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  1. J

    Sinus surgery?

    My daughter has had numerous sinus surgeries and she always can breathe so much easier afterwards!!! She sleeps better, eats better, and feels better. I remember one time the next day she looked at me with a puzzled look and said "Mommy and can breathe through my nose." She was 5 then. I say...
  2. J

    Sinus surgery?

    My daughter has had numerous sinus surgeries and she always can breathe so much easier afterwards!!! She sleeps better, eats better, and feels better. I remember one time the next day she looked at me with a puzzled look and said "Mommy and can breathe through my nose." She was 5 then. I say...
  3. J

    What song do you relate your CF fight to

    "I won't let go" by Rascal Flatts
  4. J

    Back into the hospital tonight

    My heart just absolutely cries for you! Lots of prayers going yalls way. I pray Micah has a very speedy recovery. I can't stand it when our kids are sick. Wish we could switch places with them.
  5. J

    Back into the hospital tonight

    My heart just absolutely cries for you! Lots of prayers going yalls way. I pray Micah has a very speedy recovery. I can't stand it when our kids are sick. Wish we could switch places with them.
  6. J

    Reactions to Vancomycin?

    My daughter has gotten redman syndrome a couple of times from the vanc, but nothing like you said although she has an extremely high pain tolerance. As far as I know she did like Havoc, just redness and itching. She also sometimes takes Gentamycin but it has a rough side effect...hearing loss...
  7. J

    Reactions to Vancomycin?

    My daughter has gotten redman syndrome a couple of times from the vanc, but nothing like you said although she has an extremely high pain tolerance. As far as I know she did like Havoc, just redness and itching. She also sometimes takes Gentamycin but it has a rough side effect...hearing loss...
  8. J

    do you ever get better on your own?

    What about home IV? My daughter usually goes in just long enough to get her IV meds to the level they would like them..and then we get to go home with a pic line and home IV therapy. I agree with everyone else...don't jeopardize your health for school. School will be there when you get back...
  9. J

    do you ever get better on your own?

    What about home IV? My daughter usually goes in just long enough to get her IV meds to the level they would like them..and then we get to go home with a pic line and home IV therapy. I agree with everyone else...don't jeopardize your health for school. School will be there when you get back...
  10. J

    Are you kidding me?!?!

    Yikes!!! How scary!! Our pulmozyme is $100 a month and I just refilled yesterday, I know I couldn't afford it going up that much! And mine does show me the actual cost of the med and it shows to be like $2900.00 we get it through Right Source Specialty Pharmacy and before that we got it...
  11. J

    Are you kidding me?!?!

    Yikes!!! How scary!! Our pulmozyme is $100 a month and I just refilled yesterday, I know I couldn't afford it going up that much! And mine does show me the actual cost of the med and it shows to be like $2900.00 we get it through Right Source Specialty Pharmacy and before that we got it...
  12. J

    In ER...admitting to PICU

    Lots of Prayers going your way.
  13. J

    In ER...admitting to PICU

    Lots of Prayers going your way.
  14. J

    Schools with bad air quality

    I was told by one of my daughters teachers that if you had a doctor write you a note stating that your child needed to be in a room with an air purifier that the school would then have to put it on your 504 plan and if they didn't comply by getting an air purifier in your childs room that they...
  15. J

    Schools with bad air quality

    I was told by one of my daughters teachers that if you had a doctor write you a note stating that your child needed to be in a room with an air purifier that the school would then have to put it on your 504 plan and if they didn't comply by getting an air purifier in your childs room that they...
  16. J

    Advice for a mom that will have a child with CF

    Congrats!! Sounds like you are very well prepared already!!! <img src="i/expressions/face-icon-small-smile.gif" border="0"> We didn't know about Abby's CF until she was 2, so I can't help with the bring home part but my little one has super sensitive sinus' so we had to buy a whole house HEPA...
  17. J

    Advice for a mom that will have a child with CF

    Congrats!! Sounds like you are very well prepared already!!! <img src="i/expressions/face-icon-small-smile.gif" border="0"> We didn't know about Abby's CF until she was 2, so I can't help with the bring home part but my little one has super sensitive sinus' so we had to buy a whole house HEPA...
  18. J

    Sweat Test result :(

    My daughter was diagnosed at age 2 as well. She had a lot of symptoms however. She ate literally 3 times as much as I did, she had 4 to 5 bowel movements a day, and not regular ones(they would smell horrible and be very non-formed, and the color of clay) Her poor little stomach would be so...
  19. J

    Sweat Test result :(

    My daughter was diagnosed at age 2 as well. She had a lot of symptoms however. She ate literally 3 times as much as I did, she had 4 to 5 bowel movements a day, and not regular ones(they would smell horrible and be very non-formed, and the color of clay) Her poor little stomach would be so...
  20. J

    Not sure what to do....

    I was such a skeptic when the vest was mentioned to us for our then 5 year old. I was afraid that it wouldn't do as good as we were doing her Chest PT, you know not flipping her in all different positions and such. She was hospitalized several times that particular year with her lungs...
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