciting!! Thank you so much for sharing your journey!!! Can't wait till the next update!! Good Luck!!
  7. J

    Vest machine and neb air compressor, broken?

    Hey just wanted to say we use a Pari and we have had it go out twice in the last 2 years and they always send us a replacement for free, they even pay for us to ship the old one back. So if it goes out within the first couple of years definately try calling Pari again. I can see them not...
  8. J

    Vest machine and neb air compressor, broken?

    Hey just wanted to say we use a Pari and we have had it go out twice in the last 2 years and they always send us a replacement for free, they even pay for us to ship the old one back. So if it goes out within the first couple of years definately try calling Pari again. I can see them not...
  9. J

    Second Child??

    Mary, I never even thought of that aspect of it, but how very right you are!! I have 2 sisters and I don't have CF but I lean on my sisters for everything, and can't imagine my life without them. While Clayton and Abby are still very young I hope they have that bound like me and my sisters...
  10. J

    Second Child??

    Mary, I never even thought of that aspect of it, but how very right you are!! I have 2 sisters and I don't have CF but I lean on my sisters for everything, and can't imagine my life without them. While Clayton and Abby are still very young I hope they have that bound like me and my sisters...
  11. J

    My first update since starting Kalydeco

    That is amazing DrRoe!!! Congrats!!! Absolutely chilling all of these wonderful advances!!! Thanks for sharing your sons amazing results, it gives us so much hope!! <img src="i/expressions/face-icon-small-smile.gif" border="0">
  12. J

    My first update since starting Kalydeco

    That is amazing DrRoe!!! Congrats!!! Absolutely chilling all of these wonderful advances!!! Thanks for sharing your sons amazing results, it gives us so much hope!! <img src="i/expressions/face-icon-small-smile.gif" border="0">
  13. J

    IV treatment

    My daughter has been on home IV antibiotics several times. And it is so easy with what they give her. It is a pressurized container with a bubble of meds inside. It is usually around the size of a small styrofoam coffee container. We usually make a soft purse to go around her neck and place...
  14. J

    IV treatment

    My daughter has been on home IV antibiotics several times. And it is so easy with what they give her. It is a pressurized container with a bubble of meds inside. It is usually around the size of a small styrofoam coffee container. We usually make a soft purse to go around her neck and place...
  15. J

    Jasey was in hospital wed thru fri for c-diff colitis

    Hate to sound dumb but what exactly is c-diff? Thanks
  16. J

    Jasey was in hospital wed thru fri for c-diff colitis

    Hate to sound dumb but what exactly is c-diff? Thanks
  17. J

    Second Child??

    Anomie, I am truly sorry that you do not have faith, that makes me very sad for you. And how thankful I am that I am not your daughter. Think of how she would feel if she were to read this. It's a personal choice and I don't at all fault you for yours as you should not fault anyone else for...
  18. J

    Second Child??

    Anomie, I am truly sorry that you do not have faith, that makes me very sad for you. And how thankful I am that I am not your daughter. Think of how she would feel if she were to read this. It's a personal choice and I don't at all fault you for yours as you should not fault anyone else for...
  19. J

    Boiling nebs?

    I have to ask a dumb question...what does adding vinegar do? <img src="i/expressions/face-icon-small-smile.gif" border="0">
  20. J

    Boiling nebs?

    I have to ask a dumb question...what does adding vinegar do? <img src="i/expressions/face-icon-small-smile.gif" border="0">
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