Search results

  1. T

    CF clinic recommendations near Auburn, AL

    We live in Birmingham, Al and go to Childrens here in Birmingham. Shelby has received excellent care. I can't say enough good things about Dr Hoover and the team at our clinic. PM me if there is anything you would like to know.
  2. T

    Combination of 2184insA & Delta F508

    Renee, my daughter also has 2184insA and df508. Shelby is 12 now and was diagnosed at 9 years old after a nose bleed indicated blocked sinuses (no polyps), Until this time she had not been sick at all. Not even a bad cold. She is PS but has liver issues and has recently started having...
  3. T

    Combination of 2184insA & Delta F508

    Renee, my daughter also has 2184insA and df508. Shelby is 12 now and was diagnosed at 9 years old after a nose bleed indicated blocked sinuses (no polyps), Until this time she had not been sick at all. Not even a bad cold. She is PS but has liver issues and has recently started having...
  4. T

    hypoglycemia in CF

    Thanks for the information. My daughter, without cfrd, has been dealing with this for months. She has gone as low as 45 on a few occassions. She had an OGTT and this was high (179) and she was sent to the endo for insulin even with me saying she had these lows and had them often, especially...
  5. T

    hypoglycemia in CF

    Thanks for the information. My daughter, without cfrd, has been dealing with this for months. She has gone as low as 45 on a few occassions. She had an OGTT and this was high (179) and she was sent to the endo for insulin even with me saying she had these lows and had them often, especially...
  6. T

    hypoglycemia in CF

    Thanks for the information. My daughter, without cfrd, has been dealing with this for months. She has gone as low as 45 on a few occassions. She had an OGTT and this was high (179) and she was sent to the endo for insulin even with me saying she had these lows and had them often, especially...
  7. T

    low blood sugar

    My daughter has been on bactrim and nasonex for a little over a week. A day or so after starting it, she began saying she felt that her blood sugar was low and she was starving and sleepy. She does not have CFRD but does know what low blood sugar feels like having had steroid induced Cushings...
  8. T

    low blood sugar

    My daughter has been on bactrim and nasonex for a little over a week. A day or so after starting it, she began saying she felt that her blood sugar was low and she was starving and sleepy. She does not have CFRD but does know what low blood sugar feels like having had steroid induced Cushings...
  9. T

    low blood sugar

    My daughter has been on bactrim and nasonex for a little over a week. A day or so after starting it, she began saying she felt that her blood sugar was low and she was starving and sleepy. She does not have CFRD but does know what low blood sugar feels like having had steroid induced Cushings...
  10. T

    uncertain about the future but trying to stay positive

    Hi Katie, congratulations on your new young man. I am so sorry about the diagnosis though. As Tonya says we all understand and have all been there. I also don't know anything about atypical CF. I wonder if it has been designated that way because he in pancreatic sufficient. My daughter is...
  11. T

    uncertain about the future but trying to stay positive

    Hi Katie, congratulations on your new young man. I am so sorry about the diagnosis though. As Tonya says we all understand and have all been there. I also don't know anything about atypical CF. I wonder if it has been designated that way because he in pancreatic sufficient. My daughter is...
  12. T

    uncertain about the future but trying to stay positive

    Hi Katie, congratulations on your new young man. I am so sorry about the diagnosis though. As Tonya says we all understand and have all been there. I also don't know anything about atypical CF. I wonder if it has been designated that way because he in pancreatic sufficient. My daughter is...
  13. T

    allergens in the home

    My daughter has been hoarse off and on for the past month. She coughed a little so I thought the hoarsness was related to the slight cough. She also complained of swimmers ear. I contacted the clinic and she was prescibed Levaquin. After 6 days on med the cough is almost gone and her ear is...
  14. T

    allergens in the home

    My daughter has been hoarse off and on for the past month. She coughed a little so I thought the hoarsness was related to the slight cough. She also complained of swimmers ear. I contacted the clinic and she was prescibed Levaquin. After 6 days on med the cough is almost gone and her ear is...
  15. T

    allergens in the home

    My daughter has been hoarse off and on for the past month. She coughed a little so I thought the hoarsness was related to the slight cough. She also complained of swimmers ear. I contacted the clinic and she was prescibed Levaquin. After 6 days on med the cough is almost gone and her ear is...
  16. T

    Liver Trouble Anyone?

    Hi Kristen, my daughter was diagnosed with cf related liver disease at the same time as she was diagnosed with cf. She had a late diagnosis. (9 years old) Her only symptoms were enlarged liver and spleen. No pain or discomfort, althought her liver numbers were higher than normal but not...
  17. T

    Liver Trouble Anyone?

    Hi Kristen, my daughter was diagnosed with cf related liver disease at the same time as she was diagnosed with cf. She had a late diagnosis. (9 years old) Her only symptoms were enlarged liver and spleen. No pain or discomfort, althought her liver numbers were higher than normal but not...
  18. T

    Liver Trouble Anyone?

    Hi Kristen, my daughter was diagnosed with cf related liver disease at the same time as she was diagnosed with cf. She had a late diagnosis. (9 years old) Her only symptoms were enlarged liver and spleen. No pain or discomfort, althought her liver numbers were higher than normal but not...
  19. T

    Daegan is back in the hospital :(

    It's hard not knowing what's wrong when our children are sick. I hope you finally get a diagnosis so he can get the correct meds and start feeling better. You and Daegan are in my prayers.
  20. T

    Daegan is back in the hospital :(

    It's hard not knowing what's wrong when our children are sick. I hope you finally get a diagnosis so he can get the correct meds and start feeling better. You and Daegan are in my prayers.
Top