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They usually just do a throat culture to see if it is gone. But usually I can pretty much tell because she quits coughing. And we have always cultured those 2 together for some reason, never just one or the other. Abby is very very active and generally does not cough unless she is sick. I'm...

They usually just do a throat culture to see if it is gone. But usually I can pretty much tell because she quits coughing. And we have always cultured those 2 together for some reason, never just one or the other. Abby is very very active and generally does not cough unless she is sick. I'm...

Abby cultures those 2 bugs together off and on quite a bit. She usually just coughs a little more and sometimes runs a VERY slight temperature (99.3). The docs usually put her on abx and then she's fine.

Abby cultures those 2 bugs together off and on quite a bit. She usually just coughs a little more and sometimes runs a VERY slight temperature (99.3). The docs usually put her on abx and then she's fine.

I'm curious too. I've been keeping up with Mandy's blog and soooo happy for her!!! <img src="i/expressions/face-icon-small-smile.gif" border="0"> And I loved Rebecca's latest blog as well!! But so far Mandy is the only one that I've seen that is sounding off about taking it off label...

I'm curious too. I've been keeping up with Mandy's blog and soooo happy for her!!! <img src="i/expressions/face-icon-small-smile.gif" border="0"> And I loved Rebecca's latest blog as well!! But so far Mandy is the only one that I've seen that is sounding off about taking it off label...

http://www.cff.org/aboutCFFoundation/Publications/connections/March2012/FDA-Approval-of-Kalydeco.cfm This is what I received an email about yesterday, and think what mamascarlett might be referring to.

http://www.cff.org/aboutCFFoundation/Publications/connections/March2012/FDA-Approval-of-Kalydeco.cfm This is what I received an email about yesterday, and think what mamascarlett might be referring to.

Harriett..I couldn't help but notice that you don't know Emily's 2nd mutation. May I ask if you had the full panel test done and they still could not find it? The reason I ask is because we are going in tomorrow to get Abby the full panel test done because when she was diagnosed they only did...

Harriett..I couldn't help but notice that you don't know Emily's 2nd mutation. May I ask if you had the full panel test done and they still could not find it? The reason I ask is because we are going in tomorrow to get Abby the full panel test done because when she was diagnosed they only did...

My baby girl takes 4 creon 12,000 with meals and 2 with snacks, so sounds like your son Taylersmom takes the same as my Abby. And I think her dose is probably a little high just to be on the safe side. They say it's better to take more than less.

My baby girl takes 4 creon 12,000 with meals and 2 with snacks, so sounds like your son Taylersmom takes the same as my Abby. And I think her dose is probably a little high just to be on the safe side. They say it's better to take more than less.

Anomie I tried to pull up the referenced link and an error message pulls up. Any other way you know of to get to that thread? Thanks <img src="i/expressions/face-icon-small-smile.gif" border="0">

Anomie I tried to pull up the referenced link and an error message pulls up. Any other way you know of to get to that thread? Thanks <img src="i/expressions/face-icon-small-smile.gif" border="0">

I just called her nurse to get it set up, I checked and she was only tested for 51 mutations. Thank you, all this is just too exciting to be real!!! God bless all of you for posting and giving us strength and hope. I am ofter so meek and don't push the docs when I should. Yall are giving me...

I just called her nurse to get it set up, I checked and she was only tested for 51 mutations. Thank you, all this is just too exciting to be real!!! God bless all of you for posting and giving us strength and hope. I am ofter so meek and don't push the docs when I should. Yall are giving me...

If you don't mind my asking, I was just wondering how your experience is going saveferris2009. I try to keep check of your blog and haven't seen anything since day 2. Thanks and hope it is going well!! <img src="i/expressions/face-icon-small-smile.gif" border="0">

If you don't mind my asking, I was just wondering how your experience is going saveferris2009. I try to keep check of your blog and haven't seen anything since day 2. Thanks and hope it is going well!! <img src="i/expressions/face-icon-small-smile.gif" border="0">

We just got the bill for my daughters last hospital stay, it was 4 nights, 5 days(not sure how they calculate the room and board). The only med she received from them was IV Vancomycin. Our bill was 17,340, however we take all of her meds with us when we go and we also refuse respitory...

We just got the bill for my daughters last hospital stay, it was 4 nights, 5 days(not sure how they calculate the room and board). The only med she received from them was IV Vancomycin. Our bill was 17,340, however we take all of her meds with us when we go and we also refuse respitory...