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Karenmichelle, the blood work was received by Ambry on April 1 and we got the results on April 26. Hang in there on the wait. The waiting was so hard. Thanks Mom2owen. The GI nurse called with results and she just said negative for mutations. She did not indicate any variants but at our next...

Karenmichelle, the blood work was received by Ambry on April 1 and we got the results on April 26. Hang in there on the wait. The waiting was so hard. Thanks Mom2owen. The GI nurse called with results and she just said negative for mutations. She did not indicate any variants but at our next...

Karenmichelle, the blood work was received by Ambry on April 1 and we got the results on April 26. Hang in there on the wait. The waiting was so hard. <br /> <br />Thanks Mom2owen. The GI nurse called with results and she just said negative for mutations. She did not indicate any variants but...

Mistyjo, our daughter is pancreatic insufficient and had sweat test level of 38 on one arm and 41 on the other. It was a long wait for the genetic test but the test was negative. I read a study that found that borderline sweat test and having a symptom of CF results in about a 1 in 4 chance of...

Mistyjo, our daughter is pancreatic insufficient and had sweat test level of 38 on one arm and 41 on the other. It was a long wait for the genetic test but the test was negative. I read a study that found that borderline sweat test and having a symptom of CF results in about a 1 in 4 chance of...

Mistyjo, our daughter is pancreatic insufficient and had sweat test level of 38 on one arm and 41 on the other. It was a long wait for the genetic test but the test was negative. I read a study that found that borderline sweat test and having a symptom of CF results in about a 1 in 4 chance of...

I posted an update last week and I am not sure where it went. We received the results of our daughter's Ambry CF gene test last week and it was negative for mutations! I want to thank all of you who have responded to my questions and offered support. I appreciate it more that you know. We...

I posted an update last week and I am not sure where it went. We received the results of our daughter's Ambry CF gene test last week and it was negative for mutations! I want to thank all of you who have responded to my questions and offered support. I appreciate it more that you know. We...

I posted an update last week and I am not sure where it went. <br /> <br />We received the results of our daughter's Ambry CF gene test last week and it was negative for mutations! I want to thank all of you who have responded to my questions and offered support. I appreciate it more that...

I am right there with you Karenmichelle. We are also waiting for Ambry test results. It is so hard to not play "what if" as we wait for test results. Sorry your son is so sick! I wish I had some words of wisdom. All I can say is hang in there and know that this is a tremendous group here...

I am right there with you Karenmichelle. We are also waiting for Ambry test results. It is so hard to not play "what if" as we wait for test results. Sorry your son is so sick! I wish I had some words of wisdom. All I can say is hang in there and know that this is a tremendous group here...

I am right there with you Karenmichelle. We are also waiting for Ambry test results. It is so hard to not play "what if" as we wait for test results. Sorry your son is so sick! I wish I had some words of wisdom. All I can say is hang in there and know that this is a tremendous group here...

mom2owen (katy), I read where you recently got your Ambry test results back for your son. Can you tell me how long it took to get your results? Did you get any information after the first "panel" was run? Thanks for the support! KKN

mom2owen (katy), I read where you recently got your Ambry test results back for your son. Can you tell me how long it took to get your results? Did you get any information after the first "panel" was run? Thanks for the support! KKN

mom2owen (katy), <br /> <br />I read where you recently got your Ambry test results back for your son. Can you tell me how long it took to get your results? Did you get any information after the first "panel" was run? <br /> <br />Thanks for the support! <br /> <br />KKN

We went yesterday for the blood draw for the Ambry CF gene test. The wait begins... Our daughter is doing fantastic on Creon. She is taking Creon 12000 - three times a day. She is doing so well on it, that I asked her GI doctor if we could stop periactin and he agreed (yeah for one less...

We went yesterday for the blood draw for the Ambry CF gene test. The wait begins... Our daughter is doing fantastic on Creon. She is taking Creon 12000 - three times a day. She is doing so well on it, that I asked her GI doctor if we could stop periactin and he agreed (yeah for one less...

We went yesterday for the blood draw for the Ambry CF gene test. The wait begins... <br /> <br />Our daughter is doing fantastic on Creon. She is taking Creon 12000 - three times a day. She is doing so well on it, that I asked her GI doctor if we could stop periactin and he agreed (yeah for...

Our 7.5 year old daughter was diagnosed with mild pancreatic insufficiency in January (is doing great on Creon) had sweat level tests of 38 and 41. We had the blood drawn yesterday for the CF gene test and so our wait begins. Our daughter is adopted and we have no birth family history. CF...

Our 7.5 year old daughter was diagnosed with mild pancreatic insufficiency in January (is doing great on Creon) had sweat level tests of 38 and 41. We had the blood drawn yesterday for the CF gene test and so our wait begins. Our daughter is adopted and we have no birth family history. CF...