:mad::mad::mad::mad:A person at Vertex in the GPS program just royally dropped the ball with some financial stuff and I will be running out of Orkambi in 2 weeks time. Do any of you have any experience with or have themselves had to wean off of Orkambi and if so, how did you do it? Is it a...
Anyone know how the effectiveness of Orkambi is quantified, BESIDES average lung function performance/improvement? Like how many defective proteins are being corrected/added on average per dosage session? 20%? 30%? Or is this unable to be quantified? Thanks.
Well. My insurance has just sent me a letter saying they are pulling out of GA and are not participating in the MarketPlace (Obamacare) anymore as of Jan 1 2017. This causes somewhat of a problem in that I just got on Orkambi in 2016 and now I don't know if any of the insurers that are left will...
Any Georgia residents on Orkambi via insurance? I am looking to sign up for Obamacare in a few months, so any experiences (bad/good) with GA carriers would be super helpful. Thanks!
Anyone experience any "side effects" from an extended and/or continous usage on anti-biotics? I know there are good bacteria throughout the body that are killed when one is on anti-biotics...especially in the stomach..so has anyone had a side effect as a direct result of that?
Thanx.
PS: How...
Hi there. Brand new to the forum and I was wondering if everyone could help me get up to speed with CF. I haven't had any issues with my lungs until the end of '06 when I was hospitalized with pneumonia. Ever since then, I have started coughing up mucus on a continuous daily basis and have...
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